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Hallow

PLEASE HELP SOMEONE ..... Been more than 4 months and i still have continuous pain

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Hallow

Hi everyone......i hope some of u remember me from the chat room

I cried last night with pain and finally decided to write...

i just turned 25 2 days ago......for the first time i didnt go out to celebrate.....

My Exposure - happened on 4-Aug-2017 (Unprotected sex with a stranger i met via an app)

My guilt - I let my lust take over my health.....i had no knowledge about stds other than HIV and Hepatitis

u can judge me all u want but i am not the kind of person u would be thinking i am while u read this post.......i was very happy and healthy before this incident..

Onset of symptoms - 1 week after exposure (Chills, diarrhea, light fever, stomach ache, headache, skin tingling and wierd blisters on my skin, pain in lymph nodes, swollen lymph node behind ear, sore throat)

I would like to start with the Outbreak....i started getting these blisters 2 3 weeks after exposure....they were fluid oozing blisters....pics attached below....

5a3e145481314_Initialbreakout...1.thumb.jpeg.cd5eca486d864082410ab6b4e64c36af.jpeg

5a3e1536581ba_initialbreakout...2.thumb.jpeg.06529ce46e9bf1115e301aea86bbeacb.jpeg

5a3e1572bfd5b_Initialbreakout.thumb.jpeg.81f3573763be8293c3d63849cae2f44a.jpeg

i had an outbreak recently on my leg below the knee....pics below

5a3e164fdbed3_LegOB.thumb.jpg.513b5bb1cb584fd0d72b72dbe119740a.jpg

 I went to my GP and got some blood tests done.....(Everything was normal except increased bilirubin but it came back to normal after a week)....Report attached below

Sep/2017 -

 Nakra...1.thumb.jpg.41767677a7f7d3a340a61e61257841f5.jpgNakra...2.thumb.jpg.c878718e6be1d51b7c249c6f7cc28e42.jpgNakra...3.thumb.jpg.b393f3056f4ce8487d038aa8116894ff.jpg

Nakra...4.thumb.jpg.a9df12102fa3adc730b71065cbff9cc1.jpg

Nakra...5.thumb.jpg.508376e1ee7d294d669f65537726d02a.jpg

Nakra...6.thumb.jpg.5d176d9e90dc3f6872a7b36707da328a.jpg

Nakra...7.thumb.jpg.f926a24f51347f1ff50fbbe572559bf8.jpg

Nakra...8.thumb.jpg.65c10b0853de534224c0d0468fda606d.jpg

Nakra...9.thumb.jpg.32f902d1a2e1238f33606d28777cd164.jpg

Nakra.._10.thumb.jpg.8341b6adc54d96d7ba6b89af22b3966e.jpg

Nakra.thumb.jpg.20fd2853a15f7a458c5c87c55474ce52.jpg

 

I started getting headaches ...mild in start and now they are very severe....i got tested for stds after 2 months of exposure

Oct/2017 - 

Monga...1.thumb.jpg.a399b713c190c3f8594fa108b7edee03.jpg

Monga...2.thumb.jpg.da6f531daae9f211a72eddc95990218b.jpg

Monga...3.thumb.jpg.abd325776914dfc2d1e87586bed43400.jpg

Monga.thumb.jpg.790826cfea2bee648d35278eca711637.jpg

Still having a really bad pain in head and stomach with this wierd burning skin.....like something is pinching from inside of the skin....

Again i got the type specific test done in november...results below

Nov/2017 - 05-Nov-2017.thumb.PNG.97ef1143791e9c2d30e28a319f2f4f38.PNG

 

I never had cold sores in my life......whatever it is i was still fighting.....

In the month of december i had a severe head ache and stomach ache......i got a std panel and blood tests.....i had an xray(normal) .... ultrasound (normal)....and an endoscopy (i found something)........please see the reports below

Dec/2017 - Dec..1.PNG.8db3e14442d58afe7092d7172fac8912.PNG

Dec..2.PNG.38930cfa63a8981040ca2f6d6a81139d.PNG

Dec..3.PNG.231492d8a5f2c60b400f69710a229082.PNG

Dec..4.PNG.4a7773ec6fb5dd795524dd02de2537e7.PNG

Dec..5.PNG.7d089d5a8ac58b33dddfaa9aca399bc8.PNG

Dec..6.PNG.a54cb60e58b4aa68465203e5cb74539a.PNG

Dec.PNG.0fa5a54a259ac06ed6579c9f19b651bb.PNG

PSRI.thumb.jpg.b1ec4f91cb867f078c1ce25d140676a1.jpg

PSRI...1.thumb.jpg.e7a1f2b63876cda6fd3537b64e201ad1.jpg

If u could see those red red dots inside stomach....i had the same on my hands....blood reds dots

Right now i m suffering from a severe headache which starts as soon as i wake up and grows up as the day go by

i get the pinching/tingling/burning feeling on my head, eyelids, ears, hands, legs, back.....i have had obs at all these places...

My life is completely changed ... i am no more the person i was before...i cant feel myself anymore except this pain.....i am a fighter but i think i am gonna lose this battle soon....day by day i m getting weaker....i have tried everything .....i have never been on suppressive therapy since it is not that useful and i m afraid of side effects....

i m thinking of quitting my job coz recently i started crying out of pain in front of my boss (got emotional)...:(

this was my first experience with sex and i never thought id be suffering like this afterwards....

i have never said it before but i m literally begging from every person i meet....i m begging to this support group too ....please help me ....

nowadays instead of hoping for cure i am continuously searching for poisons which would make me go away quietly and painlessly ...i cant suffer like this ...this is hell and my body is on fire...

please if any cure comes i would like to be the first lab rat for experimentation .... i feel helpless and i dont have much money left...i m in india and these docs dont know what am i dealing with....:(

not scared of death just cant deal with this suffering

please dont think i m saying all this out of depression anxiety or anything else.....its just pure pain i m expressing to u people.....

Hope u understand and sorry for the long post.....

Nakra...10.jpg

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Jay2255

Hallow, sorry for what you ate suffering. It seems that you are experiencing many similar symptoms to myself.

@BartSimpson is also suffering similar.

Surely there must be others here who have experienced similar.

Edited by Jay2255

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Jay2255

Theory here but I wonder if those who do not have external outbreaks are having internal outbreaks and as a result shedding internally which causes more viral load in the body hence longer suffering. Possible?

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Hallow

Thanks for understanding @jay2255....

I havent ate anything today due to severe stomach ache...i feel like vomiting .... I have a bad headache too..

Right now i m just lying on my bed and suffering from intense pain.....and crying with pain....seen 5 doctors and no seems to help...:(...

I wish i had more knowledge about it before i did that stupid thing.....:'(

I will have to end the suffering if someone doesnt help.....i am more afraid of this virus rather than dying

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Cas9
2 hours ago, Jay2255 said:

Theory here but I wonder if those who do not have external outbreaks are having internal outbreaks and as a result shedding internally which causes more viral load in the body hence longer suffering. Possible?

No Jay :)

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cloud2017

Hallow,

I think you should not stop anti viral medicines just because you are afraid of side effects. Also take some pain killers if the pain is excruciating. Please calm yourself down. They always says first outbreak is worst. Never give up.. There is life beyond all this.

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Hallow

@cloud2017.....man u cant even imagine how hard am i fighting with this thing.....i have never cried in my life even after i had my gall bladder surgery.......at that time i was walking 6 hrs after the operation......but this pain is different....and this burning sensation is worst...makes me cry everytime i feel it......

I havent had any antivirals since i contracted it.....but now i think i have to take it ....cant meet doc since tomorrow is a holiday and mon is Christmas....:(

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Hallow

Today is the worst day of my life ....right now i cant even walk my legs are killing me with pain.....:'(

And whatever u people say i know my body really well....i m 100% sure this an internal ob......i can feel the tingling on my organs and then the sudden pain in that area after a day or 2

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cracked

@Hallow buy some olive leaf extract if you can! Hang in there! There are many things being worked on right now and some of them aren’t far away!

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cracked

I don’t mean to take over your post, but during my endoscopy/colonoscopy in October I had mild erethyma in my stomach, which the GI specialist couldn’t explain why. I haven’t been able to eat normally ever since all this happened. I am surprised to see your stomach had inflammation too. I wonder why this is the case for both of us?

 

 

D348BB35-A6F9-4636-9F25-8B930ADCAFEC.jpeg

Edited by cracked

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Rational Vaxxer
5 minutes ago, cracked said:

@Rational Vaxxer @RVX Patient and Investor Do all these issues seem viably caused by HSV? And will Theravax help anything if it is? 

@WannaCry @WilsoInAus

I am not a doctor but I can tell you that many who suffer from HSV can have similar issues. Could it be caused by HSV? its possible. Many people can get digestion issues but as far as a definitive diagnosis, I couldnt say...They should have done a swab. Could it be side effects from antivirals?

Edited by Rational Vaxxer

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Hallow

Even if i could get some temporary relief from antivirals i m ready to take it.....i cant get it they say u need a prescription for it....i hope that even my worst enemy's dont suffer from it...its that bad right now...worst part is docs do not have a fucking knowledge abt it...:(....sorry for using bad words but this thing is crazy.... N they give that shitty smile like its some minor infection.......my first doc laughed at me and said that u have to pay extra for the extra time u take for counseling....and the idiot googled the cdc site and reciting facts from it which i already know....:(

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Jay2255

This cannot be that uncommon that doctors cannot know what to do. There are atleast 3 people on this site now experiencing very similar issues. Here we are, almost 2020, and we have this condition which doctors are clueless about. It simply boggles the mind.

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Jay2255
35 minutes ago, Hallow said:

Even if i could get some temporary relief from antivirals i m ready to take it.....i cant get it they say u need a prescription for it....i hope that even my worst enemy's dont suffer from it...its that bad right now...worst part is docs do not have a fucking knowledge abt it...:(....sorry for using bad words but this thing is crazy.... N they give that shitty smile like its some minor infection.......my first doc laughed at me and said that u have to pay extra for the extra time u take for counseling....and the idiot googled the cdc site and reciting facts from it which i already know....:(

You need to go to another doctor  and demand a prescription. It is inhuman for them not to prescribe it to you simply because you don’t have typical blisters. Show them your positive results for HSV-1.

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Scooby2112

@Hallow your hsv1 was positive at 8 weeks.  That gives high probability that this is an older infection, especially since your antibody level was so high.  Only about 50% of people would have antibodies by then from a recent exposure, and most likely not as high as yours.  

That would then aso make this an oral HSV1 infection.   

Regardless of the above statenents which I know you will dismiss, cause you know your body and can tell when a specific virus has entered And where it's residing regardless of tests. 

The symptoms and pictures of sores you showed resemble nothing of hsv.  

Hsv resides in a single nerve ganglion.  Unless you are immunocompromised which your tests show you are not, so you likely have it in one location not eyes, hands, knees, inside your gut etc.  And most likely this is On your lips.  

I am not saying that you are not experiencing pain.  I believe your pain is likely partially from the physical reactions your body is having from all the stress and anxiety Resulting in a build up of cortisol which can cause erthymia (redness/ swelling) In addition you chronically contracting muscles in Pelvis and abdomen which prevents proper lymph flow along with nerve compression and burning.  

I urge you to pay the $10 to read a headache in the Pelvis on Amazon Kindle.  

I also urge you to research those responding to your posts driving you further into a spiral of pain, anxiety as most that are responding also have been proven to not have HSV likely suffering from similar genital focused anxiety.  

 

 

Edited by Scooby2112

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Scooby2112
15 minutes ago, Jay2255 said:

You need to go to another doctor  and demand a prescription. It is inhuman for them not to prescribe it to you simply because you don’t have typical blisters. Show them your positive results for HSV-1.

I am not opposed to you trying antivirals.  Go to a different doctor and show them your hsv1 blood test and tell them you get frequent outbreaks and want to try episodic or suppressive therapy.  

I don't think AVs will help you because the symptoms you describe are not HSV related but perhaps taking the AVs will help prove this to you.  Antivirals have been proven to remove neuralgia caused by hsv.  But have no effect on neuralgia not caused by hsv.  

Antivirals also have little to know sideeEffects.  People have taken aclovir for 25-30 years straight and have had no issues.   Drink lots of water with them to prevent dehydration

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Scooby2112

Hsv symptoms are localized other than for primary where flu type symptoms also occur.  Then all symptoms go away and you only get localized symptoms at the area of infection.  Not symptoms through your intestinal tract hands and knees. 

 

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Jay2255

Can anyone offer hallow any advice?

Edited by Jay2255

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Hallow
8 hours ago, Scooby2112 said:

@Hallow your hsv1 was positive at 8 weeks.  That gives high probability that this is an older infection, especially since your antibody level was so high.  Only about 50% of people would have antibodies by then from a recent exposure, and most likely not as high as yours.  

That would then aso make this an oral HSV1 infection.   

Regardless of the above statenents which I know you will dismiss, cause you know your body and can tell when a specific virus has entered And where it's residing regardless of tests. 

The symptoms and pictures of sores you showed resemble nothing of hsv.  

Hsv resides in a single nerve ganglion.  Unless you are immunocompromised which your tests show you are not, so you likely have it in one location not eyes, hands, knees, inside your gut etc.  And most likely this is On your lips.  

I am not saying that you are not experiencing pain.  I believe your pain is likely partially from the physical reactions your body is having from all the stress and anxiety Resulting in a build up of cortisol which can cause erthymia (redness/ swelling) In addition you chronically contracting muscles in Pelvis and abdomen which prevents proper lymph flow along with nerve compression and burning.  

I urge you to pay the $10 to read a headache in the Pelvis on Amazon Kindle.  

I also urge you to research those responding to your posts driving you further into a spiral of pain, anxiety as most that are responding also have been proven to not have HSV likely suffering from similar genital focused anxiety.  

Thanks for sharing the knowledge man......to tell u the truth i was also leaning towards an older infection.....but i have done extensive tests for all stds.....maybe because nothing showed up in the tests is making my mind to lean towards hsv......

If its not hsv related then what is it ...... I have been to several docs and they do not have a clue as to what is hapenning with me...:(

Are there any other infections that could pass via sex.....i mean my partner said she never had any health problems in her life before....

And man its not anxiety i must tell u that coz i have had anxiety issues in the past and i know what it feels like....but this is different

For the paat 3 days i m in my bed cant even walk ... I go to docs they just see my results and dismiss me...:(

I simply do not know whom to ask for help

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Scooby2112

@Hallow again I think you should read a headache in the Pelvis.  The first chapter of that book describes some of the pain your having and it's a result of unconscious tightening of pelvic and abdomen muscles.  Some of the people complain of not being able to walk or sit.and it's progressive it silently builds slowly and then bam your so far into it and have no understanding on how to get out of it.  

I am implying to look past an infection to a chronic musculoskeletal issue.  

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Hallow

:(...what do i do then i mean is it treatable..?

Those severe headaches i m getting ...is it because of it...?

Last week it was not this much and whenever i got it i used to run in park in frustration thinking that it may help....but no luck....its getting worse....:(

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      Did ldn work.
    • honkschonks
      I wonder if people in the military are tested for hsv, because the general public isn’t. You have to specifically ask for it and many doctors don’t even see the point because it’s “so common”. It’s very possible he has it and has no symptoms or very mild random symptoms. Sorry to hear what you’re dealing with. It seems like women’s symptoms are worse than men’s.
    • WilsoInAus
      No that’s not the issue at all. The absolute vast majority of nerve pain is not caused by herpes. Hence it cannot be used to reverse engineer a diagnosis of herpes. That is exceptinally dangerous and we must do all we can encourage proper diagnosis.
    • ill47
      Do you have an APOE4 gene? I do. I also have HSV-2, which so far hasn't been linked to dementia. Itzhaki previously found that cold sores occur more frequently in those who carry a gene variant that confers increased risk of Alzheimer’s called APOE-ε4. "Our theory is that in APOE-ε4 carriers, reactivation is more frequent or more harmful in HSV1-infected brain cells, which as a result accumulate damage that culminates in development of Alzheimer's," she said.

      So basically, if you carry the APOE4 gene and have oral HSV-1, you chances of dementia could be quite high. But if you have APOE4, your chances of dementia were higher already. Look, 80% of the population has HSV-1. 80% of the population does not get dementia. You also seem to skip over the fact that antiviral treatment can reduce the increased chances of dementia to almost nothing. "The striking results include evidence that the risk of senile dementia is much greater in those who are infected with HSV, and that anti-herpes antiviral treatment causes a dramatic decrease in number of those subjects severely affected by HSV1 who later develop dementia," Itzhaki said. The data from Taiwan only applies to the rare severe HSV1 or VZV infections. The next step will be to study dementia rates amongst people with mild HSV1 infections, including herpes labialis or mild genital herpes. "Considering that over 150 publications strongly support an HSV1 role in Alzheimer's, these Taiwan findings greatly justify usage of antiherpes antivirals - which are safe and well-tolerated - to treat Alzheimer's disease,” Itzhaki said."They also incentivize development of an HSV1 vaccine, which would likely be the most effective treatment." I think it behooves you to do your research and actually read the articles you are posting before pulling the alarm and trying to scare people. 
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