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SupermansJustice

Herpes petition - CDC/NIH/FDA

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SupermansJustice

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Edited by SupermansJustice

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OffTheGrid
Franticheart

This is brilliant, thank you for taking the time to do this. It's excellently worded too. x I signed it 

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It Hurts

Thank you and well said. I signed. I am new here.  I wish I had known about this site seven years ago when I contracted the most horrible thing in my life. Thank you for doing this. My medication does not subside my symptoms. Every day is agonizing and I have to wonder what it would be like if I did not take the medicine. The thought of a cure or even something to help subside the symptoms well, I have not really wraped my head around it. That would be beyond wonderful.  I have had this for seven agonizing years and as the years go by the symptoms and problems increase. I hope that something truly is on the horizon so we all can find much needed and deserved relief. 

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It Hurts

 That's the other side of it, nobody other than my doctor, the person who gave this to me who said, "what's the difference if we are going to be together" (that didn't happen" and my best friend/boyfriend now know that I suffer from this. I cannot let my children know. I cannot let them have this burden and I sure as heck will never let my family know or friends. This is why I was so happy to the point that it brought me  to tears when I happened upon this site today. I have felt and been so alone for so long and seeing that there are other people out there while we all are going through a horrible ordeal, well, it brings a little comfort to know that I am not alone 

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Whyyyyy
29 minutes ago, SupermansJustice said:

Awesome! Thank you! I am working with some individuals on twitter to see if we can get a big social media campaign going. We can use all the help we can get.

Awesome! I'm so discouraged today... I need some good news :(

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OFMDH

Signed. 

You'd think NIH spending x100 more on HIV ($3 billion for HIV vs $30 million a year for HSV) they could allocate some more funds considering it increases the risk of HIV acquisition fourfold. 

 

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Evaluate
13 minutes ago, OFMDH said:

You'd think NIH spending x100 more on HIV ($3 billion for HIV vs $30 million a year for HSV) they could allocate some more funds considering it increases the risk of HIV acquisition fourfold.

I've often wondered that.  It's similar to investing in HPV research with the end result being less incidences of cancer (and of course, less HPV).  Obviously not exactly the same but you get the idea.  The research even backs it up - reduce HSV and from that a reduction in HIV transmission.

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moialbalushi

Donnnneee. I signed. Got a plan that might do a good job in terms of this. I wont talk about it now. Stay tuned guys. 

Edited by moialbalushi

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West end gal

Grrrreat  petition!! Signed, and posted it on national FB group site...

14 hours ago, Evaluate said:

I've often wondered that.  It's similar to investing in HPV research with the end result being less incidences of cancer (and of course, less HPV).  Obviously not exactly the same but you get the idea.  The research even backs it up - reduce HSV and from that a reduction in HIV transmission.

Very good point 

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hopeful22

Hello SupermansJustice 

I signed. I greatly appreciate you taking the time to make this petition. 

Best

Hopeful 

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Just want to move on.

Signed and donated. Awesome post!

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