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Lab11

Long term Antiviral Use

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Lab11

Hi, I'm wondering if anyone on here has been on antivirals for many years like me. I have been on and off for 20 years. Most recently on for about 3.  I am starting to worry about damage to my kidneys.  My doctor says all my tests are fine and has no concern, but I am going to try to go off for a while.  Anyone on here have the same experience? I have had hsv for 25 years and am 47 years old. I am so freaked out by both the possibility of damaging my organs and of going off and getting constant outbreaks. Could use someone in my same situation to talk to. Thank you!

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LiveLife100

Hi @Lab11. Is the reason that you are on antivirals to control symptoms or are you helping to protect a negative partner as well? What dose do you take? I'm almost 19 years in and had never taken antivirals until about a year ago when my symptoms increased to about every 6 weeks (although very mild). While I was told I could take up to 1 gram, I have been taking 500mg and that seems to keep my symptoms away. I really would prefer to not take these but I also really quite enjoy not dealing with symptoms. I will likely try going off them again to see what happens. Good luck!

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Lab11

Its to control my symptoms and to protect my partner. He doesn't have H as far as we know and I don't want to hurt him.  I am taking 500 mg daily. How old are you. My symptoms did the same thing when I turned 42.  I really feel like I am in a no win situation and am so distraught. 

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LiveLife100

I'm 43. I've been with my husband 18 years and although we didn't use antivirals (and have 2 children) he tested negative less than a year ago. It's funny, but I had previously always thought antivirals were for my benefit only - and since my symptoms were manageable, I didn't take them... I have since learned otherwise (about the decrease in shedding) and with the increase in my symptoms it was enough to give it a go.... but I agree; I don't like the idea long term. 

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Lab11

I  have heard lots of women say they had an increase of symptoms in there 40’s. I have been off of the meds  only 4 days and feel a little weird down there already. I’m so depressed.      I really don’t know what to do 

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WannaCry

I have been on and off of antiviral medication since I was 9.

I have no liver or kidney damage. The concerns about organ damage involve two major components.

1- Pre-existing conditions with the liver/kidneys or genetic disposition to kidney/liver disease

2 - NOT DRINKING ENOUGH WATER.

If you have a pre existing condition with your kidneys or liver it needs to be monitored by your Dr as in these cases Valtrex could possibly cause problems. The same goes for genetic predisposition to disease of the kidney or liver.

The main thing is if you DO NOT have either of those that you drink AT LEAST 32 oz of water (NOT tea, coffee, soda, whatever. PURE WATER) a day. 64 oz is preferable. Antivirals have a diuretic effect on the body, and you need more water due to this to process the medication so it successfully works AND does not impact the liver/kidneys.

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bufshof

I didn't know this. That's why when I take Valtrex I feel so parched. I only take Valtrex when I have outbreaks not daily.

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WannaCry

Always drink at least 32 oz to 64 oz of water a day when taking any kind of antiviral therapy - suppressive or episodic. It makes the medication work more effectively and it protects your kidneys/liver from any possible issues.

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LiveLife100

@WannaCry. Good to know. Good thing I always aim for 100 oz a day (but typically fall between 64 and 100). :) 

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Winsley
9 hours ago, Lab11 said:

I  have heard lots of women say they had an increase of symptoms in there 40’s. I have been off of the meds  only 4 days and feel a little weird down there already. I’m so depressed.      I really don’t know what to do 

Im 48 and had my first outbreak a year ago.  Unfortunately i have to be  on suppression but my infectious disease doc tells me the proof is in the bloodwork and not to worry if results are fine. Living with the before and during of an outbreak every 6 weeks is just not an option for me plus I want to protect my long-term boyfriend who is negative. this is the first time I've heard that there can be an increase in the forties, that's almost a relief to me because I didn't understand why I felt like I had such a bad case. 

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IcantThinkofaName
57 minutes ago, Winsley said:

Im 48 and had my first outbreak a year ago.  Unfortunately i have to be  on suppression but my infectious disease doc tells me the proof is in the bloodwork and not to worry if results are fine. Living with the before and during of an outbreak every 6 weeks is just not an option for me plus I want to protect my long-term boyfriend who is negative. this is the first time I've heard that there can be an increase in the forties, that's almost a relief to me because I didn't understand why I felt like I had such a bad case. 

Did you know you had it already and were asymptomatic, or did you just catch it then (one year ago)?

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Lab11

Wanna Cry.. Thank you!! You  have made me feel so much better.  You sound like you know alot about this.  You say you have been on and off anitvirals since 9, May I ask how old you are?

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Lab11
8 hours ago, Winsley said:

Im 48 and had my first outbreak a year ago.  Unfortunately i have to be  on suppression but my infectious disease doc tells me the proof is in the bloodwork and not to worry if results are fine. Living with the before and during of an outbreak every 6 weeks is just not an option for me plus I want to protect my long-term boyfriend who is negative. this is the first time I've heard that there can be an increase in the forties, that's almost a relief to me because I didn't understand why I felt like I had such a bad case. 

Hi Winsley, my doctor tells me the same thing. She really has  no concern about it. She says everything is fine. Yes, at 42 the antivirals actually even stopped working for me for a time.  I think it was hormones. Now they are working again.  To top it off I am a high stress person.  Even if there is nothing to worry about I find something. My doctor even wanted to put me on zoloft, but I have been putting that off.  May I ask where you are from?  I am from NJ.

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Lab11
8 hours ago, Winsley said:

Im 48 and had my first outbreak a year ago.  Unfortunately i have to be  on suppression but my infectious disease doc tells me the proof is in the bloodwork and not to worry if results are fine. Living with the before and during of an outbreak every 6 weeks is just not an option for me plus I want to protect my long-term boyfriend who is negative. this is the first time I've heard that there can be an increase in the forties, that's almost a relief to me because I didn't understand why I felt like I had such a bad case. 

Hi Winsley, my doctor tells me the same thing. She really has  no concern about it. She says everything is fine. Yes, at 42 the antivirals actually even stopped working for me for a time.  I think it was hormones. Now they are working again.  To top it off I am a high stress person.  Even if there is nothing to worry about I find something. My doctor even wanted to put me on zoloft, but I have been putting that off.  May I ask where you are from?  I am from NJ.

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Winsley
1 hour ago, Lab11 said:

Hi Winsley, my doctor tells me the same thing. She really has  no concern about it. She says everything is fine. Yes, at 42 the antivirals actually even stopped working for me for a time.  I think it was hormones. Now they are working again.  To top it off I am a high stress person.  Even if there is nothing to worry about I find something. My doctor even wanted to put me on zoloft, but I have been putting that off.  May I ask where you are from?  I am from NJ.

Hi, Im in Ct.  The stress thing, me too. A high maintenance 19 yr old daughter, aging mom who needs to move and im the breadwinner.  I dont sleep well either. :(

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Lab11
30 minutes ago, Winsley said:

Hi, Im in Ct.  The stress thing, me too. A high maintenance 19 yr old daughter, aging mom who needs to move and im the breadwinner.  I dont sleep well either. :(

My only stress is my health and what I would do if I had to go off the antivirals.  I really don’t think I could live with constant outbreaks.  

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a1mbt
On 2/5/2018 at 6:48 PM, Lab11 said:

Its to control my symptoms and to protect my partner. He doesn't have H as far as we know and I don't want to hurt him.  I am taking 500 mg daily. How old are you. My symptoms did the same thing when I turned 42.  I really feel like I am in a no win situation and am so distraught. 

You realise taking drugs and having unprotected sex doesnt completely protect him right? Have you researched shedding? Please do

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Dutchy
On 2/5/2018 at 6:34 PM, Lab11 said:

Hi, I'm wondering if anyone on here has been on antivirals for many years like me. I have been on and off for 20 years. Most recently on for about 3.  I am starting to worry about damage to my kidneys.  My doctor says all my tests are fine and has no concern, but I am going to try to go off for a while.  Anyone on here have the same experience? I have had hsv for 25 years and am 47 years old. I am so freaked out by both the possibility of damaging my organs and of going off and getting constant outbreaks. Could use someone in my same situation to talk to. Thank you!

Hi!

I was in antivirals for i guess three months. Waking up in the morning i felt in my lower back a strange feeling. Like needing to get relieve by going to the toilet but not needing to pee.... After a while i was thinking this could be a result of me taking Anti virals.

After 2,5 months i had a minor on that lasted 3 days. My first ob while taking meds. So i realised also that i would still have ob's. 

Freaking out also about this strange feeling in my back i dicided to stop taking antivirals. With also the fear of constant ob.

I try a sort of protocol for myself.

I need to do something right.. do here we go:

2 a day 1000 mg vit C

2 a day vit D 

2 a day neem 250 mg

2 a day olive leaf extract 500 mg

So far so good. Three weeks im fine now. Still sceptical and waiting for long term use and results.

If it turns out not working I Will try BHT.. i Read lots of good results about this on this forum..

Good luck!!

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