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This is why we should stand up and fight!

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Hi all, 

Last night @SupermansJustice stood up and fought for all of us, I thought you all should see this chain of tweets (pictures attached - you can also go on Twitter to view the full thread). This is the reason we need more people standing up and helping us fight. A specialist of infectious diseases spoke out against the tweets being posted about routine testing. I will say that again - a specialist of infectious diseases said that there is no need for routine testing. At one point even asking how you would test people who don't show symptoms. @SupermansJustice went  into a debate with this doctor and was able to point out the facts, showcase studies and eventually led the doctor to change his thinking and the doctor saying "It's important and underscores a lot of uncertainty we have."

The uncertainty is clear, if even a doctor that specializes in diseases doesn't know the facts - how are we ever going to see a change in our lifetime? By changing one persons mind at a time, by reaching out to as many people as possible, by stating facts with logical and reasonable communication, we can make a serious difference. 

We need more research, better testing, and routine testing! 

Stand up with us - we (people with HSV) are being placed on the back burner. I know of no other disease where I'm being told that what's happening to me isn't a big deal, and it doesn't matter. It's because it's constantly being swept under the rug and we are being ignored. 

Sign up - create an anon account on Twitter and help spread the word!! Follow @TheHopeIsNear he is fighting for all of us. 


@OhFuckMyDickHurts @Lisajd @Hansje @Owningit @GlitterDx @Rational Vaxxer 

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Edited by Lauren401
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Hi all,  Last night @SupermansJustice stood up and fought for all of us, I thought you all should see this chain of tweets (pictures attached - you can also go on Twitter to view the full thread)

Superman justice is a real life hero. God bless you. 

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4 minutes ago, useless said:

I admire you and others that are fighting for all of us. I wrote to Bill and Melinda Gates today. poured my heart out. Even asked if he would consider investing in AuRx.

I'm doing this today!

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I can't think of anyone else to write to maybe Richard Branson.  He might invest in AuRx. He is a business man after all. Can anyone think of anyone else ?

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Better testing is good cause many don't know they have it. Also I think we need to stand up and fight for a cure.

Edited by valleynovascotia
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only way to push forward is for people to come out and be public about hsv. its whats keeping it stigmatised and why people keep hiding away. the bigger picture is pushing for a vaccine , but the FDA and goverment bodys keep suppressing hsv as an issue and keeping us down with a stigma created by pharma. sick world we live in. who else can we target via solcial media ?

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Nice letter from @SupermansJustice.

Couple of suggestions to make it better..

1) The phycological harm argument and "Is that done for any other medical condition?" - It's interesting....but the same avoidance is largely true for tests to determine risk factors of ALS, Alzhemiers, etc (of course, these tests are also avoided because they can't predict with 100% certainty....but it's well documented that neither can the igg)... Further it's true that EBV, CMV, HPV and others are not routinely tested for either.  NONE of those aforementioned diseases are tested for until a patient has symptoms; just like HSV...and all of these diseases have one thing in common which negates the need for testing; there are not good treatments or a cure (or Doc says: 'there's nothing we can do for you').  The recco is just to remove "Is that done for any other medical condition?"

2) We request 'acceptance' - what's meant by this? What kind of acceptance? Are we seeking the kind of acceptance that women, african americans and homosexuals have all fought for and largely won? I would suggest that we're more-so seeking respect...or dignity...


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3 minutes ago, fixme1 said:

only way to push forward is for people to come out and be public about hsv. its whats keeping it stigmatised and why people keep hiding away. the bigger picture is pushing for a vaccine , but the FDA and goverment bodys keep suppressing hsv as an issue and keeping us down with a stigma created by pharma. sick world we live in. who else can we target via solcial media ?

There's a doctor with hsv2...Dr. Sheila Loanzon! She could help!

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I am tired of hiding but there's  nothing I can do.  Sometimes I feel like a criminal walking around with a secret of a crime I've committed.  Hiding my true self and what'sgoing oon inside of me. My head hurts from thinking about this all the time. Is  it ever going to end.

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1 hour ago, useless said:

That's easier said than done. I'm afraid i have a family and it could affect them. Being heard is just as goodas being seen. 

People think into it alot. End of the day it's a skin infection, not a contagious life threatening disease. We are made to feel bad and wronguns because of pharma company stigma, reality is most people haven't slept around to acquire this virus and we should never be ashamed

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