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    • Just a human being
      Few leaders in the community wants to speak to anyone else about it, few leaders in the community wants to have constructive adult discussions, people block, ostracise, fail to crucially think, actively prevent support or constructive dialogue, censor, ban, flame, doxx, humiliate, harass actively refuse to allow it, actively work to prevent it...yet so many people in the actual community want to talk about it, want the truth! Our society is insane, deeply conditioned and divided. We actively prevent the very healing we all need. 
    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
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Dorito3

Misunderstanding

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Dorito3

Hello, so I am studying abroad and I met a really sweet guy when I first visited a few years ago. We kept in touch since. Now, we mainly have small talk, due to language barriers, and I told him a few weeks ago that I had HSV2. He consoled me and said I was still a good person. 

*Sigh. Last night, we both got naked and one thing led to another and... for some (stupid) reason, he didn't put on a condom and I did not call him out for it. He asked me "are you okay?" in his language and I assumed he meant if I was okay emotionally and I said yes. So, we had like a minute of quick shower sex cause it was uncomfortable and we washed up right after. 

We were sitting on my bed when he pulls out his phone and used google translate to ask me a question. He asked when I got all better and I was puzzled - he meant "are you okay?" as in if I was cured from the illness. So for about an hour, we talked about how I have herpes and I guess that proper communication was lost --- basically, he thought that herpes wasn't for life and that I received treatment. I then had to explain what it was and so forth. I feel like absolute sh*t because I have put this nice guy's wellbeing in danger, perfectly knowing I had this condition and that I could spread it.

Yes, I know the rates of how prevalent it is, that it's a disease and not the end of the world, but I just never thought I'd be the one to pass it on. He keeps saying that everything will be okay, that he isn't upset with me, and that he will get tested in a few weeks.  

But, I made a mistake that was easily preventable. 

 

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Lisajd

There are some factors hear that you probably need to consider before you think that you have put him at risk.  For example when did you last have an outbreak and secondly sex that was that quick is probably I'll a chance that you would pass it to him.  The second thing is he may have oral herpes which is also providing him with some antibodies which will lessen the risk.   At the end of the day regardless of the language barrier you did tell him and I'm sure he would have found information in his own language regarding herpes so I don't think you should feel as bad as you do.  And also he chose not to use a condom.  But remember that you should also think about your own safety when you have sex with somebody else because how do you know what he may be carrying.   I don't think you should beat yourself up and unless he has symptoms a blood test will not show up until after 12 weeks from the time you had sex

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Dorito3
16 minutes ago, Lisajd said:

Thank you for your comment. I agree, there were mistakes made on both parts/ the underlying circumstances are complicated/ and I definitely should be concerned about my well-being as well... but I guess the difference is that I know the full extent of herpes and he was a bit oblivious. I don't know how I will react if I do find out he is positive for it. 

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