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    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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hello96

Young and dating

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hello96

Can anyone offer some support or insight in regards to dating with herpes?

I'm going a bit crazy inside my own head thinking my dating life is over. At times I feel okay about and think that if the person really likes me, they'll see past my condition. But right now I'm feeling really pessismistic and just want to know whether at 20,  I can lead a relatively normal dating life? 

Sorry for the rant 

- Isabel x

Edited by hello96

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Lisajd

There is a section called secret of my success.  In terms of dating everyone is different.  Remember though its a two way street.  You need to know their status too.  Date as normal and then talk about cold sores and testing.  As an older person i say enjoy life.  Worry about men later

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WilsoInAus

I also think there does need to be some observation of the Australian culture here. Similar to most countries the medical/sexual healthy view is that disclosure is not required on the basis that this is a human vicissitude. In practice, disclosure will typically not occur until a relationship moves to that 'next level' a few months in and/or when moving to unprotected sex for example.

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hello96

 

2 hours ago, Lisajd said:

There is a section called secret of my success.  In terms of dating everyone is different.  Remember though its a two way street.  You need to know their status too.  Date as normal and then talk about cold sores and testing.  As an older person i say enjoy life.  Worry about men later

Thanks for your reply. I can't seem to find the section 'secret of my success' - it sounds like something I'd really like to read haha.

2 hours ago, WilsoInAus said:

I also think there does need to be some observation of the Australian culture here. Similar to most countries the medical/sexual healthy view is that disclosure is not required on the basis that this is a human vicissitude. In practice, disclosure will typically not occur until a relationship moves to that 'next level' a few months in and/or when moving to unprotected sex for example.

Do you mean that people don't feel it's necessary to disclose or be honest about their sexual health status here in Aus?

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WilsoInAus

Well it is more to do with what is HSV-2 and how does it differ from HSV-1, how does it differ from EBV, CMV or the common cold? What can any of us really do about it beyond condoms and maybe antivirals, should more be expected? 

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RayLynne

I met my bf of 2 1/2 yrs after being diagnosed(i was 18). I told him i had HSV2 on our third date. He was shocked and kind of taken aback but i had all the facts ready to answer any questions he had. He eventually understood the stigma around HSV is way worse than what it actually is and we have been together ever since. He is still HSV2 negative. Having a healthy sex life and having healthy relationships are still very possible. My bestfriend and i joke all the time that having HSV2 just makes it easier to weed out all of the jerks and shallow men!

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