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    • Just a human being
      Few leaders in the community wants to speak to anyone else about it, few leaders in the community wants to have constructive adult discussions, people block, ostracise, fail to critically think, actively prevent support or constructive dialogue, censor, ban, flame, doxx, humiliate, harass actively refuse to allow it, actively work to prevent it...yet so many people in the actual community want to talk about it, want the truth! Our society is insane, deeply conditioned and divided. I have to say I am developing a deep respect for the H/C forum as the only place one human beings voice is heard. We actively prevent the very healing we all need. 
    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
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useless

can anyone help

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useless

I have been experiencing numbness and my hands become claw like and I can't open them up without difficult. Has anyone else experienced something like this.

 

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ThePrinceofPoon

I used to get that numbness feeling in my left hand sometimes and then sometimes I would breakout on the back of my hand. I still feel numbness but I also had a herniated cervical disc at c4-c5 on my left side so the Dr. said that was causing the numbness in my hand. Have you injured your neck? Does your neck hurt? Could be that.

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useless

Not hurt my neck no. Fingers are numb constantly in both hands but right is more. Hurt as well. My toes feel slightly numb too. I'm pretty sure it's to do with hsv. There's a lot of things I experience that others don't. Not sure what's going on. Thanks for reply.

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WilsoInAus

I think you can be very confident this has nothing at all to do with HSV. Please consult a doctor as soon as possible.

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Cas9
9 minutes ago, useless said:

Not hurt my neck no. Fingers are numb constantly in both hands but right is more. Hurt as well. My toes feel slightly numb too. I'm pretty sure it's to do with hsv. There's a lot of things I experience that others don't. Not sure what's going on. Thanks for reply.

You're pretty sure is has to do with hsv??? Based on what?

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useless

My hands burns in patches, I'm having tingling,pain and same symptoms in my face around my cheek bones and forehead.

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Atrapasueños

Por lo que he leído el hsv genera picazón ardor dolor de nervios y dolores de cabeza, lo que genera o puede generar son lesiones dependiendo de donde penetró el virus la encefalitis pandadizo ohsv, ghsv, hsv ocular y en algunos casos de personas inmunocomprometidos la muerte 

Tal vez lo que le suceda es por otro motivo, mejor ir al médico

 

From what I have read the hsv generates itching burning pain of nerves and headaches, what it generates or can generate are injuries depending on where the virus encephalitis pandemic ohsv, ghsv, hsv ocular and in some cases of immunocompromised people death

Maybe what happens to you is for another reason, better go to the doctor

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Cas9
Just now, useless said:

What are you saying  icould die ? 

There's nothing to suggest you have any more of a chance of dying from your symptoms than I do of mine. But why are you discussing this on this forum?
GO SEE A DOCTOR for god's sake.

P.S. Not every problem you have is automatically HSV

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useless

As far as Dr's are concerned i should not be having any symptoms other than breakouts and i know that is rubbish. They do blood test and say there's nothing wrong with you your tests show nothing. I just wanted to know if anyone had experienced these symptoms as well.

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WilsoInAus

People might experience such symptoms, but it has nothing at all whatsoever to do with herpes!

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useless

I'm having a lotof pproblems right now. Don't mean to go on. But this has really made me feel down. I'm ffinding that hard to do simple chores. I ddon't know why cas9 is so aggressive in the response. Just asking a question on a forum wherelots of people  ask qquestions.

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Cas9
2 minutes ago, useless said:

I'm having a lotof pproblems right now. Don't mean to go on. But this has really made me feel down. I'm ffinding that hard to do simple chores. I ddon't know why cas9 is so aggressive in the response. Just asking a question on a forum wherelots of people  ask qquestions.

Sorry if I seem over aggressive but you need to use a little common sense here. Just because you have some ailment doesn't always mean it's HSV.
I see that a lot on this forum. Whatever your issue is, you need to have it medically determined.

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Cas9

@useless BTW, how old are you? And stop thinking you're useless or I'll have to fly over to England and kick your ass :)

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useless

Thankyou. Last iwent to the dr and said Iihad pproblems with my eye and couldhe swab ytobe ttested for ocular hsv. He said he ccouldn't because the eyes are sensitive. There was nothing he could do. When Iispoke to someoneta the std clinic she told me her daughter had hherpesin the eye and her gp sswabbed her eye for the test. I've been back and forth just tired of it all now. I was doing well till last year and now Iikeep having one thing after another. 

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useless

Sorry just feeling sorry for myself i gguess. Not attractive at all and I'm 51 

I mean not an attractive trait.

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Cas9
19 minutes ago, useless said:

Sorry just feeling sorry for myself i gguess. Not attractive at all and I'm 51 

I mean not an attractive trait.

No need to apologize. I just don't want you to jump to conclusions about your medical issues. After all, your numbness could be something more significant then hsv and it's important that you get it diagnosed. For example, what if it's diabetes, or perhaps a circualtion issue. I'm not saying it is, just saying that it could be something more significant than hsv. If your doctor is not helping you, find another doctor.

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useless

Thankyou cas9. I have been checked for diabetesso I know it's not that. I just feel the Dr's don'tknow enough about hsv. But ewill go to Dr's to check out for circulation problems. Thanks for your help.

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