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mills54

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mills54 Honeycomb Member

mills54

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I've been lurking here for quite some time, reading and reading. I am a ghsv sufferer for more than 37 years, married for 36 years until 19 months ago when my husband passed away. I have been silently dealing with this awful disease, took antivirals early on, then my dr decided they didn't know enough about antivirals back then so he took me off of them. I've been reticent to reveal my ghsv to any new dr unless absolutely necessary. My most recent gynocologist (she had me on antivirals for a year) retired in 2014 and I have not consulted a new dr since then. 

Anyway, glad to have a place to talk...

Mills

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Hansje Acknowledged Support Member

Hansje

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Welcome Mills! I'm very sorry your husband passed away. They say the second year is even more difficult than the first. Do you have friends or family that can support you emotionally?

I hope you will find a new doctor. Maybe now doctors know a bit more about HSV and medication.

It must have been very lonely not sharing for so long. Good you came here!

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mills54 Honeycomb Member

mills54

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Thank you. I go to Griefshare, have a close walk with the Lord, have a good church and many great friends and family supporting me through the loss of my husband. My grown kids are close by as well. My mom has been widowed from her husband for over 25 years and even though she lives in another state,she has been a tremendous support. Yes, the second year is harder in that the shock of the hospitals, treatments, etc are over, but now the loss of the person sets in. Everything we did together, even drinking coffee, is so different.

the hardest thing for me has been that no one knows about the ghsv and how nonstop it has become in recent months (I'm sure due to all the stress of my husband's illness and death) I was able to get a prescription for antivirals through an online place but that was a one time thing and now I am searching for a compassionate doctor. The other issue has been the severe diminishing of my income due to losing my husband. He was the breadwinner and now I'm on SS...also I lost the insurance coverage once he passed away as well. So cost factors greatly in my searching.

Anyway, I don't want to sound like a sob story, there are plenty of others facing much worse than I!

I appreciate the welcome. :)

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