Firstly let me introduce myself.
I am Miha, a solo singer songwritter. Ive been working on my musical project for a while and plan to run my Youtube channel and Patreon page soon. It took me long enough, because of my "little" HEALTH problem constantly causing some obstacles and affecting my mental wellbeing in a very cruel way, slowing my progress of my artistical work.
I wish i had a talent in science so I could help out the world with dedicated researching, but I will use what i have to make an impact, no matter how little it will be. I plan to run my project soon, and get attention overtime. Being open Genital Herpes positive artist i want to Make art out of this virus, to raise awareness, compassion and inspire people, to deliver the message to researchers of the need for more deserving attention to this pandemic. I plan to create and form a Facebook group to gather as many people as possible to get attention and reach out to organisations.
Now, some horror story time:
I am back to this forums. Finally after almost 2 years of this blind nightmare period I could convince one doctor to make a PCR swab and find out whether do i have herpes or not. It took me 2 years to find a right place to diagnose it, can you believe that, fucking STONE AGE!!!
The result came back positive, but the doctors didnt even bother to check the type of the virus 1 or 2 (I mean hello? what the fuck, another ass hand clinic... why do patients have to do and beg everything by themselves?!).
I can tell you from my experience of visiting many dermatology, urology and infection department clinics (close to 20 places multiple times each) over last 2 years. in 2 countries Japan and Vietnam, that do not trust all the doctors. Many of them (90 %) are very inexperienced about herpes, they are just doctors, not researchers or scientists, they know only what they learned with their lazy ass at some village medical class and thats it, 1 plus 1 is 2, and they keep telling that to their patients without moving their own brains. The information they provide is very misleading and non complete, same goes to many sources of the information on the global network. Not only they mislead the patients but also REFUSE to take analyses in atypical cases of the infection (Just because its not blisters, then its not herpes). I was fed with antibiotics and antifungal treatments, multiple courses by multiple doctors, just because of their poor understanding of this particular problem.
After a lot of researching and DIGGING (I mean it, really digging it, because many of the herpes articles lack information and very misleading) the web for information about this plague, I suspected it could be herpes right at my third month of the problem, 2 years ago, and ONLY NOW, these fucking doctors agreed to do a swap to diagnose it scientifically right way and find out what it is. WHO IS THE FUCKING DOCTOR HERE? What the hell???
ENOUGH OF THIS HORSE SHIT!
STD check pannels dont include Herpes tests! They dont test for herpes in STD panels unless you really beg for it like on your KNEES, literally!
Statistics are misleading! Some articles say above 90% of the world is infected with herpes. But thats not true, they dont even try to explain in details thats its a sum up number of all herpesvirus types.
THERE IS VERY POOR EDUCATION ABOUT HERPES, worldwide!!! Very poor and misleading, leading to stupid stigmas and causing this infection to spread like a wildfire.
THE MOST SHOCKING episode that happened to me on my way of finding out of my diagnosis was when a doctor of a DERMATOLOGY clinic told me "Son, Herpes only occurs on the lips, it never goes down there, nonny to worry". Can you believe that??? WHAT YEAR IS THIS, i thought i was in 2017!? Im not making this up, it happened to me for real!!! I was so mad, i just said "Ok!" and fucking went away.
People lack compassion, people lack understanding and knowledge. Those unaffected people, doctors, government and health organisations: They dont understand and under estimate risks, mental, life quality and health complication burdens of this condition.
And the STIGMA is STUPID. Being a good person doesnt provide anybody with IMMUNITY! Those who dont understand that are falling behind of social humane evolution. Dont be afraid and speak out for yourself, for all the people who suffers. I myself dont araid of stigma, I can tell in anybodys face, I HAVE HERPES!
Health organisations say that Herpes is Minor disease, and no effort being done by the powerful side of the world to make any progress in researching this infection.
We are the army of zombies. Its time to horde up and strike.
Dont sit alone and suffer, stand up and open up, speak out, together we are the voice.
Together we will break the stigma, raise awareness, help to speed up the progress of eradicating this plague.
Im sitting all alone writting this, having back and knee nerve aches, burning and tingling in my pants. And they keep telling us "Herpes is just a minor skin condition", FUCK!
DONT SIT AND WAIT, HERPES MOVEMENT!
Im still writing it... in progress. Keep checking out this thread.
Anyone willing to start a petition to have HSV 1 / 2 added to the panel of testing ?
They say it's a std but yet it's not on the panel of testing.
They also say it's not a big deal to have HSV! (For most of us it is). So if you want the test for most of the people I have talked to they have had to fight to get the test done!
I think if it becomes mandatory then maybe it may provide more $ for research!