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    • Voyager2
      Sure hope this pans out. 
    • Voyager2
      Don't forget there are two promising vaccines on the prophylactic front (but only pre-clinical): The Trivalent vaccine worked well on guinea pigs:  https://pubmed.ncbi.nlm.nih.gov/32347775/ The Einstein (Xvax) vaccine also has a ways to go: https://x-vax.com/ The fact HSV529 is in yet another clinical trial is good news for herpsters. 
    • Davrk8
      thank you for the info. I am uncircumcised. I applied some clotrimazole cream during the last outbreak I noticed, which seem to do the trick (around a month ago). But now, there new dots are appearing at a different location on the glans. Wasnt sure if balanitis can come back so soon or if it could be something else. 
    • Josse
      Looks like mild balanitis. If you are uncircumcised then thats normal every now and then due to accumulation of yeast and the irritation of the foreskin
    • MikeHerp
      I think the simple reason is that this is a fund raiser that was started by our community rather than by Fred Hutch.  Or rather, FHC started it in response to our request.   I still think they should somehow feature it in their pages.  But anyway, that's just how they do it. Keep in mind that FHC's main focus is curing cancer.  It's a cancer research institute.  They might feel that putting stuff on their website that isn't directly related to cancer might give people the impression, especially cancer cure donors (who are by far the main donors to FHC), that FHC is losing its focus. So we have to work within these limits.   However, I do draw strength from the fact that FHC has tried to help us with the fund raiser.  Among others: 1.  When the new research paper is released, FHC has gotten an agreement with a prominent sexual health blogger, to promote the research and the fund raiser. 2.  There is another potential promotion in the works that might get back on track if the US is able to get the coronavirus under control. So FHC has actively helped us to promote the fund raiser.
finallysomeanswers

urinary retention

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finallysomeanswers

hi all.

so my first outbreak was around two weeks ago, and as if that experience wasn't traumatizing enough, i am now sufferring from urinary retention (cannot pass urine at all). let me give you a little backstory: 3 days after my unprotected sexual encounter when i got infected, i began noticing symptoms. it started with a strange tingling/burning feeling in my vagina. this started slowly progressing into bumps, sores, ulcers--everything you would never want to see on your vagina. so i went to the dr and she prescribed me with valacyclovir for 10 days. the first few days on the meds were hell and i thought the pain/discomfort would never end. peeing felt like acid pouring out of my body. luckily this lasted for only a week. i also thought i had a uti due to my urine coming out in two streams and having such difficulty passing (my test results hadn't come in yet at this time). fast forward to day 10 of the meds....all symptoms of my outbreak were gone. no more sores or burning or pain!!! i survived my first outbreak. all that was left was the urinary incontinence and this strange tingle of my nerves between my butthole and vagina and my urinary incontinence. my urinary incontinence quickly became retention. i went to the ER only to have them place a foley catheter inside me. they drained all my urine on site and i thought okay you're good to go. little did i know, a bag of my own piss would be attached to my leg for one week. after the week, i am to see my urologist where they will remove the catheter and see if i can pass on my own. if not, it's back to the catheter for another week.

although this seems like more of a rant, i rather just want to know has anyone else experienced this terrible complication!? i say complication because when i asked one of the ER nurses if this is like a symptom they said no it's more of a complication and you kinda got the short end of the stick:( back to my question, i just didn't see a full forum on urinary retention with hsv 2 so i thought i should start one. being as uncommon as it is, there are still a great deal of people who deal with this issue. 

also, if you have had this issue with your first outbreak, has it ever come back? how frequently? 

please let me know! new to this whole herpes thing and i would at least like to know what i'm getting myself into. thanks for reading this whole fucking rant if you're all the way down to this point :)

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Cupcake5

Hi. I had this at first outbreak. It was awful. Hospital, drs even urinary specialist didnt know that the herpes was causing this. Its awful. I honsestly dont know how im going to live with this disease 

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finallysomeanswers

hi, it really gets better. i've only had two minor outbreaks since this post. i, however, am on daily antivirals which eases them. since then, i haven't had any urinary retention problems again and i sure hope i don't have to deal with that ever again   but it gets better 

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AloneForever

Yes 3 years ago, (just passed my 3 yr herpe anniversary!) I got the same thing.. Wore a foley for a week, then what my urologist had to do was dilate my urethra. (painful as F) But I was ok since. I still have paranoia over all that though and feel sometimes I may have incontinence and weird sensations at times since. I haven't been the same since at all. But it was the worst and scariest experience of my life having urinary retention.

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Dopa.lene
On 5/17/2018 at 9:39 PM, AloneForever said:

Yes 3 years ago, (just passed my 3 yr herpe anniversary!) I got the same thing.. Wore a foley for a week, then what my urologist had to do was dilate my urethra. (painful as F) But I was ok since. I still have paranoia over all that though and feel sometimes I may have incontinence and weird sensations at times since. I haven't been the same since at all. But it was the worst and scariest experience of my life having urinary retention.

Is it possible the burning sensations is from ruptured connective tissue? 

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finallysomeanswers
On 5/17/2018 at 9:39 PM, AloneForever said:

Yes 3 years ago, (just passed my 3 yr herpe anniversary!) I got the same thing.. Wore a foley for a week, then what my urologist had to do was dilate my urethra. (painful as F) But I was ok since. I still have paranoia over all that though and feel sometimes I may have incontinence and weird sensations at times since. I haven't been the same since at all. But it was the worst and scariest experience of my life having urinary retention.

I am very sorry you had to go through that as I know how it feels and I'm right there with you with the paranoia; I can't help but think every slight difference in urination means I'm gonna need another catheter. It's hard to distinguish which symptoms are real and which I've made up in my head. Like right now, I am able to urinate just fine, but I get a sense of incomplete bladder and like I have to pee all the time. I am also feeling this ticklish sensation in my urethra. Not sure if these are warning signs of an outbreak or UTI symptoms as I am more prone to getting those too. I feel like going to urgent care to get a urine test and rule it out but I don't know if I'm being paranoid or not!!! Maybe you've had these symptoms before and can help me?

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AloneForever
7 hours ago, finallysomeanswers said:

I am very sorry you had to go through that as I know how it feels and I'm right there with you with the paranoia; I can't help but think every slight difference in urination means I'm gonna need another catheter. It's hard to distinguish which symptoms are real and which I've made up in my head. Like right now, I am able to urinate just fine, but I get a sense of incomplete bladder and like I have to pee all the time. I am also feeling this ticklish sensation in my urethra. Not sure if these are warning signs of an outbreak or UTI symptoms as I am more prone to getting those too. I feel like going to urgent care to get a urine test and rule it out but I don't know if I'm being paranoid or not!!! Maybe you've had these symptoms before and can help me?

Omg I am the same way.. Im at the start of another outbreak as I havent been taking my valtrex regularly and I've had this horrible disease for 3 yrs this May, and I dont udnerstand why without meds, its getting worse and worse every month and i'm getting sicker and sicker. Not sure if this is normal. I am now having a hard time going to the bathroom is I am swelling down there. And now I am getting myself worked up if I'm gonna need a catheter again if the swelling becomes too much, or my new one I'm freaking myself out is what if it travels to my brain and i get herpes meningitis since the reactivation is coming back so bad. Its freaking me out this is so horrible.

I do get a weird ticklish sensation in my urethra too! is it almost like twitchy feeling? It may be an outbreak coming. I think I had it the other day before this mess started. My outbreak now and a few weeks ago started w a bad headache, itchy, tired, now im swelling and in pain down there but no sores. This is crazy. But I also get a feeling sometimes if incomplete bladder also! And Im not sure what that is. But I havent been the same since.. I can only guess our nerves down there have been damaged a bit, and thats why we feel "off" bc ive gone to urologist in the past over that feeling and I'm fine.

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AloneForever
On 5/20/2018 at 4:40 AM, cubensiis said:

Is it possible the burning sensations is from ruptured connective tissue? 

That's what I'm thinking, maybe damaged nerves from the virus or something. I really hate this virus and wish I could honestly get it out of my body. It's causing me so many problems.

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Quest

I am no doc, but my 2cents is that the virus can sometimes overwhelm the immune system and cause secondary infections in immunocompromised ppl. I am barely learning that can also cause urinary tract infections, which can go to the bladder if untreated. (very cloudy urine) Not saying this is the case with anyone, but if you believe it to be see a doc or try Black seed oil. Plus, always urinate after sex right away to take care of one possible challenge. I can't vouch for it, but I did read that it will stop bacterial vaginosis in it's tracks. It is easy to get if our PH is off, use test strips, they come in a roll at The Vitamin Shoppe.

Black seed oil amazon click here 24.00 and it will last my family a yr. I take 1 t upon awakening and bedtime  for 10 days, with a snack/water to kill the taste.

If you hate the taste of a mild oregano get gel pills instead, but it is much more expensive. 

ETA: You are correct, it can be damaged nerves, but make sure that is the diagnosis. how often does it occur? Idk

Edited by Quest

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WSX

I too am feeling like I have to use the bathroom constantly. I also drip a lot more urine from my penis. I'm starting to get soreness in the area where the ureters are. There is also a burning sensation in my urethrae. 

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