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    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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howardsmith8888

Nutrition: Multivitamin/Lysine

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howardsmith8888

Trusted brands for multivitamins and lysine -  anyone have a brand that they have been using for an extended period of time that they have high confidence in?  Looking for a daily multivitamin as well as a lysine supplement to use on days when I feel my arginine count is exceedingly high.  Furthermore, I'm going to adjust my diet to not include almond butter and other nuts to help in this fight.  If you have suitable alternatives to put high quality fat back into the diet, such as avocados etc - please advise.  I currently use Whey protein from Optimum Nutrition that I believe has favorable lysine to arginine ratios, but if you have a better post workout supplement with better ratios, please let me know.  Also, happy to lend a hand to any nutrition questions that you might have that I can answer.  @VVK and others, thank you.

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VVK

Rather than cutting sources of arginine, try increasing sources of lysine to balance the arginine. It will make life a lot easier.

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darlingdisaster
On 6/18/2017 at 9:57 PM, VVK said:

Rather than cutting sources of arginine, try increasing sources of lysine to balance the arginine. It will make life a lot easier.

I agree with this.  Trying to cut out sources of arginine is VERY difficult.  Upping your levels of lysine to balance out the arginine is much easier.  Still try to avoid eating copious amounts of arginine-rich foods, but don't try to cut them out altogether or you will find that you're not eating much of anything at all.

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Rick Sanchez

I've been using the Quantum Super Lysine+ and found it helpful.  Also Optimum Nutrition is good about giving you the amino profile of their products if you contact them.  I have been using the Gold Standard Whey Natural Vanilla and it is listed at: 

Lysine - 2233mg

Arginine - 505mg

I know there are plenty of people that will say to avoid adding anything with Arginine in your diet, but it is in most all of the foods we eat.  Chicken breast has a Lysine to Arginine ratio of 1.33 with 2500 mg of Lysine to 1870 mg of Arginine.  You just need to stay in a positive ratio/balanced ratio and cut back on the Arginine rich foods and drinks.

Avocados have on average 297 mg of Lysine to 200 mg of Arginine, so they are a good choice and I add them to a good bit of my meals. 

A site that I have found helpful is http://nutritiondata.self.com/  You can use the search bar near the top of the page to type in almost any food and it will give you the nutritional breakdown.  You can also do searches for the foods highest in Lysine and lowest in Arginine and search by food categories.  It is all going to be trial and error and nobody has all of the answers on diet or how to prevent outbreaks, so you will see a lot of conflicting information.  

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Nicoli

Thanks for that link! I just spent the last 30 min checking out my favorite foods. No wonder peanuts are deadly to me. 

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