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    • chillmoksha
      @Laguna I will try to look into it tonight but I am skeptical about that NO image/ not much info LinkedIn account. @Just a human being  It would be good if u elaborate on 5CC, Nevertheless I will check on it as well.
    • Just a human being
      Few leaders in the community wants to speak to anyone else about it, few leaders in the community wants to have constructive adult discussions, people block, ostracise, fail to critically think, actively prevent support or constructive dialogue, censor, ban, flame, doxx, humiliate, harass actively refuse to allow it, actively work to prevent it...yet so many people in the actual community want to talk about it, want the truth! Our society is insane, deeply conditioned and divided. I have to say I am developing a deep respect for the H/C forum as the only place one human beings voice is heard. We actively prevent the very healing we all need. 
    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
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mariamunich

Muslimin with hsv-1

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mariamunich

Hi All :) Assalaamu Aleykum, 

Im just divorced halv an year ago and have genital herpes. My ex had cold sore and for the stupid misstake I got infected. I feel sad, but need to accept this condition. I feel a bit lonely, because In my muslim community I cannot tell this problem to anyone. Only my bestfriend knows this. It is really common that muslim sisters are asking, if I would like to get married and of course I would like to but instead I need to smile and pass the situation. I do not have children and didnt even tried to get pregnant with my ex. I feel a bit jealouse when I see other sisters are having babies and have good relationships. Instead I try to hide my feelings and disappointment. Alhamdulillah Im muslimin and I want to be positive and be greatful of health I have and I do not have symptoms. I have trust in God that somehow my situation gets better. I just need to open the gate, but I feel a bit trapped.  I would like to have supportive comments and your opinions how you deal with this problem.

Assalaamu Aleykum,

Maria

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LillianPanos

Maria

Iy assume you have hsv1?  I would think there you can find someone who will love you.  I did. It's good thst you have a supportive friend. @mariamunich

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Lisajd

How badly is herpes viewed on your country.  You are not alone. I suggest you date as normal and go from there.

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Disc0rdant
13 hours ago, mariamunich said:

Hi All :) Assalaamu Aleykum, 

Im just divorced halv an year ago and have genital herpes. My ex had cold sore and for the stupid misstake I got infected. I feel sad, but need to accept this condition. I feel a bit lonely, because In my muslim community I cannot tell this problem to anyone. Only my bestfriend knows this. It is really common that muslim sisters are asking, if I would like to get married and of course I would like to but instead I need to smile and pass the situation. I do not have children and didnt even tried to get pregnant with my ex. I feel a bit jealouse when I see other sisters are having babies and have good relationships. Instead I try to hide my feelings and disappointment. Alhamdulillah Im muslimin and I want to be positive and be greatful of health I have and I do not have symptoms. I have trust in God that somehow my situation gets better. I just need to open the gate, but I feel a bit trapped.  I would like to have supportive comments and your opinions how you deal with this problem.

Assalaamu Aleykum,

Maria

HSV1 is probably in 60-80% of the Muslim population.  Date like normal and insist on testing so you dont get additional STI's.    Respect yourself and him by testing.

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useless

I'm pretty sure the situation is not about dating. In the Muslim community it's about arranged marriage and you don't get the opportunity to discuss or disclose an std. Maria i think wants to marry and have a family but can't tell her family about her situation. Every culture has its stigmas, regardless of religion. But the Muslim community in particular isn't very forgiving believe me.

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Disc0rdant
1 minute ago, useless said:

I'm pretty sure the situation is not about dating. In the Muslim community it's about arranged marriage and you don't get the opportunity to discuss or disclose an std. Maria i think wants to marry and have a family but can't tell her family about her situation. Every culture has its stigmas, regardless of religion. But the Muslim community in particular isn't very forgiving believe me.

Well.  She didnt say that.  Pre arranged marriages are not done in the states because it isnt legal.  The parties must consent.  Of course Jews, Muslims and Christians try it anyway....

Irrespective, she should insist on testing.  In my religion(that I rarely practice), divorce is not allowed and she is comitting adultery if she ever has sex!  Even if remarried.  Hilarious.  Because the Catholic church used to run whore houses.  Ahhh.  The joys of organized religion seizing control.  If you dont embrace it, you are terrible.  Cant wait to play w poisonous snakes on Sunday....

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useless

Of course your right, but unfortunately these marriages take place and it is still difficult for women and men to say no under pressure. It's not legal in my country etheir but it's culture that is the problem not religion. You have a choice in Islam it's just people and their traditions.anyway your right she didn't say that. I believe in disclosing and I agree one should insist on testing. 

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Disc0rdant
3 hours ago, useless said:

Of course your right, but unfortunately these marriages take place and it is still difficult for women and men to say no under pressure. It's not legal in my country etheir but it's culture that is the problem not religion. You have a choice in Islam it's just people and their traditions.anyway your right she didn't say that. I believe in disclosing and I agree one should insist on testing. 

Cool.  Ok.  Gotta get back to playing with poisonous snakes.  If I live, it is "God's will"

Wish me luck!

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mariamunich
6 hours ago, Disc0rdant said:

HSV1 is probably in 60-80% of the Muslim population.  Date like normal and insist on testing so you dont get additional STI's.    Respect yourself and him by testing.

Thank you! I just had dates during this spring and it just didnt end quite nicely.  We met couple of times before and then I needed to say him about this issue and he was really desappointed as I would just play with him. I was crying and explained this and it was horrible. But my good friend tried to help me by explaining medical facts to me. She has been really reasonable. :)

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mariamunich
6 hours ago, Disc0rdant said:

Well.  She didnt say that.  Pre arranged marriages are not done in the states because it isnt legal.  The parties must consent.  Of course Jews, Muslims and Christians try it anyway....

Irrespective, she should insist on testing.  In my religion(that I rarely practice), divorce is not allowed and she is comitting adultery if she ever has sex!  Even if remarried.  Hilarious.  Because the Catholic church used to run whore houses.  Ahhh.  The joys of organized religion seizing control.  If you dont embrace it, you are terrible.  Cant wait to play w poisonous snakes on Sunday....

Well... in Islam its blessing from God to have sex with your spouse :) but its ONLY allowed in marriage. 

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mariamunich
6 hours ago, useless said:

I'm pretty sure the situation is not about dating. In the Muslim community it's about arranged marriage and you don't get the opportunity to discuss or disclose an std. Maria i think wants to marry and have a family but can't tell her family about her situation. Every culture has its stigmas, regardless of religion. But the Muslim community in particular isn't very forgiving believe me.

Loving and caring parents who are looking for the best to their child they really want their child to find someone who is good for him or her. Parents really are interested in with whom their child is getting married but they should not force them. Im friend with integrated muslims and normally it goes like this in Europe and States.

In every relationship it helps to be open and sincere if there is something which could harm the other party. But this issue is not the information to the whole family. 

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mariamunich
6 hours ago, useless said:

Of course your right, but unfortunately these marriages take place and it is still difficult for women and men to say no under pressure. It's not legal in my country etheir but it's culture that is the problem not religion. You have a choice in Islam it's just people and their traditions.anyway your right she didn't say that. I believe in disclosing and I agree one should insist on testing. 

Thank you. Its like the cultural issue, not Islam. Next time I will ask test results and see a little bit reaction and attitude. :)

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Salah
On 6/18/2017 at 0:19 PM, mariamunich said:

Hi All :) Assalaamu Aleykum, 

Im just divorced halv an year ago and have genital herpes. My ex had cold sore and for the stupid misstake I got infected. I feel sad, but need to accept this condition. I feel a bit lonely, because In my muslim community I cannot tell this problem to anyone. Only my bestfriend knows this. It is really common that muslim sisters are asking, if I would like to get married and of course I would like to but instead I need to smile and pass the situation. I do not have children and didnt even tried to get pregnant with my ex. I feel a bit jealouse when I see other sisters are having babies and have good relationships. Instead I try to hide my feelings and disappointment. Alhamdulillah Im muslimin and I want to be positive and be greatful of health I have and I do not have symptoms. I have trust in God that somehow my situation gets better. I just need to open the gate, but I feel a bit trapped.  I would like to have supportive comments and your opinions how you deal with this problem.

Assalaamu Aleykum,

Maria

Salam, 

Maria are you still looking for someone?

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mariamunich
On 23.6.2017 at 0:43 PM, Salah said:

Salam, 

Maria are you still looking for someone?

Wa aleikum salaam, actually yes I am. 

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Heavy.load
On 6/19/2017 at 5:24 AM, useless said:

Of course your right, but unfortunately these marriages take place and it is still difficult for women and men to say no under pressure. It's not legal in my country etheir but it's culture that is the problem not religion. You have a choice in Islam it's just people and their traditions.anyway your right she didn't say that. I believe in disclosing and I agree one should insist on testing. 

It's bitter but sadly it's very true in India. And this not applies to Muslim but Hindu and Sikhs too come under it. Since only after marriage only we are allowed to sex and have spend rest life with one only. But herpes open the chances of cheating and doubting ones personel image.

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