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hereforhelp31

Confused: symptoms + negative tests (pics)

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hereforhelp31

Hi everyone,

Looking for some help and guidance. Had an unprotected encounter 8 months ago, and within 3 days had symptoms that suggested GHSV. Wont go into all of them, but suffice it to say there were numerous - localized to genital and oral regions, as well as general symptoms, like unprecedented neuropathy.

However, I did not present these to physicians in a timely manner. Eventually wised up and have taken something like a dozen IGG blood tests, and one Western Blot, and these all turned up negative for HSV2. (I have been HSV1+ for as long as I can remember, tho never had any symptoms but probably had some cold sores.) However, these genital (and oral and general) symptoms have continuously recurred, tho they have grown milder over time.  (This only continues my concern about GHSV, and makes me nervous that I wont ever identify it.)

Questions for the group to consider:

1) do these photos of bum (sores) and penis glans (pale white patches) look like GSHV to you?

2) how much faith can I put in the IGG and WB tests?

Thanks for any help

1.jpg

2.jpg

3.jpg

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WilsoInAus

There's nothing there that looks a great deal like herpes.

Provided the Westernblot test was 16 weeks or greater after the encounter then you can take the negative for HSV-2 as conclusive. It is a highly reliable test. 

What are your doctors thinking?

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Lisajd

I would agree too.  If tests show neg unless you get blisters id take it as negative.

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MoniqueLow

Get swab test if you can. It can be hsv 1. Did you receive oral sex? Have you visited dermatologist in a case it has different cause? What are the symptoms in your oral region?

Edited by MoniqueLow

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WilsoInAus
30 minutes ago, Lisajd said:

It could be either type if its hsv

As an oral HSV-1 infection, the chances of a genital infection are either zero or negligible.

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hereforhelp31

Thank you @WilsoInAus and @Lisajd and @MoniqueLow. Appreciate your prompt feedback.

I did receive, and give, oral sex during this encounter.

As for oral symptoms: Ive had recurring sores in the corners of my mouth. Attached is a picture, for an example. My dermatologist has called it angular chelitis, but the coincidence is pretty troubling. Ive also had some frequent stomatitis, and weirdly chapped-like lips. (How much this is just me being overly paranoid, I cant say.)

As for blisters: you're right, none appear in these pictures. But there's more to the story: at about the 6-wk mark post-encounter (after I'd basically accepted what my Drs were calling a wicked bout of balanitis), I unexpectedly squeezed some clear discharge out of my urethra, and then peeked inside and found what looked like white blisters. They were then painful - in the shower I would try to sray warm water in there to alleviate it. I was traveling so it took me a few days to have them seen (which was hard enough to do), and the STD clinic I stopped in and the urologist I ran to after would not swab and dismissed the concern. Then, at about the 10 week mark, I had a a strange blister appear on the side of my scrotum right where the scrotum meets the body. It wept clear fluid for a few days, and has since scabbed. Like an idiot, I picked at it and it took me about a week to have it swabbed, and it was tested by culture and not PCR. It came back negative for any HSV.

Unfortunately I relied primarily on primary care docs in the initial weeks after encounter. Most all said "doesnt look like herpes," but one or two said they couldnt rule it out, and urged me to rely on the test results (tho it was too early for an accurate blood test.) I finally began my own research in earnest, and I started seeing a dermatologist about 12 weeks in. Ive darkened his door about 10 times, and he's said he's never seen anything that looks like herpes.

But I feel differently - locally, and generally. I also know the mind is a powerful trickster. I want to find the elusive definitive answer.

Thanks

unnamed.jpg

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hereforhelp31

Also to answer's Wilson's question - yes, I waited til about 22 weeks to have the WB test. My last IGG was at 6 months. All negative. I also had a few IGMs in the immediate aftermath of the encounter (like I said - I unfortunately relied on primary Drs), and all of those came up negative too.

So if I have HSV2, he's been an elusive little bugger.

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MoniqueLow
46 minutes ago, hereforhelp31 said:

Also to answer's Wilson's question - yes, I waited til about 22 weeks to have the WB test. My last IGG was at 6 months. All negative. I also had a few IGMs in the immediate aftermath of the encounter (like I said - I unfortunately relied on primary Drs), and all of those came up negative too.

So if I have HSV2, he's been an elusive little bugger.

What do you mean by all negative? Both types of hsv? I would trust the test.

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hereforhelp31
1 hour ago, MoniqueLow said:

What do you mean by all negative? Both types of hsv? I would trust the test.

Blood tests have shown: HSV2 negative; HSV1 positive (I have been HSV1+ since at least 2012, with recent tests' numerical values in the 20-30 range - apparently indicating long-established infection).

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MoniqueLow
12 minutes ago, hereforhelp31 said:

Blood tests have shown: HSV2 negative; HSV1 positive (I have been HSV1+ since at least 2012, with recent tests' numerical values in the 20-30 range - apparently indicating long-established infection).

Reinfection is possible, you can still have ghsv 1. It's happened to me and others. When I got my negative hsv 2 results, I thought I was fine (believing that reinfection is not possible), but the doctor in std clinic told me I can still have genital herpes type 1 although I informed her about my long term (20y) oral infection. She was right, symptoms returned and now I have hsv 1 in both locations. Unfortunately. I don't say you have genital hsv 1 (before Wilson attacks me), but it's possible. The best is to get swab test on time.

Edited by MoniqueLow

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WilsoInAus

It happens exceptionally rarely and I have never seen it occur for a male. There is no documented evidence of this happening for a male.

And this is the issue @MoniqueLow, one careless comment by an uninformed doctor has created a delusional vortex. To be balanced, please point out that for yourself there is not a shred of evidence you have genital herpes as a second HSV-1 infection. The incidence worldwide is phenomenally low.

As I have pointed out, of the hundreds of thousands of cases where children (who would have the highest chance of reinfection) have presented with genital herpes, not one has ever been found to be a case of reinfection. Why dwell on an issue that is zero chance for maybe well over 99% of the population and leaving a 1 in 1 milllion? 1 in 10 million even 1 in 100 million chance?

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MoniqueLow
9 minutes ago, WilsoInAus said:

It happens exceptionally rarely and I have never seen it occur for a male. There is no documented evidence of this happening for a male.

 

Haha, of course you haven't seen any because you're not doctor or any medical professional. You're just guy who plays hsv expert behind the keyboard. 

Reinfection is possible and happens. Fact. 

And don't attack me, I don't say hereforhelp31 has genital herpes, but it's possible he has it. He needs more testing and protect his potential partner meanwhile.

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WilsoInAus

No that is the opinion of specialists such as Terri Warren and Anna Wald.

You haven't seen it either!

Reinfection may happen 1 in 1 million, 1 in 10 million or maybe 1 in 100,000 million. Fact.

 

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MoniqueLow

I really like what Dr. Halford wrote on his blog about general knowledge of hsv (answer to one patient). I hope he wouldn't mind I post it here. It explains all my doubts about all "hsv experts" and doctors (exceptions exist). What a great man... (we have lost unfortunately)

Hi Jim,

I wholeheartedly agree. Doctors need to start working with information about herpes from the 21st century, and quit relying on the outdated bullshit they were spoon fed in the 1970s. The 70s will forever be the heyday of disco, but not of herpes information. So many strong convictions were expressed about herpes in the 1970s and 80s based on little to no real data, and yet these ignorant (misinformed) viewpoints are what doctors predominantly learn today. In the 1970s, many researchers fervently believed HSV-2 was the cause of cervical cancer. Nice hypothesis, but it was dead wrong….cervical cancer is caused by human papillomavirus, not HSV-2.

And so it goes. Why do all doctors assume that only HSV-2 causes recurrent genital herpes…..because this is the story they told each other in the 1970s. Except, again, it is not true…..HSV-1 can cause recurrent genital herpes and neonatal herpes just as much as HSV-2…but don’t tell that to your doctor, because a textbook told them something different.

Time to bring doctors into the 21st century when it comes to what they learn about herpes.

– Bill H.

Edited by MoniqueLow

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MoniqueLow
11 minutes ago, WilsoInAus said:

No that is the opinion of specialists such as Terri Warren and Anna Wald.

You haven't seen it either!

Reinfection may happen 1 in 1 million, 1 in 10 million or maybe 1 in 100,000 million. Fact.

 

6 cases in 6 months only here on HC.... (Just one website of English speaking, internet using world, able to do hsv type test). 

Terri Warren got paid $90 to give false info to one of them. You do it for free at least, but still, your misinformation can be dangerous for partners and babies. Stop that.

Edited by MoniqueLow

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Lisajd

We still need to get back to the fact that test have proven that he does not have a genital herpes infection and if in such time he has an outbreak he can go and get it swabbed.  

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WilsoInAus
22 minutes ago, MoniqueLow said:

6 cases in 6 months only here on HC.... (Just one website of English speaking, internet using world, able to do hsv type test). 

Terri Warren got paid $90 to give false info to one of them. You do it for free at least, but still, your misinformation can be dangerous for partners and babies. Stop that.

How dare you. You have clearly lost it. Seriously girl please immediately seek psychological assistance!

That's an appalling accusation and slander against Terri Warren, moderators please address this, you simply must. Bless my soul this has stepped beyond any normal human behavioural decency and respect to others.

There have not been six cases in six months of reinfection, please stop spreading mis-information.

Moderators please stop this person from destroying the credibility of this website.

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MoniqueLow
11 minutes ago, WilsoInAus said:

How dare you. You have clearly lost it. Seriously girl please immediately seek psychological assistance!

That's an appalling accusation and slander against Terri Warren, moderators please address this, you simply must. Bless my soul this has stepped beyond any normal human behavioural decency and respect to others.

There have not been six cases in six months of reinfection, please stop spreading mis-information.

Moderators please stop this person from destroying the credibility of this website.

How dare that girl have ghsv 1 when Terri Warren and you say it's impossible?

Well, as I wrote hsv doesn't act as "experts" say, it does whatever it wants. There's such lack of research in this field (esp. about ghsv 1) and if there's, it's mainly ignored. Broken record playing still the same... Such as that great man wrote.

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WilsoInAus

You have overstepped the mark, violated multiple rules that will earn you a ban for little while. I think that will do you good. You need to reflect upon quite a few things, such as what did any of us do to deserve so much hatred in you? It all comes from fear, what is that fear??

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Atrapasueños

Presentame a terri warren para comprobarle que la reinfección existe y se informe más sobre el hsv 

@WilsoInAus

Introduce me to terri warren to check that reinfection exists and to learn more about the hsv ;)

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useless

I reinfected myself and I don't appreciate anyone saying it is rare. Not true. Our experience should not be ignored and that's not an opinion it's a fact.

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MoniqueLow

The problem is there's no reliable statistics. Will my case be reported/included in any? Will those 6 other cases or you @useless or you @Atrapasueños? No, so how we can trust any of the info regarding that? There are just assumptions.

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LillianPanos
18 minutes ago, Atrapasueños said:

Presentame a terri warren para comprobarle que la reinfección existe y se informe más sobre el hsv 

@WilsoInAus

Introduce me to terri warren to check that reinfection exists and to learn more about the hsv ;)

https://www.westoverheights.com/forum/herpes/herpes-questions/ you can read resposes she has given to ?s if you have questions there is a fee her website will explain

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