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SupermansJustice

Please Read These Powerful Stories of People with Herpes

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SupermansJustice

Hello all. I wanted to share some stories with everyone here so that everyone understands they are not alone in this. I made a petition recently to raise awareness about herpes. It's steadily gaining a lot of support on social media. The MOST powerful thing is reading the stories of people who have been diagnosed. It is heartbreaking to read, but it's also the experience everyone needs to see. People need to understand that the STIGMA is the WORST part of this disease.

If you decide you want to sign the petition (AFTER reading it over), please know that 

PLEASE READ BEFORE SIGNING PETITION:

Please know that you do not need to sign the petition with your real name or e-mail address. Please protect your privacy. Your name is NOT what we need. It is your support that matters. If you do decide to use your real name and e-mail address, please note that if you comment (your name and location will be revealed). If you sign but do not comment, neither the petition creator nor anyone else who signs the petition can see it. However, the petition is on change.org. Please know what you are comfortable with. I wish people wouldn’t cast judgement for supporting a good cause, but that’s the aim of this petition. We aim to change how this condition is perceived. You can absolutely lend your support using a different name and different e-mail address. There is no need or obligation to reveal your true identity. If you have already signed and commented, please feel free to remove it and sign in with your alternate name. Please hang onto your new e-mail for when we post updates! Your help is essential!

https://www.change.org/p/herpes-a-medical-condition-like-any-other-with-the-stigma-unlike-almost-any-other/w?source_location=petition_show

Here are the stories of people with herpes. Here is what they are asking for. Let's help them. Let's help ourselves.

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    • hk81
      By hk81
      Hi
      I need advices from people who have experience with ocular herpes.
      3 years ago I had a few meetings with an asshole liar that denied to have any disease.
      Despite my being careful, I could not avoid to get infected because of his careless attitude.
      2 days after one meeting I developed a small peripheral corneal ulcer in my left eye; my doctor didn't relate it to sexual diseases and after a few days of wrong treatment (she told me to put gentamicin cream in the eye!!), it went away. I believe that I may have touched my eyes carelessly, as it was late and it was my normal behavior from getting tired.
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      About one year later I had a diagnosis of HSV1 in the urethra, which increased my suspects that that person had HSV. He still denied everything and when I asked him to get tested, he blocked all my contacts (I'm still considering how to report such a person).
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      I also had several vaccinations (HPV, Hepatitis, Tetanus), which I have recently finished (and they make me wonder if they made any good to my immune system).

      At the beginning of this year the problems with my eye started again.
      The first time I had small blisters in both eyes. In my left eye it's almost always in the same place. My right eye was never affected before.
      The second time I had again blisters in the left eye, this time after not much sleep and a day on the snow. Then in the right eye.
      I started visiting an ambulance for eye problems; every time I had a bad case of red eye, I went back to show it. In total I have been looked by 7 people, both when I had blisters and when I only had a bad red eye.
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      The redness is often accompanied with pain in the same side of my head. Often it happened after sun exposure (in summer period), biking for long, swimming training. Sometimes the affected eye has a small morning discharge near the lacrimal gland (yellow). Sometimes when I put artificial drops, I get some white patches on my eye lids, like if the tears are bringing out of my eye dead/dried skin.
      Many of these things are still making me suspect of herpes.
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      By abdull81
      alsalam aliykom sisters and brothers
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      By TerribleAtUserNames
      Hi there, 
      Long time lurker, first time poster, and I'll keep it simple and condensed. 
      I've only signed up because I realize the depths of suffering some people are in, trying all sorts of desperate treatments, and I've basically been sitting on something that has taken me to near 0 outbreaks (hsv1 genital).
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    • Leedschick
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