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Young people diagnosed with HSV support group?


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I recently was diagnosed with HSV2 just before my 18th birthday, happy birthday to me right? The emotional toll the diagnosis has taken on me has been severe and I feel so alone. I've searched high and low for a support group consisting of people who share similar relatable experiences, but most of the time there's a huge age difference. I'm making this thread seeking people age 16-24 to befriend and find companionship within. I know dealing with this diagnosis can be tough, but it's much more comforting when you have people who support and care for you. 

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Hey brownsugg, welcome to Honeycomb! I was diagnosed with ghsv2 at 19 and am 23 now. It was very upsetting at first, though over time I got over it. What helped me a bunch in not feeling alone was visiting the chat room here (also, we are getting a new one soon!); it was nice being able to joke around or talk about "normal" things/life and also talk about herpes questions/concerns etc. 

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3 hours ago, howardsmith8888 said:

@brownsugg You're not alone my friend.  Roughly 1 in 5 people have GHSV2.

That "stat"(whether it's accurate or not) could almost make one feel more alone. That is, if such an astronomical number of people have it, than why is virtually no one talking about it? Yes, there is Ella Dawson, Ariel Dale and maybe a couple of others, but that's it really. I get that not everyone is bold, but you would thought there'd have been a lot more noise when Ella did what she did, or at least a hand raised at her Ted talk.

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howardsmith8888

@K_Sock Thank you for your response, although I disagree with your interpretation.  Most individuals, up to 85%, are unaware of the virus because their symptoms are so mild or they never had any symptoms to begin with as their bodies can easily control it.  If we were to include the statistics of HSV1, then we would see more than the majority of the population having a herpes diagnosis.  What many individuals on here are concerned with is transmission, but when the majority of the population has herpes, I do not believe the statistics would make one feel more alone as you put it.

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@brownsugg being young must feel like its going to be harder but as the other person who has wasted most of their life with an eating disorder and being miserable all I can say to you is focus on going to school and getting a job or traveling and just enjoy being Young.  You have plenty of time for relationships.  Where do you contract' at younger old it still is hard regardless because people do get rejected for it but in the main most people are accepting of it so don't feel that you are alone.   

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3 hours ago, howardsmith8888 said:

@K_Sock Thank you for your response, although I disagree with your interpretation.  Most individuals, up to 85%, are unaware of the virus because their symptoms are so mild or they never had any symptoms to begin with as their bodies can easily control it.  If we were to include the statistics of HSV1, then we would see more than the majority of the population having a herpes diagnosis.  What many individuals on here are concerned with is transmission, but when the majority of the population has herpes, I do not believe the statistics would make one feel more alone as you put it.

Why are people concerned with transmission if, unless they're dating a nun, their partner is statistically likely to have HSV anyway? (That is, any partner who has kissed more than 10 girls would certainly  have to have HSV). Further, why would they care about transmission when the vast odds are that their partner would never have 'noticeable' symptoms? I understand what the generic responses will be to both questions - 'not everyone has it' and 'they might get symptoms'.

As far as transmission, if you believe the stats then you have to believe that HSV is highly highly contagious. It would have to be in order to infect such a great percentage of the population.

 

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@K_Sock yes it is highly contagious when people have outbreaks or are shedding and the reason why it is transmitted so easily is because most people are not aware that a cold sore is more than just a cold sore.  Most of the new genital HSV cases are hsv1 because people don't understand that giving oral sex when someone has a cold sore can transmit to the genitals.  Half the reason  people have herpes is lack of Education and lack of testing.  

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@Lisajd Definitely get that...but education does continue to improve. Sex-ed is something all are taught in Canada. I was taught it in school and remember the teacher explaining oral herpes and genital herpes. That teacher also said that 80% of us in the class likely had HSV-1 already given most get it as kids. In trusting this information I kind of dismissed being too worried about HSV as it was both too prevalent and too much of a non-issue (rarely symptoms) to be worth the bother. In this way education partly failed me.

Now, I obviously did end up getting oral HSV-1, but it was at age 24 from well over the 25th girl I ever kissed (none of these girls were nuns and so many should have had HSV if the stats are true). That girl I got it from is a case of bad education as she did get cold sores as a kid but never knew that they were the product of HSV. Also of note, not every lip sore is a cold sore, I promise you that. People should get tested..but maybe not as the reliability of testing is horse shit. Haha 

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howardsmith8888
5 hours ago, K_Sock said:

Why are people concerned with transmission if, unless they're dating a nun, their partner is statistically likely to have HSV anyway? (That is, any partner who has kissed more than 10 girls would certainly  have to have HSV). Further, why would they care about transmission when the vast odds are that their partner would never have 'noticeable' symptoms? I understand what the generic responses will be to both questions - 'not everyone has it' and 'they might get symptoms'.

As far as transmission, if you believe the stats then you have to believe that HSV is highly highly contagious. It would have to be in order to infect such a great percentage of the population.

 

@K_Sock It's OK for us not to agree on this matter and I am very thankful for this discussion board and the dialogue it brings.  And yes, their partner is statistically likely to have HSV in your example.  However, I'm sure you can understand that due to the undeserved stigma of the virus that the giver would have a certain sense of guilt for transmitting it.  And also yes, to back up what @Lisajd had said...it can be highly contagious.

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I know exactly how you feel. There are some groups on Facebook for younger people but I don't find them very helpful. I think you have to be invited to them by someone who has access which is easy on here

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Hey brownsugg, I contracted HSV in January. I'm 23, what's helped me most is the chatroom! The people that you speak to there are really helpful and comforting!

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  • 2 weeks later...

I was diagnosed just a few months prior at only 19. And I totally agree with everything you said. But the feelings of loneliness is what really gets me. 

But feel free to PM me I would love to talk

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  • 4 weeks later...

I just turned 17 towards the end of May. I noticed bumps which began to grow itchy and painful quick. I went to my local express/Urgent care and they diagnosed me with Fulliculitus just by looking at it, they didn't swab or test anything. By that time the pain had gotten unbearably worse so I made an appointment with my general doctor and she decided to swab and test. This last Friday I received a call and I was diagnosed with HSV2. I had experienced no symptoms until beginning of June, and I've been with my boyfriend for 4 months. I told him and he reacted in a better way then I thought, reassuring that it wouldn't change his views on me and he would support me and go get tested himself. I'm relieved he's supportive but at the same time I'm also scared and I feel alone. My mom and I have talked a lot about this but everytime I try and talk about it I seem to breakdown and cry. I feel like my life is going to change drastically and never be the same again. However, this group has certainly helped me with coping, and educating. You can PM me if you ever want to talk. I'm still trying to figure out how to use this chat room thing :) 

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medicalanonymo

I am 17 years younger than your great grandpa. You can tell me anything and I won't take it seriously

In the long run you will be fine. Go adventure

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