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CDC comments on Genital Herpes/Sexual Behavior

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SupermansJustice

I would like feedback from this forum.  

https://www.cdc.gov/std/herpes/screening.htm

Please take a look at comments from the CDC regarding herpes screening and transmission

Genital herpes is a common sexually transmitted disease (STD). It is caused by herpes simplex virus type 1 (HSV-1) or herpes simplex virus type 2 (HSV-2). Most people who have HSV-1 or HSV-2 don’t have symptoms.

There are a lot of questions about herpes tests, and this page will help you understand CDC’s herpes testing recommendations.

Genital herpes is common. Why doesn’t CDC recommend testing everyone for this STD?

CDC does not recommend herpes testing for people without symptoms. This is because diagnosing genital herpes in someone without symptoms has not shown any change in their sexual behavior (e.g., wearing a condom or not having sex) nor has it stopped the virus from spreading. Also, false positive test results (test results that say you have herpes when you do not actually have the virus) are possible. Even if you do not have symptoms, you should talk openly and honestly about your sexual history with your doctor to find out if you should be tested for any STDs, including herpes.

Although CDC does not recommend that everyone get tested for herpes, herpes testing may be useful in some situations. Herpes blood tests (also called type-specific HSV serologic tests) might be useful

  • If you have genital symptoms that could be related to herpes,
  • If you have (or have had) a sex partner with genital herpes, or
  • If you want a complete STD exam, especially if you have multiple sex partners.

Please note that while a herpes blood test can help determine if you have herpes infection, it will not be able to tell you who gave you the infection.

Wouldn’t testing everyone stop the spread of genital herpes?

We don’t know. There is no evidence that diagnosing genital herpes with a blood test in someone without symptoms would change their sexual behavior and stop the virus from spreading. In addition, without knowing the benefits of testing, the risk of shaming and stigmatizing people outweighs the potential benefits. For these reasons, testing everyone for herpes is not recommended at this time.

Are people with genital herpes at increased risk of getting infected with HIV?

Yes, studies show that HSV-2 infection increases the risk of getting HIV infection, even when there are no symptoms of genital herpes. HSV-2 infection can cause tiny breaks in the genital and anal area that allow HIV to enter into the body. Herpes infection also attracts the type of cells that HIV infects (“target cells”) to the genital area. This increases the chance of getting HIV, if exposed.

Can testing and treating genital herpes decrease the risk for HIV infection?

No. Studies show that testing for genital herpes and treating with herpes medications does not lower the risk of getting HIV.

Why have false positive tests been used as an argument against routine testing for genital herpes, but not for other STDs, which can also have false positives?

False positive test results are test results that say a person has a disease or condition when they do not actually have it. False positive results can occur with many diagnostic tests, including STD tests. The chances of false positive results increase as the likelihood of the infection decreases in the person being tested. False positive HSV-2 results can happen, especially in people who are at low risk for a herpes infection. Also, we do not know if people who test positive for herpes will change their sexual behavior as a result of a positive test. This tells us that the harm of a possible false positive test may be a greater concern than the benefits of an actual diagnosis. Unlike curable STDs, such as chlamydia, herpes infections are life-long, so it is especially important to avoid a false positive test.

 

 

How does it make all of you feel that the CDC says it wouldn't change sexual behavior for people to know they have the disease? How about the fact that the CDC acknowledges how bad the stigma is so they think it is BETTER not to routinely test people? Has having herpes changed YOUR sexual behavior? Have some of you decided NOT to have sex?  This is what we are dealing with, and the more we sit on HC and don't band together to fight for change, the worse off we will be.  I am shocked at reading this.  

We are letting the CDC speak for OUR experiences and I find them to be wholly inaccurate.  There would not be 60,000 people on this forum if having herpes did NOT change the way people viewed sexual behavior! 

If this makes you angry...frustrated...post about your thoughts.  

@OhFuckMyDickHurts

@GlitterDx

@Rational Vaxxer

@dont quit!17

@elnino

@Sean123

@crisper

@LiveLife100

@Whyyyyy

@SnowAngel

@West end gal

@Lauren401

You may say...so why does this all matter?  Well the CDC is short for Centers for Disease Control and Prevention.  How do you CONTROL and PREVENT spread when you won't even test people? The stigma is SO bad you won't test people?!

We will be posting a very lengthy letter addressing these comments and to the entire twitter community.  We cannot stand for this.  We are DONE letting the CDC and other institutions speak for how WE FEEL.  We are done letting them spread misinformation.  

 

Justice is coming.  Will you fight with us?

If this gets you amped up..join many of us on twitter.com

https://twitter.com/Thehopeisnear

https://twitter.com/LED401

Edited by SupermansJustice

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Owningit

Wow well this is the most ridiculous crap I've ever read. Don't get tested because people disregard it anyways? So just ignore it all together, right? Thinking like this is probably why it's not in routine std blood work. Such a shame

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Imaginaryexit
33 minutes ago, SupermansJustice said:

I would like feedback from this forum.  

https://www.cdc.gov/std/herpes/screening.htm

Please take a look at comments from the CDC regarding herpes screening and transmission

Genital herpes is a common sexually transmitted disease (STD). It is caused by herpes simplex virus type 1 (HSV-1) or herpes simplex virus type 2 (HSV-2). Most people who have HSV-1 or HSV-2 don’t have symptoms.

There are a lot of questions about herpes tests, and this page will help you understand CDC’s herpes testing recommendations.

Genital herpes is common. Why doesn’t CDC recommend testing everyone for this STD?

CDC does not recommend herpes testing for people without symptoms. This is because diagnosing genital herpes in someone without symptoms has not shown any change in their sexual behavior (e.g., wearing a condom or not having sex) nor has it stopped the virus from spreading. Also, false positive test results (test results that say you have herpes when you do not actually have the virus) are possible. Even if you do not have symptoms, you should talk openly and honestly about your sexual history with your doctor to find out if you should be tested for any STDs, including herpes.

Although CDC does not recommend that everyone get tested for herpes, herpes testing may be useful in some situations. Herpes blood tests (also called type-specific HSV serologic tests) might be useful

  • If you have genital symptoms that could be related to herpes,
  • If you have (or have had) a sex partner with genital herpes, or
  • If you want a complete STD exam, especially if you have multiple sex partners.

Please note that while a herpes blood test can help determine if you have herpes infection, it will not be able to tell you who gave you the infection.

Wouldn’t testing everyone stop the spread of genital herpes?

We don’t know. There is no evidence that diagnosing genital herpes with a blood test in someone without symptoms would change their sexual behavior and stop the virus from spreading. In addition, without knowing the benefits of testing, the risk of shaming and stigmatizing people outweighs the potential benefits. For these reasons, testing everyone for herpes is not recommended at this time.

Are people with genital herpes at increased risk of getting infected with HIV?

Yes, studies show that HSV-2 infection increases the risk of getting HIV infection, even when there are no symptoms of genital herpes. HSV-2 infection can cause tiny breaks in the genital and anal area that allow HIV to enter into the body. Herpes infection also attracts the type of cells that HIV infects (“target cells”) to the genital area. This increases the chance of getting HIV, if exposed.

Can testing and treating genital herpes decrease the risk for HIV infection?

No. Studies show that testing for genital herpes and treating with herpes medications does not lower the risk of getting HIV.

Why have false positive tests been used as an argument against routine testing for genital herpes, but not for other STDs, which can also have false positives?

False positive test results are test results that say a person has a disease or condition when they do not actually have it. False positive results can occur with many diagnostic tests, including STD tests. The chances of false positive results increase as the likelihood of the infection decreases in the person being tested. False positive HSV-2 results can happen, especially in people who are at low risk for a herpes infection. Also, we do not know if people who test positive for herpes will change their sexual behavior as a result of a positive test. This tells us that the harm of a possible false positive test may be a greater concern than the benefits of an actual diagnosis. Unlike curable STDs, such as chlamydia, herpes infections are life-long, so it is especially important to avoid a false positive test.

 

 

How does it make all of you feel that the CDC says it wouldn't change sexual behavior for people to know they have the disease? How about the fact that the CDC acknowledges how bad the stigma is so they think it is BETTER not to routinely test people? Has having herpes changed YOUR sexual behavior? Have some of you decided NOT to have sex?  This is what we are dealing with, and the more we sit on HC and don't band together to fight for change, the worse off we will be.  I am shocked at reading this.  

We are letting the CDC speak for OUR experiences and I find them to be wholly inaccurate.  There would not be 60,000 people on this forum if having herpes did NOT change the way people viewed sexual behavior! 

If this makes you angry...frustrated...post about your thoughts.  

@OhFuckMyDickHurts

@GlitterDx

@Rational Vaxxer

@dont quit!17

@elnino

@Sean123

@crisper

@LiveLife100

@Whyyyyy

@SnowAngel

@West end gal

@Lauren401

We will be posting a very lengthy letter addressing these comments and to the entire twitter community.  We cannot stand for this.  We are DONE letting the CDC and other institutions speak for how WE FEEL.  We are done letting them spread misinformation.  

Justice is coming.  Will you fight with us?

If this gets you amped up..join many of us on twitter.com

https://twitter.com/Thehopeisnear

https://twitter.com/LED401

I agree with you.  I am newer to all this but have come across all this in my vigerous research of what the hell is happening to me. 

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Owningit
1 minute ago, SupermansJustice said:

It's totally ridiculous.  So the end result is a bunch of people walking around with the disease...giving it to other people who then have an outbreak and then finally get tested (and then of course have to deal with the substandard treatments and the massive stigma).  Thanks CDC! You've really done a great job as the Centers for Disease Control and Prevention.  How ironic!

I'm in honest disbelief that this is actually a statement they made. That is exactly how majority of people get infected! From ignorant people, and I mean that in the most polite way possible. I mean it's how I was infected, I imagine you similar.  When there is no awareness to topics like this what do you expect is going to happen? People aren't going to go out just to seek if they do or don't have herpes unless they really care about their own health or the health of others. Imagine if std checks were mandatory. How different everything would be. Apparently we're far as hell from that by the looks of what the brilliant CDC has to say. Who funds these losers anyways. They need to crawl under a rock

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Owningit
2 minutes ago, SupermansJustice said:

I can't imagine the rest of the world knows about this.  I was just talking to someone on twitter today and they were 100% sure that herpes is a part of routine STD panels.  People are misinformed (it's not their fault either).  Look at what the CDC says!

Nope not at all! Definitely don't get checked for it when you go to get tested unless you ask for it. I always expressed to my Gynocologist that I wanted to be tested for everything so she would but otherwise you're beat. It's very disheartening the amount of information that is just swept under the rug. It's kind of like how parents raise kids nowadays. They never get told how to do anything unless they ask. It shouldn't be like that. STDs will never dim down at this rate

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Lisajd

Mostly this is relevant to pple who have no symptoms.  Im sure that people with symptoms dx by swab would change their sexual behaviour.  There is logic because of the potential for false positives but their bs about not changing sexual behaviour is very wrong. 

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WilsoInAus

The worlds annual per capita income is $3,000. 

A herpes IgG test costs $30-40! ABVIC is more.

Can we afford to have a test each time we have sex?

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Atrapasueños

Con los asintomáticos no pasa nada pero si eres sintomático tienes que revelar a tu socio que mierda

 

With the asymptomatic nothing happens but if you are symptomatic you have to reveal to your partner that shit

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WilsoInAus

I understand 'routine'; it provides no information for people you come into contact with in a non sexual way, so it doesn't help much for those people if you don't test each time you have sex. Oh and you have to wait 12-16 weeks between each time you have sex.

Further, it would be disengenous not to also include testing for HPV, HHV6, HHV8, CMV, EBV for example. I think these need to be added to your letter. These cause more suffering than herpes.

Edited by WilsoInAus

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WilsoInAus
21 minutes ago, SupermansJustice said:

I think you need to re-read your post and read a lot more about these other viruses, what routine testing is, and how viruses are treated and transmitted.  

I have, that is why I have raised the points. If you do not address them, how do you expect the CDC to take you seriously?

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WilsoInAus

I don't, why wouldn't they ask the questions though, they're all viruses and all sexually and non sexually transmitted and they generally cause more serious issues than herpes does. 

CDC will respond with 'why wouldn't we test for these viruses in order of seriousness? What will people do with the information? How much should people pay for a panel? If people can only afford $x, which tests should be performed in what order?''

These are the real issues the CDC needs to address, this isn't fantasy land.

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wildman

The CDC's logic is internally inconsistent.  Testing for HIV is part of standard screening, and it has been for a long time, even before there was any treatment that helped people much. Like HSV, it is incurable and stigmatized. HPV (pap test) is part of recommended screening for women, despite not having a "cure" or treatment that reduces the risk of spreading disease. 

The logic the CDC should be using is that HSV testing is too expensive to be worthwhile, becasue the health benefit of testing would not be enough to offset the cost. The problem is that they aren't saying that, because it likely isn't true.

The truth is that bureaucracy is hard to change - They haven't been testing for it, and 15-20% of the population would suddenly freak out if they did start testing everyone . . . really 60-80% of the population, becasue people with HSV1 wouldn't be able to tell WHERE they had it for sure if they didn't remember getting cold sores . . . . and they don't want to make people freak out . . . until they have something to offer people as a vaccine or a cure . . . absent a cure or vaccine, they would like to have everyone ignore it, even if it spreads disease . . .

It's just bad CDC policy, but it's been that way since back when the tests were unreliable, and they have just kept it that way, even though tests are reliable now - it's simply bureaucratic nonsense . . .

Same thing when people say condoms are only 50% effective at reducing transmission - that's a false, outdated statistic . . . but who is in charge of updating it? Probably someone who doesn't want to admit that they were wrong . . . so they just keep saying the same thing, even though they know it is wrong . . . (all the best studies (by Anna Wald et al) show condoms are 95% effective at preventing male-to-female transmission, and at least over 60% female-to-male).

People play politics . . . Especially when it comes to "policy" or guidelines . . .

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Imaginaryexit
8 hours ago, WilsoInAus said:

I understand 'routine'; it provides no information for people you come into contact with in a non sexual way, so it doesn't help much for those people if you don't test each time you have sex. Oh and you have to wait 12-16 weeks between each time you have sex.

Further, it would be disengenous not to also include testing for HPV, HHV6, HHV8, CMV, EBV for example. I think these need to be added to your letter. These cause more suffering than herpes.

I agree with you 100%.  All these viruses are so common they downplay them all.  They put very little effort in curing them all.  I think the herpe class of viruses are the results to most of our health problems in society.  

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Lauren401
8 hours ago, WilsoInAus said:

I understand 'routine'; it provides no information for people you come into contact with in a non sexual way, so it doesn't help much for those people if you don't test each time you have sex. Oh and you have to wait 12-16 weeks between each time you have sex.

Further, it would be disengenous not to also include testing for HPV, HHV6, HHV8, CMV, EBV for example. I think these need to be added to your letter. These cause more suffering than herpes.

@WilsoInAus I'm always tested for HPV when I have a pap test - if the cells of the cervix come back abnormal then there is a follow up. There is not testing available for men at this point in time. HPV has many strains and your body can catch them and get rid of them, it's not hiding in your body the way HSV does. I've heard from many many women who have HPV and then they test later on and it's gone - your body can fight it off. High risk strains are a difference story which is why cells are checked in the cervix. A vaccine is also available for it - while it doesn't catch all the strains, it does help catch some high risk ones. Just an FYI. 

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WilsoInAus
7 hours ago, Lauren401 said:

@WilsoInAus I'm always tested for HPV when I have a pap test - if the cells of the cervix come back abnormal then there is a follow up. There is not testing available for men at this point in time. HPV has many strains and your body can catch them and get rid of them, it's not hiding in your body the way HSV does. I've heard from many many women who have HPV and then they test later on and it's gone - your body can fight it off. High risk strains are a difference story which is why cells are checked in the cervix. A vaccine is also available for it - while it doesn't catch all the strains, it does help catch some high risk ones. Just an FYI. 

Yes I know, well said. However this is not the experience for all women some of which will end up with cervical cancer, very serious business. 

Thats unfortunately the economic rationality. Is it better to invest in testing for HPV in men and better vaccines? Or invest in herpes testing? 

I'm not sure of the answer, many aren't. What it thus means is that persuasive arguments  are required and have a chance of success.

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WilsoInAus
48 minutes ago, SupermansJustice said:

There are extremely effective HPV vaccines.  The issue is that there is poor education regarding making sure individuals are vaccinated at an early age.  Cervical cancer has been halved by the HPV vaccine.  

Halved? Well that's a relief.

But only 40% of girls in the US are vaccinated. The accentuates my point. Why wouldn't the CDC throw its weight behind getting that number to 100% before worrying about herpes?

More than 40% of Americans cannot afford to see a doctor. Of the 60% that do, only 1/3 can afford routine STD testing. So at present, only 20% of the population can afford routine STD testing. This has to be addressed.

For 100% of the population to receive STD testing, lab resources would need to increase at least 3-5 times, how will this happen?

Given the expense, would it not be better to promote a vaccine and integrate it with HPV vaccinations?

Edited by WilsoInAus

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Dorito3

This is disappointing... I think it would greatly bring about awareness and reduce stigma if they did do some annual screening of some sort. I want to petition this!! 

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Lauren401
13 hours ago, WilsoInAus said:

Why wouldn't the CDC throw its weight behind getting that number to 100% before worrying about herpes?

Why can't it worry about both? It doesn't have to be one or the other. We aren't saying that HSV is the only virus they should be focusing on - they just should have some focus on it because they clearly don't at the moment. They've basically just told us to sit back and shut up because if they were to routine test it would hurt peoples feelings. What about our feelings?! The ones who know! Why should my feelings be less of a care over a person who just doesn't know because they haven't shown symptoms... yet. @WilsoInAus
 

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Lauren401

Another point I would like to make - 

 

The average person has approximately 6-7 partners in their lifetime. The CDC doesn't want to test because it would cause psychological harm to the person with the positive diagnosis. The CDC is causing MORE psychological harm by not testing as that one person now has the potential to infect 5-6 other people!

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Micah

CDC basically decided people won't take precautions so why tell them. Great. That's cool, thanks cdc, doing a killer job.

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Mel1985reese
On 6/5/2017 at 8:19 PM, SupermansJustice said:

I would like feedback from this forum.  

https://www.cdc.gov/std/herpes/screening.htm

Please take a look at comments from the CDC regarding herpes screening and transmission

Genital herpes is a common sexually transmitted disease (STD). It is caused by herpes simplex virus type 1 (HSV-1) or herpes simplex virus type 2 (HSV-2). Most people who have HSV-1 or HSV-2 don’t have symptoms.

There are a lot of questions about herpes tests, and this page will help you understand CDC’s herpes testing recommendations.

Genital herpes is common. Why doesn’t CDC recommend testing everyone for this STD?

CDC does not recommend herpes testing for people without symptoms. This is because diagnosing genital herpes in someone without symptoms has not shown any change in their sexual behavior (e.g., wearing a condom or not having sex) nor has it stopped the virus from spreading. Also, false positive test results (test results that say you have herpes when you do not actually have the virus) are possible. Even if you do not have symptoms, you should talk openly and honestly about your sexual history with your doctor to find out if you should be tested for any STDs, including herpes.

Although CDC does not recommend that everyone get tested for herpes, herpes testing may be useful in some situations. Herpes blood tests (also called type-specific HSV serologic tests) might be useful

  • If you have genital symptoms that could be related to herpes,
  • If you have (or have had) a sex partner with genital herpes, or
  • If you want a complete STD exam, especially if you have multiple sex partners.

Please note that while a herpes blood test can help determine if you have herpes infection, it will not be able to tell you who gave you the infection.

Wouldn’t testing everyone stop the spread of genital herpes?

We don’t know. There is no evidence that diagnosing genital herpes with a blood test in someone without symptoms would change their sexual behavior and stop the virus from spreading. In addition, without knowing the benefits of testing, the risk of shaming and stigmatizing people outweighs the potential benefits. For these reasons, testing everyone for herpes is not recommended at this time.

Are people with genital herpes at increased risk of getting infected with HIV?

Yes, studies show that HSV-2 infection increases the risk of getting HIV infection, even when there are no symptoms of genital herpes. HSV-2 infection can cause tiny breaks in the genital and anal area that allow HIV to enter into the body. Herpes infection also attracts the type of cells that HIV infects (“target cells”) to the genital area. This increases the chance of getting HIV, if exposed.

Can testing and treating genital herpes decrease the risk for HIV infection?

No. Studies show that testing for genital herpes and treating with herpes medications does not lower the risk of getting HIV.

Why have false positive tests been used as an argument against routine testing for genital herpes, but not for other STDs, which can also have false positives?

False positive test results are test results that say a person has a disease or condition when they do not actually have it. False positive results can occur with many diagnostic tests, including STD tests. The chances of false positive results increase as the likelihood of the infection decreases in the person being tested. False positive HSV-2 results can happen, especially in people who are at low risk for a herpes infection. Also, we do not know if people who test positive for herpes will change their sexual behavior as a result of a positive test. This tells us that the harm of a possible false positive test may be a greater concern than the benefits of an actual diagnosis. Unlike curable STDs, such as chlamydia, herpes infections are life-long, so it is especially important to avoid a false positive test.

 

 

How does it make all of you feel that the CDC says it wouldn't change sexual behavior for people to know they have the disease? How about the fact that the CDC acknowledges how bad the stigma is so they think it is BETTER not to routinely test people? Has having herpes changed YOUR sexual behavior? Have some of you decided NOT to have sex?  This is what we are dealing with, and the more we sit on HC and don't band together to fight for change, the worse off we will be.  I am shocked at reading this.  

We are letting the CDC speak for OUR experiences and I find them to be wholly inaccurate.  There would not be 60,000 people on this forum if having herpes did NOT change the way people viewed sexual behavior! 

If this makes you angry...frustrated...post about your thoughts.  

@OhFuckMyDickHurts

@GlitterDx

@Rational Vaxxer

@dont quit!17

@elnino

@Sean123

@crisper

@LiveLife100

@Whyyyyy

@SnowAngel

@West end gal

@Lauren401

You may say...so why does this all matter?  Well the CDC is short for Centers for Disease Control and Prevention.  How do you CONTROL and PREVENT spread when you won't even test people? The stigma is SO bad you won't test people?!

We will be posting a very lengthy letter addressing these comments and to the entire twitter community.  We cannot stand for this.  We are DONE letting the CDC and other institutions speak for how WE FEEL.  We are done letting them spread misinformation.  

 

Justice is coming.  Will you fight with us?

If this gets you amped up..join many of us on twitter.com

https://twitter.com/Thehopeisnear

https://twitter.com/LED401

I've read multiple times on this site and I know people personally who have ghsv2 who do not disclose, who still have new sex partners, unprotected sex and risk exposing others bc they think you can pass it only if you have an OB

 

People obviously don't care

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Nightmare7575

I was told the same thing by my Doc who works in a clinic where I know they see STD's all the time ,so this is just not the CDC ,I decided to go have the test myself since I am asymptomatic .There are more then 63,000 people who visited this site so who really knows how many more are out there and have no clue.  If you have no symptoms and the Doc says don't get tested how many really want to take the chance of finding out they are positive  and just go on with their lives.

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      Nurse: All your tests came back negative????? What's the problem??
      Me: There is clearly something wrong and I am SCREAMING FOR HELP and you, someone who works at the hospital, are going to stand there behind that desk and tell me you can't help me? You're turning me away when I beg for help?
      Nurse: The results are negative...
      I just storm out at this point and I'm hysterically crying and screaming at the top of my lungs because I'm in full panic and manic mode. I don't know where to turn. I go home for my dad's help and he takes my car away because I'm so upset (we have been on somewhat of a break bc of this whole fiasco and I've been staying with my friend) that I start frantically calling my friend and looking up bus schedules (she lives 20 miles away and such). She tells me to lay low and I'm ready to kill someone, if not myself because of how frantic I am. My dad doesn't understand this and it's absolutely aggravating because I originally went to him to vent and what I got was a lecture and a threat to kick me out of the house. After I left the hospital, I made the even bigger mistake of asking for a hug because he made me come inside and listen to him lecture for a f/ing hour, and then I was stranded and no buses were going at that point (it was like 8pm and hours are shorter on weekends).
       
      Next day I drive out to my friend's and the whole day I'm suffering and trying to work horses (I'm a 3 day event rider and my friend is a horse trainer, I'm her groom/assistant) and move items from farm to farm without passing out or upsetting the sock in my crotch.
       
      Next morning, yesterday (MONDAY 2/25/19) I call my actual doctor's office and demand that I see her today. They fit me in a 2pm spot. I take a shower and 10 minutes later I get a text and call from the reception saying doctor is out because she has the god da mn F L U. At this point I'm ready to give up. I have to put socks on my vagina so that the lesions don't touch each other and leak, I cry when I use the bathroom and I'm still scared to use the bathroom because of the infinite pain.
       
      I have no clue why I didn't do this in the first place, but my friend lives by a Planned Parenthood and so I marched my as s over there and I asked to be physically looked at and such. They fit me in.
       
      Nurse (one that checks you in, not the real doctor) asked me what symptoms were and what I've been taking, if anything. There's a medication that's made for humans but given to horses called SMZ. It's a STRONG antibiotic and my friend has Hashimoto's so her and her mom (her mother is my horse's farrier lol) told me at the very least take SMZ 3 times a day. I figure why the h ell not because it's not like anything will get worse. It just stopped the heavy slippery discharge, nothing else. So she admits me to the scary room with the freaky foot pedals, and I've never even seen a f uc king gyno? I don't know what to do but start hysterically crying. Doctor comes in ten minutes later and she tells me that she has to take a culture swab. The fact that I had just pis sed and disposed of my sock, opening all my lesions, I can barely even wipe my own as s. I'm sitting there crying hysterically telling her not to judge me because I made a stupid decision to have unprotected sex with a sh itty guy. She tells me she's gonna touch me with the testing swabs and the moment she touches me I'm crying and screaming at the top of my lungs PLEASE STOP PLEASE PLEASE STOP STOP STOP IT HURTS.
       
      I don't know why she thought this was a smart idea to tell me this but she straight up told me AND I QUOTE!!!!!
      "This is the worst and most severe case of herpes I have ever seen. I've been doing this for 36 years."
       
      Well that's awesome, I'm another statistic. I can't believe me it took 1 second to tell me I had herpes when I had been driving myself clinically insane for the since the last Thursday (this lasted Thursday to Monday). She gave me my medications and gave me a name of some supplements, and told me about socks being a good idea and whatever, pour water on myself when I pee so that it washes everything away, blah blah. Gives me my papers and I go back to my friend to confirm I have this fu cked up incurable disease. All the stress prior was gone. Done with my tears.
       
      I'm almost done with my first day of taking the meds. They feel a bit better. Unfortunately I'm on a time limit because I can't physically ride in this major horse show if I can't even sit on a still object. Hoping this at least stops feeling so painful by Thursday for my dressage test on Friday.
       
      thanks for listening the doctor at PP suggested I find one so I don't feel so alone
    • Taintedgirl
      By Taintedgirl
      https://nypost.com/2018/05/26/my-instagram-model-ex-gave-me-herpes-suit/
      Story is from the NY Post. She convinced him that the sores were due to masturbation and she insisted on unprotected sex. I feel bad for him she seemed deliberate in her attempts to have sex with him knowing she had herpes and hpv. He now has warts as well. The stigma never ends because of stories like this and those who actually disclose suffer for it. 
    • gypsygoddess
      By gypsygoddess
      HSV. Everyone's favorite topic! If you read my other piece, you know about my struggle with Viral Meningitis. But now I get to share with you (because it was just shared with me) how I got it. As if I wasn’t already depressed, hurt, and confused, here comes the nurse from the hospital calling to tell me that one of the possible causes of Viral Meningitis is the Herpes Simplex Virus and they tested me for it when I was there. Surprise! I have the Herpes Simplex Virus type 2, or as I like to put it, Genital Herpes. I cried almost as loud as I did the day I got the severe headache from the Meningitis. I immediately thought, I am 21 years old and my life is over. I thought about all the cons, no more dating, the difficulties having children without infecting them, dating rejection, my friends judging me, having to worry about infecting people around me, every possible negative thought came rushing at me all at once. I can not believe this is happening to me.
       
      I had to mourn the death of the person I once was for a few days of course, but after coming to, I realized that although it is not curable, this is not a death sentence. I thought let me learn a little more about this before I just shut out the world and everyone in it. I found that 1 out of 6 people have HSV. So if you know more than 6 people, one of them most likely has some form of HSV. Some people know, some people don't, but they do. So yeah that is A LOT of the population. Some people get symptoms like itching, burning, and bumps on their genitals sometimes and some people can go years without having one single outbreak. There are Antiviral medications and even suppressive treatments to help lessen the outbreaks. To prevent the spread of the infection you can:
       
      Use condoms
      getting regular STI tests and ensuring sexual partners also get tested regularly
      reducing the number of sexual partners
      being in a long-term monogamous relationship with an uninfected person
      avoiding sexual activity during outbreaks of the herpes virus
      using anti-herpes medication daily if one partner has the herpes virus
      abstaining from sexual activity
      Source: WEBMD.com

       
      The best thing to do if you find out you have HSV is to contact your doctor so they can answer all of your questions and help you find the best option for treating the infection.
       
      On another note, I felt like although I could treat it to minimize outbreaks, dating is going to be a nightmare from now on. I thought, who would want to be with someone with Herpes, one of the scariest STIs out there. I immediately thought ok, well what if I find someone with herpes like me to date, I could possibly find a guy that way. I mean, who could turn away someone with the same condition as them? This notion, I soon found out was a problem. I signed up for a HSV dating site and I realized that I was scared to share too many details about myself and even post a picture of myself. I noticed that I was scared to reveal that I had herpes even on a HSV dating site. Odd, I know. I was struggling accepting my truth.
       
      I went on to search for forums, discussion boards, etc (as I did when I found out I had Meningitis). I was searching for people my age with HSV who were struggling in the LOVE department. I found them. I could not help but fully relate to every single person on the discussion board. It was the best thing I could have ever done for myself. One blogger expressed how she would never sign up for a HSV dating site, as it can influence people who carry the virus to conform to only talking to or being with others who have it which is crazy. She opened my eyes to understand that we are all people and should not live under the stigma that Herpes is this big scary monster thing and we have to alienate ourselves from the rest of society. After all HSV is really just a few outbreaks of uncomfortable bumps and itching. It's not to say you shouldn't be careful with your health, it is just that the stigma behind Herpes is that it's a death sentence and its not.
       
      The posts made me laugh and informed me of so much. People my age, in college just like me, everywhere, going through the same exact thing. One girl and guy on the board went on to say don't be afraid to disclose that you have the virus to people. The girl told about 50 guys and had  only been rejected by about 5 of them or so. She had been in 7 relationships post HSV. A guy said the girl he met had it and he didn't really care and slept with her. All of this was good news to me, not because I just HAVE to be in a relationship or have sex, but to know that I don't have to restrict myself to find love or be ashamed of myself for my condition. I also learned to ditch the stigma because its not as bad as anyone thinks and is easily contracted. Anyone can get it and not even know it.  
       
      I don't know if I am quite as ready as these folks to be as open as they are with HSV, but I can say that I had a huge sigh of relief that I can be if I choose to. Tip of the day is to not be afraid of rejection. Not everyone will reject you.Take a chance, try it, disclose to someone and be positive about it, because you won't know the outcome until you try!
       
      These are the two websites I went to to research: The first is the forum from the people’s stories that I used in my entry. The other is an article. I hope you find these as helpful as I did.
       
      https://herpeslife.com/herpes-forum/discussion/8423/dealing-with-herpes-in-college
       
      The Overblown Stigma of Genital Herpes - The Atlantic
    • Help911
      By Help911
      I had unprotected sex January 28 2017, 3 weeks later 21 of February I tested positive for Syphilis 1.16 primary Syphilis , on February 26 (4 weeks) I got the rest of the STDs test including clymidia, gonorrea, HIV (4tg gen combo test), and HerpeSelect 1 & 2: all negative, can I trust my test?, I’m planning on retesting on the 3 month mark, what are my chances that my tests will change ( it’s been almost 2 month without any symptoms) I now that it may take time to create antibodies but my body did produce the Syphilis ( all do they are different diseases) really fast and dint have to wait the 3 month mark as recommended .
       
    • Chris Taylor
      By Chris Taylor
      I don't have anything to swab , and I don't kno what other tests doctors can do on me.  Can a semen test detect anything unusual that will let doctors know there's an infection or bacteria etc?
      Don't want to spend money if it's meaningless 
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    • win
      Hey hi202020, the Varivax vaccine definitely removed the neuralgia for me, at least so far (fingers crossed). My signs of HSV1 infection after the blood test came back positive in December (with a high IGG of over 55) were: horrible flu symptoms initially (in February) with swollen lymph nodes, followed by almost non-stop, super painful genital neuralgia, and one oral outbreak in March. However, the neuralgia has completely disappeared since the end of April (about a month or so). I had the first vaccine on April 10 and the booster shot on May 19, so about a week ago.
    • hi202020
      Hey Mackie I have the same neuralgia that you do, did you find anything that helped you? Did you try any vaccines? I’m feeling desperate as I’ve had non stop neuralgia/pain for 4+ months after contracting GHSV-1.
    • mconcerned1986
      Got my igG results after 13 months and it is negative I think I need to put this behind and may be rhink do some shitty infection that is causing this itching in genitals and on face. Just an FYI my Western blot at 7 months post exposure is negative.
    • Mikeike3
      Exactly. Plus some people don't seroconvert ever or for a long time, so it's even larger than that.  Also, it takes longer for hsv. To show up on wb than on a commercial igg test. 
    • Stolo868
      Even Terri says that sensitivity of WB for hsv1 is 95-96%. So somebody has to be in this 4-5%...
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