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Anyone had Elsberg Syndrome with their herpes?

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Hi there,

I'm looking for anyone who developed Elsberg syndrome from their herpes.   I was diagnosed with HSV2 3 weeks ago....had lesions and all the discomfort that goes with those and developed a bad fever.  Then I started to go numb around my genital area and around my anus and buttocks (apparently called saddle anaesthesia)  I started to get really bad pain in my right buttock...excrutiating...couldnt sit down or lie down.    Doctors gave everything they could...i was on codeine, tramadol, high dose ibuprofen and paracetamol.  Finally i could sleep.  Then one morning i woke up and couldnt pee...pain in my bladder and kidney got worse and worse...went to doctor..i was in acute urinary retention and had to get a catheta fitted.  the doctors contacted a specialist and I have a complication from herpes called Elsberg Syndrome.  So after 2 and half weeks things started to return to normal. You know what, it was hellish...but thankfully short lived and with good pain medication you just get through it.

It's 3 weeks since my lesions developed...the numbness is going and I don't have the nerve pain.  all going well.  then I woke up this morning and I have a new lesion.  I've started my antiviral, but feel really down.  what's going to happen now?  is this a recurrence? Anyone had a recurrence after having Ellsberg syndrome? Did you get nerve pain again? Did the numbness go away?

I'm trying to not stress and think positively.  i feel i need more information so I know what I'm in for and can mentally prepare. Can anyone help?

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I'm so sorry to hear you went through this, I am new to this and just over my first outbreak, it was horrible but doesn't sound near as and as what you went through, thank god for meds.  My outbreak just started with a sore throat and fever and what I thought was just a bad yeast infection from the anti biotic that I self prescribed but them saw sores and knew it wasn't something worse.  It was so painful to pee I had to either got in the tub or shower and sitting was extremely painful as was turning over in bed or have anything touching the clit.  Now I a so afraid of another outbreak but what I hear is the first is always the worse, I am hoping that is true and I was just in Mexico and picked up some anti viral meds but hope I don't need them.

Good luck to you, I am glad I found this site, although its kind of difficult to navigate, but getting more informed and knowing how common it is is both helpful but scary and why isn't there  a cure??




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Hi Lolita!

Thanks for your reply, it's really nice to share with someone, already makes me feel better.  Yeah first outbreak was so horrible and then you start worrying about the next ones.   I've taken my antiviral tablets and so far I have only a few small lesions...i have my fingers crossed.  on the painful peeing...i got Ural powder...its for UTI  and makes your pee less acidic...really makes a difference. You just dissolve it in water.  I also got a gel that acts like a local anesthetic, numbed the area..lidocaineor something like That .  That was amazing! took the edge off the pain for the first few days.  So far, my second OB has been ok, fingers crossed.  after the bad luck of the first one, maybe my luck is due.  I think we are over the worse part, things will get better :))

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Thanks so much Feisty, yeah this is so much more helpful than the doctors, I asked 2 drs  for something to help with that pain and all they did was give me narcotics, and you wonder why we have an opiod problem?  I have been looking online on sites and have heard several people talk about Oil of Oregano and Olive leaf extract, so I ordered some on Amazon today.  I also was just in Mexico and bought some anti virus meds, but would rather do a natural approach, I haven't taken any since all my symptoms are gone, I took the anti meds the doctor gave me and that took care of it, just afraid for another outbreak, but have heard they get better, thank god, I will keep the pain meds for if they do come back.  

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