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    • emmasearching
      Thank you for responding Cas9 I truly appreciate it! I will definitely take your advice!I believe I'm doing myself more harm than good at the moment.My next igg is in 2 days so in the meantime i will try my best to focus on my health and easing my anxiety and stress.Will post an update no matter the outcome.
    • Cas9
      If I were you, I wouldn't touch this DIY CRISPR with a ten foot pole. Terrible idea IMO.
    • Cas9
      I concur with your doctors. Simply igg test at 12 weeks (or 16 if you prefer). If the hsv2 results come back negative, then you don't have hsv2. That should relieve your "herpes" anxiety. And of course  the other STD tests came back negative. Also, leave your ass alone and give it a chance to heal. And eat foods that don't aggravate that area when passing stool. If the issues persist then you'll need to talk to your doctors of course but it doesn't sound like any STD issues based on your test results. In the meantime, rest easy and pamper yourself; Being overly stressed about the issue is half your battle.
    • toxakamaz
      Do we know a contact for a lab that does this? I am less concerned with it not working since all you would have lost is money which is not a big deal and more with it potentially fucking up some DNA somewhere and something more serious coming out of this.  Thanks again! @Kurdt01 @Sean123
    • emmasearching
      HSV2 symptoms appearing 40+ days later?! 21 year old female,have had oral HSV1 since i was a kid(haven’t had a cold sore in over a year) March 7th -unprotected genital to genital rubbing me on top of him,anal area was exposed(my anus could have been rubbing on his penis for more than a minute or 2) and protected vaginal intercourse but the condom broke(don’t know how long it was broken for before we noticed and he put on new one)His HSV-2 status is unknown as he’s never been tested.Had two previous sexual encounters with him on February 21st and February 28th of protected vagina intercourse and unprotected oral intercourse (was experiencing(tooth/mouth symptoms)for awhile prior to intercourse)March 8th i was experiencing really bad mouth pain due to wisdom teeth coming in and urgent care had thought a potential dental absess infection was given a super strong antibiotic to take for 7 days medication really messed with my stomach. get my period march 15th everything normal nothing out of the ordinary still fast forward and the dental infection returns i go to the dentist and they say its a wisdom tooth mouth/gum infection that will reoccur until i get them out,they prescribe me a strong 4 day antibiotic but it wasn’t bothering me too much so i waited until april to take them my period begins again April 18th i also finish the strong 4 day antibiotics on this day APRIL 22nd(day symptoms began) i notice a skin tag looking thing on my vaginal opening and i pulled and yanked at it(i know bad idea)i also notice my anal area is a little red also notice light tingling and little itchy down there in general,had a bad anal itch back in march for a day but no other symptoms and it was gone the next day look up my symptoms and aggressively search the internet for hours and get paranoid that i have HPV or herpes night of april 24th i decide to shave down there to get a better look at everything since i hadn’t shaved in a while/hair was irritating me and wanted to make sure everything was ok,unfortunately made the decision to shave with a very old potentially rusty razor,with just water and in a different direction than usual. this whole region began to burn so incredibly bad,made another unfortunate decision to put on a thong and tight jeans and then move into a new apartment the very next day,night of april 25th i experienced the worst pain and symptoms in both the vaginal and anal area -pain in groin&legs -pins and needles -burning -itchy -anal redness and swelling and pain(little green/yellow dots crust sticking to anus but no visible lesions) -vaginal pain(had a lesion on my vulva) -strong vaginal odor(smelling like my own odor but amplified) -yellow discharge stringy dark yellow watery  vaginal(OBGYN saw pics and said was normal) -inflamation -chills(possibly from anxiety attack) -no fever  -swollen upper and lower lymph nodes  -no pain while peeing -body aches/shooting nerve pain through legs -leg twitching -queefing -movement in lower abdomen -shooting pain in vaginal lips -pinching feeling -itchy legs,butt,hips -lower back pain -constipated -feels like there was something in my butt when i walked and sat a certain way -feeing like stuff was leaking out of me  called the on call gyno sunday very anxious and explained symptoms told her i thought it was herpes and she prescribed me valtrex to take for 10 days April 27th i go to the gynecologist after spending the whole weekend convinced on herpes as i spent hours and hours researching (I’m a very paranoid person and a self diagnosed hypochondriac) gyno really didn’t think it was/is herpes,said its very unlikely but still i got a full 10 panel std screening,hsv igg antibody blood test and two PCR swabs one of the vulva lesion and one of the inside of my vagina the day after starting the valtrex i had three aggressive bouts of dihharea and i then began not eating or sleeping much due to my anxiety  Full Panel STD came back negative for everything including BV,Gonno,Chlym,trich,Candida,yeast,hpv,HIV,hep b + c,syph,vaginitis igg blood test came back (taken at 7 weeks and 2 days post possible exposure) HSV-1 positve(but we knew that) >8.0 and HSV-2 negative >.2 couple days later PCR swabs came back negative and i was instructed to stop taking the valtrex(i had taken 4 days worth(2 pills a day) symptoms continued  HSV-2 igg blood test (taken at 8 weeks and 3 days post possible exposure)  came back HSV-2 negative >.2  some symptoms continued and some lessened but i don’t know if any were due to my anxiety decreasing(became a little less worried after negative results and started taking my anxiety meds again)or maybe my body is fighting whatever this is and getting better on its own i was at this time constantly pulling at my anal area but felt like there was something in my anus when i walked,was having infrequent bowl movement,and when i really stretched my anus open i noticed yellow discharge or mucus(almost looked like yellow poop inside) also saw some purple(hemmeroids) no blood ever in stool,when i was not having a bowl movement and i would wipe in there i noticed i had some of this yellow discharge on the toilet paper.i had two very strained bowl movements and i kept repeatedly stretching the anal area to look at and in it and after this noticed paper cut lesions on my anus and my anus was very raw.after seeing the lesions i grew very concerned and the yellow dried crust that was had been accumulating on my anal area with all the hair and friction it became irritated and very painful.i went to urgent care on may 9th she looked at my vagina irritation and anal area briefly and said she thinks i have hemmoroids and anal tears from the strained bowl movements and probably from the frequent pulling of the dried irritated skin and also mentioned maybe some sort of anal/rectal infection/issue,though dismissed it being herpes saying nothing she saw looked herpetic.anal pain got worse,i was putting petroleum jelly on to sooth. went back to the gyno may 12th and she said my vaginal area looked fine even though i thought i noticed red blotchy irritation day prior and she did another pcr swab of vagina(per my request)and looked at my anal area again and suggested i see a colon rectal doctor and if my pcr came back negative that i should consider ruling out herpes and look into what else it is i could be dealing with,but she also suggests for peace of mind me coming in at 12 weeks post possible exposure and getting a final igg blood test (which i already scheduled my appointment for on May 26th) PCR swab of vagina taken on May 12th came back negative Had my colon/rectal appointment May 18th he saw nothing that concerned him inside/out i even told him about my symptoms and showed him images of my anus and stool and he said he did not think i had herpes,did confirm hemorrhoids and said i was irritated and suggested other causes for the things i was seeing and feeling.said there was nothing to swab and to contact him when/if something concerning appeared again because everything appeared to have healed even though the day prior i was experiencing very bad internal anal pain.(really wish i would have gotten a anal swab,I’m kicking myself) Still have continued anal discomfort and vaginal burning along with muscle twitches,pain and pins and needle in lower body.also still have the dark yellow crust,feeling of proctitis and my anal area still doesn't look great.never presented with any lesions that looked like textbook herpes i don't think.Im just very confused as to whats going on and hope somebody can help in any way.   Looking for people who have HSV1 and later contracted HSV2 and wondering what their symptoms and stories are and how long it took them to test positive on IGG blood test. Getting my next IGG at 11 weeks and 3 days.and going to test again at about 16 weeks any advice or knowledge is appreciated
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maryland

Zostvax ( shingles vaccine )

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accelerate the response

nik, that's fantastic. I get my booster in about two and a half weeks time and so I will remain optimistic. The study did use the words "decreased to zero" in relation to outbreaks, and so I am hoping this means that the effect was indeed not instantaneous but developed over time. Thanks again for this great update.

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fh12

McNulty, how have you been since your posting on 11/24/12? Nik2413, glad to hear the vaccine is working for you.

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mcnulty

fh12, I've written off the vaccine. It seemed to be sort of working for about two months (reduced but still daily itching/zapping) but then I got an outbreak two weeks ago that still hasn't healed. The itches and zaps are still daily and still maddening. I have a superinfection on top of H so maybe that is causing me some problems but the fact is that this virus is still front and center.

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fh12

Sorry to hear you are still having problems. Have you tried the creatine which nik2413 has successfully used? I know it is on other threads on this site and I know somebody it works for so I am going to try it at some point also.

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jamielannister

I haven't said anything on this thread, but I received both the initial vaccine and booster about 4 and 5 months ago. I have GHSV-1. Before the vaccine, I had a constant pain in my testicles and pretty regular outbreaks every month to every 2 months. About a month after the first vaccine i had a little redness for about 2 days and that was it. The constant pain in my testicles is gone for the most part. I just got over the flu (something that usually is followed up by an outbreak) and I have not had an outbreak. I do not feel that the vaccine has cured me because I do feel the occasion pain I associate with the virus, but I feel that it has drastically slowed down my outbreaks and pain I was in. I just thought yall would like to know my experience with this so far. Let me know if you have any questions.

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lovelyoptimistic

Have not read this in a while, but does anyone know the current status for trials to further test validity?

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Harley1986
I haven't said anything on this thread, but I received both the initial vaccine and booster about 4 and 5 months ago. I have GHSV-1. Before the vaccine, I had a constant pain in my testicles and pretty regular outbreaks every month to every 2 months. About a month after the first vaccine i had a little redness for about 2 days and that was it. The constant pain in my testicles is gone for the most part. I just got over the flu (something that usually is followed up by an outbreak) and I have not had an outbreak. I do not feel that the vaccine has cured me because I do feel the occasion pain I associate with the virus, but I feel that it has drastically slowed down my outbreaks and pain I was in. I just thought yall would like to know my experience with this so far. Let me know if you have any questions.

Would you please explain how you recieved the vaccine.... how many shots, timeframes, interdermal, subcutaneous, etc. Sorry, my spellings may not be correct. Lol, but you get the idea. I emailed my doctor the information on this vaccine, and I am waiting to hear back from her. Any info would be great as I am thinking about trying this. It can't hurt as I have constant pain and outbreaks. On Valtrex now, but it just tones down the pain, and still get small outbreaks one after the other.

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accelerate the response

X6 days Valacyclovir 2x 500 mg a day then three weeks without Valacyclovir (Valtrex) then a shot of the VZV vaccine called Varivax in Europe also known as Varilrix administered as an intradermal shot. Then six weeks later another intradermal shot of the vaccine completes the course. Common experience seems to be an outbreak at about week three post the VZV shot, which may be a reaction to the build up of VZV antibody. Subsequent experience on the basis of this board is mixed - some have had a reduction in symptoms and severity and some have not. In any event, even if you have had chickenpox in the past, the VZV shot cannot harm you unless you are seriously immune compromised. In all cases, you should always follow a medical practitioners advice.

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Handsome Jimmy

I dont think this is working as I have now just had another really bad OB.

Its been 3 weeks since the booster.

The weird thing is that the OB's I get are in strange places where I never normally have them.

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Sweet7

We have been finding the same thing happening with people in Cure Research. The only explanation we can think of is that your immune cells started working better where you normally have ob's, however the virus is believed to be able to hijack the nerve signal pathways, then send virus to other nerves, and then come out of the other nerve endings. Were hoping that the immune system will then start finding those nerve endings and control them which will hopefully lead to control of the virus. Keep in mind that it is the adaptive immune system that controls HSV and it takes some time for it to adapt. Crossing fingers that this theory is right.

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newmember111

Good points Sweet7. We must remember that this study didn't say instant cures. It was over many years that they eventually reached a suppressed virus...

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helpiamconfused2
Would you please explain how you recieved the vaccine.... how many shots, timeframes, interdermal, subcutaneous, etc. Sorry, my spellings may not be correct. Lol, but you get the idea. I emailed my doctor the information on this vaccine, and I am waiting to hear back from her. Any info would be great as I am thinking about trying this. It can't hurt as I have constant pain and outbreaks. On Valtrex now, but it just tones down the pain, and still get small outbreaks one after the other.

Please share with us what your physician says...

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fh12

Accelerate the Response, So you followed the French protocol exactly with the two intradermal shots. Keeping my fingers crossed that it works for everybody who got this vaccine but especially curious to see if the intradermal made a difference.

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accelerate the response

Only had the first shot so for, next one due six weeks after the first and yes, I followed the French protocol as written. The Varivax shot was given as per the instructions that came with it. I have had one O/B since at the three week point, much like others seems to have had. Not giving up hope just yet as shot two has yet to happen and so, I assume, the antibody response has yet to reach its maximum.

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fh12

Just checking to see if anybody who received the Varivax vaccine has anything new to report. Thanks to all of you for the updates!

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accelerate the response

Sooo, a slanging match instead of any reference to the VZV vaccine and its effects. And...back to the topic:

Coming up for the six week booster shot for me. Interested to see how this turns out after x1 O/B at the three weeks after the first shot point, as have many others it seems.

My experience may be less representative as I will be going to Moscow in January for their HSV2 vaccine Vitaherpavac as well.

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accelerate the response

Completely lost the argument that went on there. Thanks for the good wishes re Vitaherpavac.

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HC-Support-Team

Ok peoples, this is a Support Forum not a place to have school yard arguments.

Please respect ALL members and obey the forum rules at all times. You can browse them here for a refresh: http://www.herpes-coldsores.com/messageforum/showthread.php?30786-Please-read-before-posting&p=169863#post169863

If this argument continues the posts will be deleted and bans may be imposed. This applies to all members who speak in an unfriendly or non-supportive tone toward other members.

Shenda

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cindys

i dont believe this could work. Antigen specific T-cells are needed to fight herpes. there are no hsv 2 antigens in this vaccine.

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accelerate the response

Yes there are alpha herpes specific virus antigens in the VZV vaccine . If you read the paper and its references you will see that. HSV2 is in the class of alpha herpes viruses.

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cindys

You do not have to be so rude. I did read the paper and it does not have hsv 1 or 2 antigens in it. Being classified in the alpha group is no where near the same as antigen specific and that is why it will not work. I suppose it shouldnt hurt to get it but i would not for myself. Are there any other vaccines?

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accelerate the response

No rudeness intended. Please read the paper and its annexes which describe polyclonal antibody stimulation and then reassess. It would be odd for a group of professional doctors to put their name to something they blatantly did not believe. Its early days for everyone who has followed this protocol and time will tell what results we all achieve. There are flaws in the French study methodology and that may be why they published it in an open access journal. Tellingly, however, the original designer of the VZV vaccine from Japan has supported their research. Receiving the VZV vaccine will not harm you and MAY help. What is there to lose? You seem very certain of your conclusion that the VZV vaccine "will not work"? Do you have a medical, scientific or research background?

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french

hi all,

a couple of months from now at least 30 people tried this vaccine,

we have not seen comments back from all those people,

can you therefore please post the results of it as when I read through this post, I see people for which it was beneficial and others for which it did not change anything.

Can you please update all of us with your situations?

Thank you very much

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Harley1986
hi all,

a couple of months from now at least 30 people tried this vaccine,

we have not seen comments back from all those people,

can you therefore please post the results of it as when I read through this post, I see people for which it was beneficial and others for which it did not change anything.

Can you please update all of us with your situations?

Thank you very much

Thanks french, I agree! We all can speculate all we want, but it comes down to doing our own experiment within the HSV community. I would be willing to try this for my own situation, but I do want to hear back from those trying right now. I did send an email to my primary physician two weeks ago asking about the VZV/Varivax for Herpes... and I am still waiting on a response. I am probably going to email her next week to see if she has found anything, or if she has forgotten to check.

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