Here is my story. I hope this can give me some clarity and others as well. I had unprotected oral sex in April, one week later I came down with a bad flu..diarrhea, lower back pain, swollen lymph nodes in my elbows, body aches and a fever. One week later after the flu I developed 2 off-white bumps in my lower lip. I thought it might have been yeast. Stupidly, I have unprotected sex with this man 2 weeks later. He said he does not have anything, claims was tested and negative, and has given me excuse after excuse to test. Highly suspicious and shady. The one time I didn’t listen to my gut...and...Within 3 days I develop a burning sensation in my vagina and pin size pimple-like bumps on my vaginal labia. I was swollen, and itchy. I thought it was a yeast infection ((sigh)), but nothing seemed to help. I was prescribed an antifungal, antibiotics, creams, and nothing. Months; sometime in July, and now noticing tingling, sharp shooting pain from my hamstrings into my glutes, groin pain, and increased itchiness; addition to everything else, I went to see my gynecologist. She did a PCR swab test. NEGATIVE. With continued symptoms and really no more than a week of not feeling these symptoms I went to my primary care doctor, back to gynecologist, and even Planned Parenthood out of desperation. Within all of those appointments I kept testing negative with an IgG HSV 1/2 test. I was given Acyclovir because one of the doctors said there is nothing to test but the only symptom that throws her off is the tingling. She said tingling is a classic symptom of herpes. She said to take it and treat this as if I have it even though I am testing as if I do not. I searched and searched for answers and came upon discovering the Western Blot for HSV 1/2 is the gold standard. I was at 8 months post exposure and sent a Western Blot to the UW. NEGATIVE. I immediately starting taking Acyclovir after sending the WB in hopes of alleviating some of the symptoms. Some symptoms have subsided a bit but are not completely gone. I don’t know what to think or make of this. Are herpes blood serum tests flawed? Should I continue with my life, accept the results, and live with these uncomfortable symptoms? Could the WB be a definitive negative? This is by far one of the worst situations I have had to face. I am beyond devastated, angry, and upset. I am so afraid to trust anyone now.
I have had an infection of HSV1 at the end of 2016, diagnosed through an urethral swab.
After that, I have had a cascade of symptoms increasing year after year, which I have not been able to diagnose correctly. I am still struggling with the diagnosis and it would be interesting to compare opinions.
- Constant irritation on the glans, rash. Small red wounds inside of the urethra. This is what I have associated with my typical symptom of herpes
- In the last year: constant conjunctivitis. A bad pink eye lasting for a few days, once in the left eye, the next week in the right eye, and so on
- Since a few months: red dots appearing on my fingers and then disappearing after a few hours. Occasionally turning into blisters. Once 2 swollen painful fingers
A doctor made some blood exams and he didn't bother to comment them before throwing me out of his door, saying "you are negative to herpes. you have an obsession and you need a psychologist"
- IgM: < 0.9, IgG: > 30
I understand that this means an exstablished infection and I could not expect it to be different. I have no idea what it means the fact that my IgG is so high. I have read that IgM negative in some cases means that there is no recurrence / active or acute infection, but not always.
- RF IgA (normal range 0 - 14): 62.
I have read that this is an index of an established Rheumatoid Arthritis. This could probably correlate to the symptoms on my fingers.
What I do not know is: can it be generated as a consequence of a herpes infection, as an autoimmune disease? Is this the possible reason why some people describe of symptoms getting worst after some years, or having nerve pain?