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Disappointed87

Diagnosis today

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Disappointed87

New here just signed up. Doctor called this morning with positive results for hsv-2. Something I NEVER in my life thought I would say. I have almost no one to talk to about this and the attitude I grew up with around this subject was not an educated or tolerant one. I’m having a hard time being realistic fair and non judgmental. Any advice would be greatly appreciated. 

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Disappointed87

No had no symptoms and no outbreak? I had my yearly physical and told my doctor I had some new partners and would appreciate some tests and she agreed. I usually get tested every year just in case, though I’ve mostly been monogamous my whole life. My doctor said I would know if I had symptoms or break outs. Apparently the first time is pretty painful. I have no idea when I contracted it and not 100% sure who I may have gotten it from. I have already alerted everyone I thought could possibly be at risk. Most of my partners were protected, but I’m learning that’s not always guaranteed. 

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WilsoInAus

The next step is now critical. You need the full details of the test that you had that was positive. Was it for IgM or IgG and what was the value?

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Disappointed87

I have no idea I didn’t know there was anything to ask my doctor I’ll have to call her in the morning. What difference does it make though I mean you either have it or you don’t, right? The type or severity doesn’t really seem to matter as to the care and precautions. 

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WilsoInAus

Yes you either have herpes or you don't.

However blood tests are not quite that dichotomous. The IgM tests are notorious for false positives and the IgG tests not all that far behind.

The test and value will help evaluate the credibility of the result. You describe no outbreaks and that's critical. You do not mention that you have HSV-1, so I am assuming you do not. As such this means if you were infected, the chances of having a bad outbreak are pretty damn high, probably well over 90%.

Should your IgG HSV-2 value be over 5, then little question, you carry the virus.

Should your value be less than 3.5, you are in the grey zone with a 50/50 call that I invite you to be curious about with further testing. But let's cross that bridge when it comes up.

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Disappointed87

She tested me for everything except hiv/aids. I know I tested positive for chlamydia as well... the pics I tried to send are the only things that mention anything about herpes or IgG or IgM and. Either of them gave a value or percent so I’ll have to ask. I can’t 100% remember if she said I have type 1 or type 2 but I’m almost positive she said 2(as far as I know the only difference is possible outbreak locations) and I have had no symptoms of any kind.

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WilsoInAus

That is the confusing thing. IgM testing is not reliable as it is, however it is coming back negative giving no cause for concern.

You do need to check what the doc is basing the comments on, it can only really be an IgG test - but like I said the values are important here too. The test used (IFA) is quite fashioned, I hope the IgG test was a Herpeselect.

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Disappointed87

So should I just get a second opinion from like a planned parenthood or something in a few weeks? Depending on what my doc says?

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WilsoInAus

A lot depends on why your doc is suggesting you have HSV-2. If that has no foundation, I'd suggest testing is probably not required at all. Otherwise a Herpeselect IgG test will give you the information you need.

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Disappointed87

Would you be able to give me a list of questions I should specifically ask her? 

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WilsoInAus

Perhaps the following:

- why should we think have HSV-2? {the only valid answer is that you have over 3.5 on an IgG HSV-2 rest}

- given I have never had a genital outbreak, could I please test using a Herpeselect IgG test, type specific for HSV-1 and HSV-2?

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Disappointed87

Ok thank you.  I’ll see what she thinks about those suggestions though I’m sure she won’t have a problem. I wonder though, why you feel there’s a chance I don’t have it? I would never have thought to question the test or my doctor and she never mentioned any of this stuff so I feel like it’s oretty safe bet I do. Course I’d rather know for sure so I appreciate the info. Have you met many people with false positives that turned out to be in the total clear?

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WilsoInAus

There are dozens if not hundreds on this site alone who have had false positives for HSV-2.

The chance that you do not have it stems from an absence of outbreaks. If infected, especially as a primary (meaning first infection of either HSV-1 or HSV-2 having been negative for both previously) you get an outbreak. It would be extraordinary that you didn't. Many people do miss the infection but can recall something like a funny sore when it is all explained to them. Mostly though you end up at the doctors for a swab and hoping for relieving medication!

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Disappointed87

My partner got tested and his doc said he was negative for chlamydia and negative for one herpes but positive for the other. My partner made it sound like he was negative for the mgg but positive for the igg like they were two different tests? He’s numbers were 0.99 and his doc said anything over 0.9 means you have herpes. He also said we can’t spread the virus until we have our first outbreaks. As far as I know I have not. The INTERNET is saying anything between 0.9 -1.3 means it’s an inaccurate test. Anything over 1.3 means you have herpes. All the information I’ve been getting is all slightly different so it’s hard to get a STRAIGHT answer about anything.

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WilsoInAus

You'll get a straight answer here, I promise.

I think though that both you and your partner are lacking some key facts from your docs. 

You do not appear to have a positive test at all unless there are test results you do not have online.

Your partner does not have a full set of results to explore either. "Positive for one type but not the other" That applies to pretty well 90% of the population. He needs to know IgM and IgG results for HSV-1 and HSV-2 in full.

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Disappointed87

His results were the same as the ones I sent you for me. The only thing that’s different as far as I know is that the doctor can see numbers and we can’t.  Is the igm a different test than the igg?

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WilsoInAus

Yes, the IgM detects so termed ‘first response’ antibodies. IgG antibodies then are made by your body for life.

The IgM test has no real diagnostic value, only the IgG does.

If the IgM test is the only one the doctor is doing, they are doing the wrong test.

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Disappointed87

Ok so I got a 1.84 on the IGG test and last year it was only 0.88. So she said it’s an older infection? But they can’t tell how old. And she said anything above 0.9 means you have it.

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WilsoInAus

Good on you for obtaining that information.

Damn it though it isn’t clear. That lies in the false positive zone. There is no confirmation at that level but it’s 50/50. This is exactly what the Westernblot can sort out.

Your partner’s result is negative?

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Disappointed87

His was negative for the igm as was mine. I guess that’s a test for newer infections? And his igg was 0.99

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WilsoInAus

That also doesn’t suggest an infection.

The only advice I can give is to retest perhaps through a different doctor and explicitly request the Herpeselect from Focus.

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Disappointed87

I will for sure. Isn’t the westernblot really expensive?

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