Jump to content

The first is the worst, right?


FreshPeppered

Recommended Posts

Hard to know where to start. 

Hi, I've been newly diagnosed, still waiting on the swab cultures to come back as to what type. I am taking valacyclovir 1gm twice a day. I came down with strep that I caught from taking care of my daughter. I thought I had a bad yeast infection prior to this and when the strep started, so did these little ulcers. Just one on each labia. Man, did they burn when I had to pee. What the heck, never had anything like that before. Must have been from the yeast infection, maybe the skin is raw? My throat was swelling to the point I couldn't swallow my saliva, I started getting high fevers, flu like symptoms, terrible lower back aches. I was miserable. The doctors gave me penicillin, z-pack, and a steroid... 

yeah, a steroid. I didn't know at the time.

I still wasn't better the next few days (turns out I had strep pneumonia) and they put me on another antibiotic which I attributed all the funk in my junk was due to these antibiotics. Well, when the steroids finally got full into my system I woke up with a horrendous mess downstairs. I knew this was more than a yeast infection gone bad. I made an appointment with what voice I could muster through the swollen, painful throat and asked for a female MD. She was concerned about my throat and wanted me to go to the ER after the appointment was over and make sure I didn't have an abscess in my tonsils. Cool. 

When she got the tools and took a look, I asked the dreaded question, "is it herpes?"

"yes. I am so sorry, but I think it is. We have to swab the sores and this will only hurt a little. I will have to see if there are any internal sores as well." 

Awesome. 

I am unsure at that point if my tears were more from the pain of the speculum and swabs or the realization that I was just told I have a disease that has a huge amount of stigma and a life long sentence. Her next sentence killed me, "you could be pregnant, your immune system has to be really low for you to have such a terrible outbreak with your throat, I am concerned." I have an IUD.... negative test. Whew. 

I couldn't stop crying. I felt such a surge of emotions. The doctor tried to comfort me but honestly I wasn't hearing any of it. I just wanted to die. 

As a medical staff member of the emergency room, there was no way I was going to get my throat checked after this in the ED. NO FREAKING WAY. If my coworkers read this and saw the medication, they'd know. Everyone would know. I wasn't ready to walk around with a red letter attached to my chest yet. Nope. I would rather die at home. Thanks. 

I didn't die, although, this is so painful, I wish I would have at times. Emotionally and physically painful. 

First person I told was my significant other whom I have only been dating 4 months now. Then I told my best friend. That was it. Both were reassuring and supportive. I am lucky. When I finally got the strength to tell my past partners, only a few which makes this suck worse, they all took it respectfully and were thankful that I was honest with them. I was surprised. I thought I would get so much backlash, or name calling. One even offered to come over and comfort me... so weird. Not what I expected at all. 

The first few nights on valacyclovir I experienced itching on my torso, pain everywhere, sweating like crazy. Then after a few days, weakness, depression, dizziness, I lost a few days, missed 6 days of work. My regimen was to sleep, pee basically doing a handstand, cry and wince from attempting to wipe, give up, shower it off, soak in the tub, air dry or use the blow dryer to keep the area clean, sleep more. Cry. Repeat. Now I feel as if I have lost some of the fine motor function in my lower right face. My smile is crooked, I taste metal, everything smells or tastes funny. I don't want to stop the medication, I want this to go back and hide in my spine. 

My throat swelling is finally going down, and most of my sores are healing now. There are a few that are still so painful I am afraid to go back to work just yet. I can't hop in a shower after I use the restroom, or soak in epsom salt to keep bacteria at bay. What do I do? 

I am super weak, I can hardly walk far without getting winded. I feel like I'm 90 and I'm only in my 30's. 

Anyways, I needed to vent somewhere, to someone who understood what I am going through. If you have any advice, anything helpful at all, I am all ears and welcome it.

Thank you for listening to my first outbreak. The worst outbreak, right?

Link to post
Share on other sites

Sounds like you got caught between a couple infections causing what should be the worst outbreak to be even more so.  Add in steroids and it was a perfect storm. 

Sounds like you are healing and I would recommend staying on the antivirals at a suppressive dose.  This will hopefully minimize any recurrences while you pick yourself back up again over the next couple months.  

Depending on the type will give you some additional knowledge about the potential for recurrences.  

You can take ibuprofen and Tylenol alternating every  3 hours.  This can help a lot with swelling and pain.  

 

Link to post
Share on other sites
3 hours ago, Scooby2112 said:

Sounds like you got caught between a couple infections causing what should be the worst outbreak to be even more so.  Add in steroids and it was a perfect storm. 

Sounds like you are healing and I would recommend staying on the antivirals at a suppressive dose.  This will hopefully minimize any recurrences while you pick yourself back up again over the next couple months.  

Depending on the type will give you some additional knowledge about the potential for recurrences.  

You can take ibuprofen and Tylenol alternating every  3 hours.  This can help a lot with swelling and pain.  

 

Thank you so much! I should have the results tomorrow when the holiday is over. 

Link to post
Share on other sites
11 minutes ago, Newtothisandscared said:

It does get better, trust me. I had about 3 rough weeks but then it gets better :). We are all here for you :).

Thanks for helping share your experience.  Can you describe after three weeks did you feel back to "normal" physically?  

How long are you in? Any repeat recurrences? If so how were those in comparison to the primary?

 

Link to post
Share on other sites
IcantThinkofaName

my first Ob was similar with the bad throat infection and a UTI. I was given a bunch of  different antibiotics too and none of the drs thought the UTI and throat infection was related to the genital herpes but it was. I was in some foreign country too with no heated bathrooms in the coldest winter in 40 years. Bonus! I really wanted to go home but I was too sick.

Order of operations: I had a UTI, then the sores, then the bad throat infection, then more sores.  3 different antibiotics, then Acyclovir. the antibiotics then gave me a terrible yeast infection too. Yay!

4 hours ago, FreshPeppered said:

My regimen was to sleep, pee basically doing a handstand, cry and wince from attempting to wipe, give up, shower it off, soak in the tub, air dry or use the blow dryer to keep the area clean, sleep more. Cry. Repeat. 

yes, that sounds about right. 

 

Are you sure you didn't just catch it from your new BF? It sounds like the first OB/new infection, not one that you already had. I suspect you got it from him if you had sex anywhere from 3 days to 2 weeks from infection.

The first one is the worst, but I've had one recently that was pretty bad and took 2 weeks to heal , burning,  sore throat...  just without the fever and spots on tonsils. 

it sounds like you did everything  you could do to try to make it  as "pain-free" as possible. epson salts/showering off

 HUgs your way. :heart:

Link to post
Share on other sites
Newtothisandscared
31 minutes ago, Scooby2112 said:

Thanks for helping share your experience.  Can you describe after three weeks did you feel back to "normal" physically?  

How long are you in? Any repeat recurrences? If so how were those in comparison to the primary?

 

My first outbreak was in December of 2016. I was on vacation when it started and as soon as I came home, about 5 days into my outbreak, I was swabbed (i was not sure if it was folliculitis or herpes)  My boyfriend has been getting cold sores for 40 years and when we engaged in oral he had no sores or prodrome, but obviously the virus sheds asymptomatically. I shave completely down there which also increased my odds. GSHV1 was the swab result. The first week was difficult with sores of different stages and fatigue and painful urination. I was on a 10 day regimen of Valtrex 500mg twice a day. It took time and supplements. I used zinc and bee propalis topically on the sores which was messy but helpful. I had prodrome for quite a bit after as well as swollen groin lymph nodes. I had 2 other outbreaks after, one around Easter and one in July. Much less painful, less sores and less overall fatigue/malaise....it is very much a psychological hurdle as well. Mind over matter :).

Link to post
Share on other sites

Sorry to hear your diagnosis. I too have been getting the metallic taste but before I even took any medication.

Ive also been getting a burning throat but not sure how that can come from ghsv2

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Single ➵ You may like to try the Dating App

  • Similar Content

    • BookMonster
      By BookMonster
      Hello, I found this website when trying to figure out if a rash I have is herpes or not.
      The reason herpes came to mind is that my boyfriend got "diagnosed" with genital herpes last summer. The reason I put it in quotation marks is that there was no swab taken. He described a mild rash to a nurse who ensured him it was herpes, and didn't even want to take a look at his genitals. He convinced her to look and she took a quick glance and said again that it was "hsv type 2." So just a very unprofessional response, based on little evidence. She gave him a short course of antiviral and that rash quickly disappeared for him and he has never had another outbreak.

      I found that I had a rash on my mons pubis early yesterday. I wanted to ask here for your opinion because this board seems very friendly and ready to help. And I'm calling my GP tomorrow to try and get an appointment but because of Corona they have been more busy than usual, so I'm worried I might not get an appointment while I have the rash. 

      I'm 26 and this would be my first herpes outbreak if this is herpes. I've never had symptomatic cold sores that I know of. At first I thought it definitely herpes, because of my boyfriend's "diagnosis" but after looking through photos and reading more about herpes I became more unsure. During a shower I cut my pubic hair to see the rash better. It was all red and spread over the area pictured.  It was sore and burning before the shower and after, but I had been scratching before, and cutting the hair during the shower. and But then in the late evening it had "scaled" over and looked quite frankly like seborrheic dermatitis, with no itching. I have dealt with that condition in my scalp and face for a couple of years but had never experienced in my genital area. In my scalp and face it often itches a lot if I have not showered for a couple of days (i have clinical depression) and then burns after the shower. 
       

      Here is a picture of the rash with "scales" on my mons pubis. This is probably around an inch in length. This picture is taken about 24 hours after I noticed the rash. Then it was much redder and burning. 


      Picture of several stages of seborrheic dermatitis from the internet. It can be quite painful.

      I really, really want to hear the opinion of you the knowledgeable people of Honeycomb, just in case I won't be able to see a doctor while I have the rash. 
    • HSV2sucks
      By HSV2sucks
      On Feb 10, I slept with somebody new. I specifically asked him if he had been tested for HSV and HIV via blood test. He told me he had just been tested two months ago and everything was negative and he hadn’t slept with anybody in a year. He either lied to me about being tested or lied about his status. I believe he knew he had HSV2, was not taking antivirals, and didn’t care if he infected me. Now he is using it to make me feel like I HAVE to stay with him because we both have this. And he is minimizing it. 
       
      I am in pain, depressed, having suicidal thoughts (don’t think I’d act on them), and feeling hopeless. I have nerve pain all over my genitals, my lower back, my butt, back of my legs. It’s a constant pain and burning. I’m also bleeding as if I’m on a light period! ITS AWFUL! I don’t understand why anybody minimizes this!!! INFORMED CONSENT IS SO IMPORTANT! I feel violated! I’m so angry
    • kyra123
      By kyra123
      No idea what this is, I am already a hypochondriac and I am extra paranoid about my sexual health due to a past diagnosis of chlamyida. My vulva is super swollen and painful and I just discovered this white patch near the opening. Does it look like herpes? It definitely doesn't look like a common sore... If not, what else could it be? I am in pain, stressed, and fighting anxiety attacks.  

      Another photo of the white spot... it has super tiny red dots inside it? 

    • honey120
      By honey120
      I want to die but i am afraid since i got herpes what shoulf i do friends
    • Tina3535
      By Tina3535
      Hello everyone,
      I am new to the forum and I joined because I am feeling shitty. I was diagnosed 8 years ago and I contracted it from my then boyfriend who became my husband. He did not tell me he was infected, I doubt he even knew but I am angry now because I found it that he was cheating on me. 
      We are currently going through a divorce and it makes me afraid that I won’t find someone who won’t scorn me. My mood is fine as long as I don’t have an outbreak but as soon as I have one I get depressed, I feel dirty, feel hopeless and it keeps me awake at night. I am so frustrated and I keep asking myself “Why me?”. Has anyone else ever felt this way? How do you cope?
      thanks


  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71,737
    • Total Posts
      485,309
  • 0_unsure-if-it-is-herpes.png

    Nervous about dating with herpes? Skip "the talk" and browse profiles here.

  • Posts

    • WilsoInAus
      @CHT my comments regarding your race and socio-economic status are not rude, sounds like they were accurate. I just want you to be aware that there is unconscious bias in your comments based on your perspective. Yes I stand by my comments that the US healthcare system is shameful. If that loses integrity in your eyes, then that is where you sit relative to the healthcare system and my public health philosophies. There is nothing shameful about expressing ones philosophies. Have I been antagonistic in the way I have expressed these things. Yes I have and I apologise for that. I think overall I was pretty shocked that you believed that the majority of infections were asymptomatic for the receiver. Your personal experience was quite the opposite and I admit I was perplexed why you didn't share your personal experience with someone who really wanted to hear a story of a true genital infection.
    • CHT
      "talking up the chances of infection"  What? Wilson, you are now making up dialogue that never occurred.  He asked about testing and when symptoms might manifest.... I answered his questions and then asked why he felt he may be infected?  You need to go back and read over the actual messages.... never once did I "talk up the chance of infection."  You have done a poor job of reading between the lines of my messages back to "Dumbass."  I suggested he may want to meet with a doctor to discuss his situation with the goal of alleviating his concerns about infection particularly since the little bit of information he provided would likely indicate he had a low chance of infection in my opinion.... hearing it from a medical professional, especially with testing, would help confirm this and give him peace of mind.   Wilson, what really surprises me is your last paragraph.  I have read many of your posts on this website over the last couple of years and have always held your opinions in high regard.... always well informed and you never resort to petty insults and bullying even when challenged.  However, your snide speculations about my race and socio-economic status are rude, unnecessary and clearly antagonistic.  Further, your remarks about the healthcare system in the US were clearly hostile, not to mention showing a gross ignorance of how healthcare works here.  Your statements were shameful.... lost integrity.    
    • WilsoInAus
      I'm sorry @CHT you did not give the full information. The chances are not high they will not have recognisable symptoms. And if they do not have recognisable symptoms, then what is the point of going to a doctor for a swab? It is your obligation to tell people their chances and they how arrive at the correct diagnosis through available tests. Are you aware of the psychological harm that you have probably caused by talking up the chance of infection. You didn't say that there would be 50% plus chance that the person did not have HSV-2 in the first place and that the episode was less than a 1 in 1,000 chance. What happened to those odds? What role do they play when you are interpreting symptoms or their absence? In life, you support someone by saying what they NEED to hear and not WHAT you know or want to say. Further, let me guess, white middle class? The bulk of the population cannot afford nor are granted access to health care in your country. Must be nice to be able to afford a clinical evaluation, but let's spare a though for those who can't afford that. All they can do is go with the odds and they are perfectly entitled to do that in their circumstances
    • ZealousidealAide7
      I know that it is not contagious, if that helps 
    • CHT
      "Simply because people think they are asymptomatic doesn't mean they are. When they go to a doctor for education and consciously on the lookout, there is a very high probability if they are infected they will find something." Absolutely true, no argument on the study you reference.  I am also aware of the clinical studies that have demonstrated that those who self-reported as "asymptomatic" when evaluated by medical professionals are made aware that they they aren't actually asymptomatic.  However, going back to the original question at hand as to whether those who are infected demonstrate recognizable symptoms, the answer is still (as per CDC, WHO, and other reliable sources):"Most individuals infected with HSV are asymptomatic or have very mild symptoms that go unnoticed or are mistaken for another skin condition"   So, when someone comes to this site seeking advice and help when they suspect they are newly infected, we have an obligation to point out, as I did in this situation, that the chances are high that they may not have symptoms, or recognize any symptoms,  so, waiting to observe the classic symptoms (that they will no doubt look up online and find all sorts of photos showing "this is what a herpes outbreak looks like") will likely not detect those symptoms.... but, it does not mean they do not have the virus.  Obviously, most infected individuals won't have the benefit of weeks of clinical observation/testing to help them identify easily misidentified (or asymptomatic) symptoms..... these infected individuals will then move along thinking "I dodged the herpes bullet" and quite easily and unknowingly pass the virus on to others.  This occurs frequently when a person who does test positive confronts the person they believe gave them the "gift" and this gift-giver" vehemently denies having the virus since they have never had symptoms of herpes..... (which, again, is very likely as the CDC and WHO clearly point out).  Again, in the unlikely event this person were to enter into a clinical evaluation (as you referenced above), including testing/swabbing, they may find out otherwise.  This fact is one of the main reasons the virus continues to get passed along to others and the percentages of people becoming infected (particularly younger aged population) continues to increase. 
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.