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    • Just a human being
      People say they want a cure but some days I wonder. If you express how stressful it’s been to support a small cohort through treatment with limited evidence most do not understand, when you ask for support or your struggles to cope with people’s trauma in treatment, or the ingrained societal perceptions, when you try to talk about the evidence it’s like you’ve done some evil thing! Apparently going against the grain to do what’s right is not worthy of human understanding or support! Expressing human vulnerability also appears to be incredibly evil! Damn! Any weakness or difficulties damn your just not worthy of care, support or respect!  After over a year in the space it’s so clear to me why there has been no progress. You are completely ostracized from the community for speaking out on this topic. How many are voiceless here too scared to speak? Yet we rarely hear from you. When you are successful you just disappear (Of course because we don’t hear from you you don’t exist! You must be a “conspiracy theory”. And even if you did then you would just be anecdotal and oh yeah that publishing evidence when they attempt to discredit it... hmm be interesting to hear the “conspiracy” stories on that one...)and I understand why as no one would listen to you anyhow! I hope for anyone reading this you get out alive lest you become a lost soul in purgatory stamping out hope for others due to confusion weaved in science and medicine.   
    • MikeHerp
      Not directly on HSV, but this general overview of where gene editing is, is a very good read. Recommend at least skimming it. A lot of excitement is building around gene editing.  https://67c5cfaa-bdc0-42a5-95c4-a822adc972c7.filesusr.com/ugd/80a6fd_a53ed12021a54292bb50ed1255e31118.pdf
    • Just a human being
      It s not really possible to ban anyone from this forum. Some people would just get back on and create a reign of terror in their wrath. I’ve seen it before. In the end everyone has to accept them and it teaches the group tolerance. Trust me I’ve been through the same feelings and I don’t want to act like I’m always Mr positive or anything cos I am Just a human being!And honestly we need to consider others welfare. They would be lost without this forum. I think if you took it away they would suffer serious trauma. It just takes a small amount of time to work around it! I have deep respect for @MikeHerp it takes a lot of work to get something like this off the ground! I think genetic research is very valuable and important!  I have duel interests human systems and health and agriculture. In the agriculture realm I’m not a big fan of say Monsanto’s brand of genetic research in application. I am a big fan of genetic research to inform plant breeding!  I think this is good work that will be insightful for humans in the future! Don’t take a few difficult people to heart! Trust me I do know it’s difficult.  I didn’t even read a single comment of theirs! Wow that’s big for me! Back to Fred Hutch....    
    • MikeHerp
      What I find interesting about this trial is that even though half life is 25 days, measurements of shedding and lesions will be done until nearly 4 months.  Maybe they expect the effect to last longer than the half life (maybe the binding effect survives longer than the half life). 
    • MikeHerp
      Message from FHC philanthropy:   “There is a small glitch with the website that we are working on. The page is still live, located here: http://engage.fredhutch.org/site/TR/PersonalFundraisingPages/General?px=1802786&pg=personal&fr_id=1574 I will need to request a new link to "fredhutch.org/hsv" for you on Monday, which is not working right now, but you can access the site from the link above in the meantime. I will let you know when that is fixed”
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339821

I need your opinions and support

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339821

 need help. I've been dating this guy for a few months and we have been getting along really well. I told him I was newly diagnosed HSV and he was initially accepting. But now he's Facebook messaged me saying it's fucked, I should have told him earlier (I told him date 5), and that a Nurse has told him you'd have to be stupid to sleep with someone with Herpes and he's now believing what she is saying. I'm completely broken.

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Nightmare7575

Send him as much information as you can and tell him if he really wants to be with you then read it,you might also find every non-risky sexual activity you two can do together and make a list tell him,how does this sound to you.We are asking people to take a risk on us,there is no doubt about it and we cannot say for sure 100 percent they will not get it .The nurse was 100 percent unprofessional and should have given him info to make an educated choice.  

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JBnATL

Ask him if he has ever had mono, chicken pox or a cold sore, if he has then he is a Herpster too. 

Here are two links to send him that will educate him about the risk he will face.  Unfortunately he is relying on a misinformed medical professional.

https://herpesopportunity.com/downloads/herpes-opportunity-disclosure-handout.pdf

http://hsvblog.org/herpes-simplex-virus-101/

If he doesn't come around to realize what he might lose, then it is his loss.

JB

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Lisajd

If he is angry with you because it took you till date 5 to tell him then what sort of person is this guy not very understanding although how long have you known each other for.  I would have to agree and ask him if he's ever had a cold sore before.  

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Dilan Melia
On ‎7‎/‎10‎/‎2017 at 8:30 AM, JBnATL said:

Ask him if he has ever had mono, chicken pox or a cold sore, if he has then he is a Herpster too. 

Here are two links to send him that will educate him about the risk he will face.  Unfortunately he is relying on a misinformed medical professional.

https://herpesopportunity.com/downloads/herpes-opportunity-disclosure-handout.pdf

http://hsvblog.org/herpes-simplex-virus-101/

If he doesn't come around to realize what he might lose, then it is his loss.

JB

Thank you, after reading this i feel a much better feeling

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Wtfisthisplease

I work with a lot of nurses who have no clue. I just took a CPR renewel course with a nurse last night and questioned how she even received her license, she was that lost. The guy you're dating doesn't sound mature or well informed at all. You shouldn't have to sell yourself to someone to have sex with them. Be open and honest and the right person will accept you, for you.

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