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    • Just a human being
      People say the want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! After over a year in the space it’s so clear to me why there has been no progress. You are completely ostrisized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine. 
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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HarrisonIs

Struggling to recognize Outbreaks!

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HarrisonIs

Hello :)

 

I'm looking for some advice, I'm really struggling to recognize if I'm having an outbreak or not. I've had previous skin conditions of red dots and itchy skin as I had severe eczema as a child which has now thankfully cleared up. However, now being diagnosed with HSV1 gential about 10 months ago, I experience my primary (quite severe) OB and my secondary OB of only one minor lesion, I now find myself mulling over every red dot I find on my genitals. Currently I have a few red bumps under my foreskin which have left me wondering again whether or not I'm experiencing an OB :/ I was also awakened last night my a sudden sharp pang of itching/pain on my penis last night but and unsure if that was just boxers catching me or if it is linked!

I'm finding it very hard to know whether me and my partner are safe to have sex and am feeling it start to effect my confidence and I don't want to keep having to say no because I'm worrying!

I'd really appreciate any advice,

H

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Worstguyever

I too on same feel.  I got it from exposure month before from there i have Herpes Symptoms of light fever, urinary retention and all.  But these small blisters it continuously coming on my both thighs back to back and going in 2-3 days for Past 3 week.  I am wondering is it called recurrent outbreak or my first outbreak itself continuing with Different blisters. I don't know how to deal with it. Hopefully you will get good info from Guys.  

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HarrisonIs

Sorry to hear that!

Hope it clears up for you,  it may be that you're experiencing your primary and secondary back to back!

 

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Worstguyever

@HarrisonIs. Thanks for the Support.  I am not sure but as you mentioned for me also same small redblisters 2-3 if its fade other start to come.  Are you in medication.  If so,  still getting these.  I not yet start any medicines and have to start. 

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HarrisonIs

 

On 7/4/2017 at 6:20 AM, Worstguyever said:

@HarrisonIs. Thanks for the Support.  I am not sure but as you mentioned for me also same small redblisters 2-3 if its fade other start to come.  Are you in medication.  If so,  still getting these.  I not yet start any medicines and have to start. 

Hello :)

It was the odd red dot here and there but didn't really look like blisters so I was unsure. They're gone now anyway, they only lasted about 3 days! I didn't have any medication no but it sounds like something you should try :)

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