Jump to content
World's Largest Herpes Support Group
Jason77

Hsv2 headaches

Recommended Posts

Jason77

I was recently diagnosed with HSV2 and have several really bad headaches where I kind of pass okut.

I had an MRI which came back ok but I feel mentally impaired somehow. It is hard to describe but I feel I must have some damage. Will this go away or is this permanent?

I see others positing about headaches too. Mine cause me to get very drowsy, lost ability to focus and feel not myself in a strange way.

 

I’ll add that my first OB was a long drawn out process that is still continuing but lesser now.

 

Edited by Jason77

Share this post


Link to post
Share on other sites
WilsoInAus

Ordinarily, HSV-2 will not cause headaches.

Let’s start with your diagnosis, how did this occur and what testing did you have done?

Share this post


Link to post
Share on other sites
Jason77

I see but it would seem the posts of others show it does happen.  The nature of these headaches are not like any I have felt before. I get kind of shaky or dizzy too.

I was diagnosed by blood and PCR.

Edited by Jason77

Share this post


Link to post
Share on other sites
Cas9
5 hours ago, Jason77 said:

I see but it would seem the posts of others show it does happen.  The nature of these headaches are not like any I have felt before. I get kind of shaky or dizzy too.

I was diagnosed by blood and PCR.

Where on this site are there people who have passed out from ghsv2? I've never seen that anywhere. Can you point us to one of these people? I'm always open to being educated on the topic.

By the way, I've very impressed with your testing. Not many people get a blood test AND a PCR test. Which test did you do first?

Share this post


Link to post
Share on other sites
Puni

Yes, headaches happen, i had continuous headaches after my first OB.

it used to reduce on taking valtrex. but used to comeback again.

after i ran out of all stuff, i tried some homeopathic medicine at a random doctor near by my place, it seems to cure it.

i guess our body is adapting to hsv at beginning is where i got headaches for like 4 months.

Share this post


Link to post
Share on other sites
Cas9
17 minutes ago, Puni said:

Yes, headaches happen, i had continuous headaches after my first OB.

it used to reduce on taking valtrex. but used to comeback again.

after i ran out of all stuff, i tried some homeopathic medicine at a random doctor near by my place, it seems to cure it.

i guess our body is adapting to hsv at beginning is where i got headaches for like 4 months.

Headaches perhaps, I don't know;  But passing out???

Share this post


Link to post
Share on other sites
WilsoInAus
10 hours ago, Jason77 said:

I see but it would seem the posts of others show it does happen.  The nature of these headaches are not like any I have felt before. I get kind of shaky or dizzy too.

I was diagnosed by blood and PCR.

So you're IgG is now functioning well and hence there is no reason to at all suspect that the headaches are in any way related to HSV-2. Headaches may occur for some people as part of the 'toxic shock' that accompanies the immune system's reaction to a new virus.

However, the headaches may be a sign of something more serious and we are obliged to advise you to seek medical attention in this regard.

Share this post


Link to post
Share on other sites
Jason77

The strange headaches only started after the infection, not before. I can see others say the same even on this forum.

Share this post


Link to post
Share on other sites
Cas9
23 minutes ago, Jason77 said:

The strange headaches only started after the infection, not before. I can see others say the same even on this forum.

Any other symptoms besides headaches?

Share this post


Link to post
Share on other sites
Jason77
21 hours ago, Cas9 said:

Any other symptoms besides headaches?

Extreme genital area pains.

Share this post


Link to post
Share on other sites
WilsoInAus

This is not sounding herpes related. Do you have the full details of the tests you had and the actual results?

Share this post


Link to post
Share on other sites
Jason77

I’m not here to debate my diagnosis. PCR HSV2

I am asking fellow HSV2 affected people if they too get headaches.

Edited by Jason77

Share this post


Link to post
Share on other sites
WilsoInAus

Yes you should be here to debate and question your diagnosis, how else will you play a role in determining what is wrong with you?

You do not seem very clear on the testing and results, are you sure these are the tests you have had? Do you have a printout of the results?

Your headaches are most probably not related in any way. You seem all over the shop and we are trying to being clarity to your situation. The actual results of the tests may be a critical piece in the puzzle but for some reason it's not coming through to you.

Please think about what you are trying to achieve and I am sure we can be more helpful.

Share this post


Link to post
Share on other sites
Cas9

@Jason77

What did you want to say or ask? You've already stated you have hsv2. You also said you have headaches and wanted to know if that could be due to your hsv2 infection. The answer was yes, you could get a headache from the infection but I think that's typically a side affect, not because hsv2 is in your brain. Is that what you're concerned about?

Edited by Cas9

Share this post


Link to post
Share on other sites
Puni

Yes, hsv headaches scared the hell out of me actually, i even went for mri to see whether i had meningitis, but everything was ok. 

In the initial days even i was feeling like passing out but never did. 

@Jason77 one more question, does your headache and genital pain symptoms occur simultaneously? 

For me it used to occur one after other. 

Share this post


Link to post
Share on other sites
WilsoInAus
3 minutes ago, Puni said:

Yes, hsv headaches scared the hell out of me actually, i even went for mri to see whether i had meningitis, but everything was ok. 

In the initial days even i was feeling like passing out but never did. 

@Jason77 one more question, does your headache and genital pain symptoms occur simultaneously? 

For me it used to occur one after other. 

Well hang on a minute, this is very misleading.

The topic, if indeed there is a topic, is HSV-2 and headaches.

The circumstances you present are: no real idea when you were infected (if at all); if you are infected then it is with HSV-1 most likely from a childhood infection; there is no evidence that you genital symptoms are hence related to herpes at all; and there is even less to suggest headaches caused by herpes.

Let's pull ourselves together here and focus on the realities and focus out of the abstract onto what makes us healthy.

Share this post


Link to post
Share on other sites
NY12345

Jason, or shall we just say @jay2255 because it's blatantly obvious it's you, the least you could have done was make up a new profile that didn't use the same name (Jason/Jay) followed by numbers, residing in Japan, and going on and on about symptoms that are extremely unlikely to be herpes related, and then get immediately defensive around your supposed diagnosis, if you really wanted to pull this off. Making up a new profile and asking the same questions isn't going to get you any closer to figuring out what's going on with you. This is really sad. I feel for you, but no one here can help you because you are just hellbent on believing you have herpes, and with that you are never going to have the time to figure out what's really going on with you. 

Share this post


Link to post
Share on other sites
Cas9
18 hours ago, NY12345 said:

Jason, or shall we just say @jay2255 because it's blatantly obvious it's you, the least you could have done was make up a new profile that didn't use the same name (Jason/Jay) followed by numbers, residing in Japan, and going on and on about symptoms that are extremely unlikely to be herpes related, and then get immediately defensive around your supposed diagnosis, if you really wanted to pull this off. Making up a new profile and asking the same questions isn't going to get you any closer to figuring out what's going on with you. This is really sad. I feel for you, but no one here can help you because you are just hellbent on believing you have herpes, and with that you are never going to have the time to figure out what's really going on with you. 

You took the words right out of my mouth. I knew he was Jay even before he started this thread and almost said something yesterday. What he's doing is trying to show that Jason absolutely has hsv because he was positive via an igg and PCR test, and that Jason has headaches and dizziness. With that established, he was expecting us to believe that just maybe, Jay, was right all along since we have this Jason guy with the same symptoms who tested positive for hsv. Really sad JAY.

By doing what you attempted to do you're making some people who may have similar symptoms believe they have hsv. And the issue I have with that is that it's predicated on a lie. And the lie is that you tested positive for hsv. I have no problem with someone presenting the evidence and voicing their opinion on that evidence, even if it bothers some people. But I do have a problem when you present evidence that is not true, which in this case was saying you tested positive for hsv.

The bottom line Jay is you need to have confidence in what the igg test tells you. If you've taken that test 3 months after exposure, you should be quite confident in the results. But if you still have some uncertainty then retake the test at the 6 month period. At that point, if you still test negative then you should be virtually 100% convinced it is not hsv.

Edited by Cas9

Share this post


Link to post
Share on other sites
cracked

I agree with @Cas9 and @NY12345. You’re just scaring the hell out of people here with your issues, including me. Your posts from both of your profiles have made me paranoid that even if I get a negative Western Blot I won’t ever be convinced about my case. Your symptoms are part of the reason people in that Facebook group won’t reply to your posts.

Share this post


Link to post
Share on other sites
Jason77

So if my symptoms are “scary” I should not share them and just shut up? It seems so.

I’m not trying to pretend to be anyone else or play any games (I am in hell and not looking to play games) or else I would have picked a different name and used a vpn. 

So I guess Puni and others are not getting headaches from hsv also? But if so they should shut up too,? Why must things get played down?

Of course not everyone gets affected the same. Age, genetics, virus strain, loss, nervous system, immune system, etc....so many variables at play. We are all different.

But it is documented that you can get headaches from hsv.

Share this post


Link to post
Share on other sites
Jason77
19 hours ago, Puni said:

Yes, hsv headaches scared the hell out of me actually, i even went for mri to see whether i had meningitis, but everything was ok. 

In the initial days even i was feeling like passing out but never did. 

@Jason77 one more question, does your headache and genital pain symptoms occur simultaneously? 

For me it used to occur one after other. 

Yes I had that too (passing out feeling several times). I had an MRI and it was clear.

The headaches are less frequent now but feels like burning on top of my head sometimes.

Edited by Jason77

Share this post


Link to post
Share on other sites
WilsoInAus
37 minutes ago, Jason77 said:

Yes I had that too (passing out feeling several times). I had an MRI and it was clear.

The headaches are less frequent now but feels like burning on top of my head sometimes.

Please do not play the fool. You do not have herpes and it is time to move on with your life, good luck!

Share this post


Link to post
Share on other sites
Jason77
8 minutes ago, WilsoInAus said:

Please do not play the fool. You do not have herpes and it is time to move on with your life, good luck!

Play the fool? I simply cannot comprehend. Are you accusing me of making up this hell I am in 24-7?

look at BartSimspson, Puni, Hallow and some others they have some similar issues. Bart has it really bad, ask him.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Advertisement

Try a Lysine supplement for cold sores

  • Similar Content

    • Feeling Normal Again
      By Feeling Normal Again
      Sorry, this is so long....I'm new to the group, fairly new to forums in general. I'm usually "the lurker" type who views and reads but hardly ever posts. But since coming to terms with hsv2 and finding things that have really worked and have helped me, I don't mind sharing my story in hopes of helping others! 
      A little over three years ago, my nightmare started. Intense all over body itching which was always followed next day by genital OB. Constant reoccurring OBs. Excruciating headaches, (mainly behind the right eye, right temple, and the base of the skull), light sensitivity, stiff and painful neck, swelled and painful lymphnodes, hip and low back pain, stomach bloat, and of course, sores/blisters... whatever you want to call them, they were so painful, I would literally cry everytime I went to the bathroom.
      No medications, oils, or supplements worked as well as I would of liked. And the more I researched into the headaches and the "not so typicaI" symptoms, the more terrified I got. Frustrated at money spent and energy, time, and hope wasted, I dove into research, reading medical journals, searching for anything that might work.
      I found a case study by an infectious disease specialist with a female hsv2 patient with the same severe symptoms I was experiencing. Her chief complaint was crippling headaches. After traditional meds were failing, he was working on boosting her immune system with supplements. So, I decided to give that a try. I started taking anything I could to boost my immune system.
      Echinacea and Dandilion roots, zinc, vitamin c, and golden seal, and I kept taking olive leaf extract (I'd already been taking it for a while). I started having a couple of good days here and there, but bad days still way outnumbered the good and still had constant reoccurring sores. 
      I kept researching...I stumbled across medical journals where different institutions were testing different trees for herpes treatments. Some even doing clinical trials with good results. After seeing the name of one specific tree from India pop up over and over, I decided to give it a try. Azadirachta indica, products derived from tree are Neem capsules and Neem oil.
      Surprisingly affordable on Amazon, I ordered Organic India capsules and NOW brand Neem oil. Took two capsules twice a day and rubbed Neem oil, over sores and anywhere else I'd ever had an itch or tingle, twice a day. Shocked when after just a few applications, pain and itching of all existing sores were gone.  
      So, no more sores, but was still having most other symptoms. I was reading some research journals on preventive anti-cancer herbs (just for fun reading, I'm a nerd). Well, I came across a natural treatment, Graviola/soursop tea, being used to help patients with lymphatic cancer. I thought if this stuff is strong enough to help the lymphatic system of cancer patients, just maybe, it could help my lymphatic system with my hsv. In the medical field, there's a phrase, "treat the symptoms."
      Again, affordable on Amazon, I ordered 30 Organic Omura soursop tea bags. After just one week of drinking two 8 ounce cups a day, steeped for 10 minutes and sweetened with raw cane sugar or raw local honey and international delights coffee creamer (gmo free), I felt significantly better. Decrease in headaches, neck pain, swelling, lymphnode pain, and all other symptoms. 
      I take a few other things like Gotu Kola, grape seed extract, and apple pectin for energy, vision, and brain health. Astragalus for female and hormonal health, and milk thistle once a night before bed to keep liver and kidneys from getting overloaded.
      After a couple of months of taking this regimen, I felt more normal than I ever thought imaginable. I cut back to taking all supplements one week on/two weeks off. I quit taking golden seal and cut back Graviola tea to once a week in the a.m. and Neem oil once a week before bed. 
      And I found that Ginger Soother (a $5 drink from Whole Foods which last me months) and a good probiotic as needed helped any stomach issues.
      I hope any of this helps others who are suffering from the same nightmare I was living in after contracted and diagnosed with hsv.
      A positive mindset also goes a long ways when fighting any disease or illness! Almost TWO years of No Outbreaks! Not cured of course, but I feel like I've beaten this and found natural treatments that I can definitely live with!
       
    • Jay2255
      By Jay2255
      Asking only HSV-2 folks, do you ever get really strong headaches (on the top of your head)  to the point you almost cannot think straight? 
  • Trending Now

  • The Hive is Thriving!

    • Total Topics
      67,686
    • Total Posts
      450,782
  • Posts

    • Quest
      I wanted to validate your choice. He saying 500mg. Plus he was saying it was his favorite for HSV. 
    • HSV-1
      Immediately after it clears Phase 3, they might price Pritelivir in an exorbitant fashion and only prescribe it to immunodeficient patients (AIDS). I'm also curious how fast HSV is expected to evolve resistance against Pritelivir.
    • AnonF
      So I disclosed for the first time last week. I was feeling confident after reading all of the positive disclosure stories out there. I was armed with the stats and presented the information in a calm manner as recommended. I was happy to find out that the guy already had a lot of knowledge about it because had an ex w the same issue. It was nice to have sex without having to worry about harboring a secret, I felt normal for once   I got a text from him in the AM and I was hoping for the usual "had a great time, can't wait to see you again" but instead he was blithering on about being paranoid about the contact. We exchanged one more message that day, and today I sent one, no response..... pretty certain I've been ghosted.  I am back to that dark place where I feel like I'm unlovable / unfuckable dreg of society. I'm a single parent which doesn't help, nobody wants a relationship w someone like me... add the herpes and I might as well be a 400 lb amputee on welfare with an IQ of 70. I feel like I am going to have to eventually "settle" for someone that is willing to be with me, but I don't really like them. I feel that a man that is willing to accept this is probably an unwanted outcast himself.  So ultimately I fear I will have nobody, or settle for a guy that disgusts me
    • jxc1337
      Maybe I should up my intake of olive leaf? 
    • Wtfisthisplease
      I'm pretty sure I have ghsv1 but it's not confirmed as I test negative via igg blood test but I probably would not fully disclose even if I had 100% proof. Right now I have disclosed that I think I may have had a coldsore and that's it. Turns out the two girls I've disclosed that to said they get coldsores too so it's a non issue. Hsv1 is a little bit different though in terms of prevalence. If I were in your position (assuming you have hsv2) and took antivirals I probably would not feel the need to disclose during hookups. However in a long term relationship I think it's important. When I disclosed that I may have had a cold sore in the past to a girl I was about to get intimate with she disclosed that she had an oral coldsore before and was positive for hepatitis B. I'm glad she disclosed the hep B because I wanted to make sure I had hep b titers. If the same girl disclosed she had hsv2 I would just make sure she's taking antivirals and wear a condom. 
×

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.