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From the Sea

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From the Sea Honeycomb Member

From the Sea

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I am new here and am pretty devastated right now. About 6 years ago I had a lesion on my butt cheek and they said it was too dried up to get correct diagnosis and they told me I had HSV but don't know which type. Then I got my first cold sore. I read that you can get type 1 genitally and get outbreaks so I assumed that was what I had. But after years of torture thinking I had HSV2, I got a blood test and they said I was negative. I went back to my Dr. (a sliding scale fee clinic- these people don't care about your concerns when you don't think they have right diagnosis) to ask them to remove the HSV2 from my file and she told me that my body must have cleared it? Not sure what this means, BTW I have Panic Disorder which makes my stress levels through the roof. So I now have a genital outbreak and not sure If it's 1 or 2. I feel very alone and like my life is over. I am a fairly intelligent person but this is a very confusing illness. I am also severely chronically fatigued and severe joint pain that is taking over my life.

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LucyLevi Established Member

LucyLevi

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Hello from the Sea and welcome to the site. I hope you will be able to get the support you need here. Firstly your doctor is wrong regarding HSV clearing itself over time as that just doesn't happen. I think maybe they are confusing it with HPV which (in 90% of cases) does rid itself in up to and around two years.

So if you have had a cold sore it does sound as though you have perhaps got HSV1 oral? If of course you are certain that what you are experiencing are in fact cold sores. Is it possible that you contracted oral and genital HSV1 at the same time?

Testing on blood tests (IGG) can miss HSV1 so this could be a possibility. Or maybe the lesions were/are actually not herpes at all?

The condundrum for you now is to clarify this, but I do agree that you should have HSV2 taken off record (especially as it wasn't even proven at the time)

Could you get to a clinic while you have the outbreak and get a swab? This  maybe the way to clear up your concerns once and for all?

Whatever the outcome please feel free to ask questions here and use chat as we are here to help

Take care

Lucy 

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From the Sea Honeycomb Member

From the Sea

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Right, I tested negative for HPV, and have recently got health insurance so I may get testing done. But I have not gone for my first appt. yet. are free clinics just as accurate?  Thank you for your quick response.

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Lisajd Platinum Support Member

Lisajd

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12 hours ago, From the Sea said:

Right, I tested negative for HPV, and have recently got health insurance so I may get testing done. But I have not gone for my first appt. yet. are free clinics just as accurate?  Thank you for your quick response.

The free clinics will send a swab off to a lab so they should be accurate.  But definitely get that swabbed

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