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    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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Janie725c

Questions about blood test

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Janie725c

Hi! I signed up on here a couple of months ago.  I had a visual positive diagnosis of herpes from Plannec Parenthood a little over two years ago, almost three. I took medicine, and haven't had an outbreak since.  It was so painful, I can't imagine what that could have been if it wasn't an outbreak....

So, just this past week I decided to face my fears and become more knowledgeable. I got tested through stdcheck (FPK Services) and used a Labcorp near me. I got all ten major STD tests. Three of the tests said if the number was less then a certain number, then the results were negative. All the rest were purely negative. Final results back: I am negative and have no stds!

I'm thinking of doing one more panel test somewhere else, just to be sure. What do you think? I've been told the most reliable is the culture swab (does that happen only during an outbreak?), the Westernblot test and the test specific test (I got the test specific test done), but I' just not sure if I should get another type of test just to make sure.   Also, I know there is a window as to the waiting period to get tested. Since my potential one and only outbreak happened almost three years ago, are these results that I got today accurate? They said it was 97% accurate. My last question is this:  would you take these results to heart, or would you get another type of blood test or culture done?

I wanted to take the time and thank everyone who has been so kind and helpful to me on here. You have helped me get through a difficult time. If I can do anything for anyone, and be here as a support, please just email me. If you have any insight on if you think I should trust my results, please let me know. I'm just suspicious of the results after what I went through, I guess.   Thank you!

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Blahdittilyblah

Idk it's always hard to say. I had a PCR done that said I was positive. No OB or symptoms since the first one and it's been a year. I just got another test done last week and it still says I'm negative for either type. My ex's blood came back positive so I feel even though my blood a year later says no but my PCR and my ex's say yes then I have to have it regardless of multiple blood test that say I don't and not having anything else strange happen down there. 

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selu

janie you were on suppresive therapy for 3 years? i believe you are very lucky that your blood tests shows negative.  from what i have been reading thewestern blot is the most reliable

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