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    • Just a human being
      Few leaders in the community wants to speak to anyone else about it, few leaders in the community wants to have constructive adult discussions, people block, ostracise, fail to crucially think, actively prevent support or constructive dialogue, censor, ban, flame, doxx, humiliate, harass actively refuse to allow it, actively work to prevent it...yet so many people in the actual community want to talk about it, want the truth! Our society is insane, deeply conditioned and divided. We actively prevent the very healing we all need. 
    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
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vr00mm

Thank you for this site!

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vr00mm

Hi Everyone!

I have come across this site only a few hours ago. I have posted 2 of my issues so far.

I supposedly off to an event right now but i could not bring myself to go because i was depressed, sad and concerns but things are changing....

A few days ago, I got rejected by a potential man because I disclosed my condition on day 4 of our interaction. (duh)

He is on the other side of the world anyway so I didn't think we can form a relationship. By the way,  this is the second time I disclosed . The first time disclosed is with my x but i did not know that i have HPV 2. I found out later on the relationship when i had blisters and had them checked. He was surprised at first, he had himself checked, came out negative yet still wanted to continue the relationship. While i think this was noble, i think a large reason is because he didn't have much love for himself. We broke up due to his growing depression. He said , another disease would not matter to him as he was already left with one kidney anyway. He had a kidney cancer years before he met me. So I am unsure if i should have felt  flattered that he wanted to continue the relationship. He was not a great talker so he didn't say things that ensure me that he decided to continue because i was awesome lol.

This last guy, i was pretty smitten by him. I thought we bonded well and we talked about potentiality of a relationship though i was still very doubtful it will work because of the distance. I disclosed to him 2 days ago and he politely said that he didnt wish to continue due to the obvious reasons. Surprisingly to me, I got really upset but  i didnt show it to him. I put on a brave face and thank him for our lovely short time. Since then, I experienced grief, worry of the future, even had thought of suicides! ( never going to act on it though).

I could not eat much. I experienced the same things many experienced here on this forum. 

I then decided to joined this site and spent countless hours reading stories and gotten myself to read success stories just in the last hour. I must say i feel a huge burden lifted off my shoulders. Thank you!!!

I was torn between disclosing or never disclosing one day. How would i disclose it one day to a potential someone? should i disclosing in a light hearted way? A lot of things swirling inside my head. I know for sure i will not disclose it on day 5 of getting to know each other!!lol.

I received wise advises before this that say i am valuable despite HSV 2  and had agreed  until a man that i liked rejected me because of the virus. 

Anyway, right now i feel stronger and hopeful that the right person will come and accept me for who i am. Meanwhile, probably best for me not to be too hopeful nor invest so much emotions into a new relationship until THE TALK. (this is going to be a challenge for me)

I am grateful for this site. Love hearing success stories from people who walk it. 

:)

 

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JBnATL

There is a great section of this website called "The Secret to my Success" it has hundreds of posts from people who thought no one would want them and they ended up finding someone who did not care.

Personally, I have disclosed a dozen times and have NEVER been rejected.  At first I was scared shitless to give the 'talk' but the more I learned about it and the more I had success the easier it got.  If I were ever to be rejected because of this, I would feel sorry for her.  I have a post on this website on how I disclose and it has been viewed almost 40,000 times :D

Good luck!

JB

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Lisajd

I think you need to consider the people you are meeting.   Try meeting someone local and get to know them in person.  I think its also about education.  Ive disclosed many times and not had an issue.  You can also talk about stds and testing as a way into the topic.  This way you are not disclosing and can gauge their knowledge and views on it. 

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