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Hi everyone.. 

It’s comforting to see via webz that I’m not the only one in this world dealing with this hell. I’ve had cold sores since I was a child and they have always sucked and took a hit to my self esteem .. but luckily they didn’t occur too often for it to feel like a big issue in my life. About 2 years ago, I had a cold sore outbreak and a few weeks after it healed my bf got his first genital OB. Though I had not performed any oral while I had visible sores, we assumed through shedding he may have contracted it prior to my OB :( I felt and still feel so terrible that I passed it on to him , but luckily for him he had two OBs and none since! Well August 2017 I got my first genital OB. I feel like my life has changed and it makes me so sad. I get genital OBs pretty much every single month and have had 2 cold sore OBs during this time period which is so strange because usually I get a cold sore outbreak once year or two .. I’ve gone even longer before ... Now I’ve have two cold sores within 7 months!! I don’t know what is happening to me and why it’s so aggressive. I just want it to end :( I’ve been doing a lot of research on what I can do to prevent outbreaks and I’ve been doing my best to fix up my diet but I still get OBs every month :( I guess I’m here looking for some comfort and support because this fucking sucks and as crazy as it sounds I’m determined to find a cure .. or at least a way to completely suppress these OBs 

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I'm sorry you're going through this, I know how much it sucks! Have you and your boyfriend been type tested? It's rare but not impossible for you to get genital HSV1 after having oral HSV1 for decades. So IGG type testing would let you know whether you and your BFs genital herpes was HSV1 or HSV2. You would only need to test for HSV2 since you know you already had 1, and he would test for 1 & 2. 

Considering that you had years of antibodies built up for HSV1, it's strange that you're having so many genital OBs. Have you tried antivirals, they may help. I've read L-lysine is good for HSV1 but it didn't help my HSV2 at all. 


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or, Try to get a swab of the genital ones too- to see if they are type 1 or 2.

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    • blurneworder
      Your symptoms and photos match exactly what I've been dealing with on and off since October 2018 after I had a a really bad flu that brought about tingling on my lips. It felt like a cold sore was going to develop, but a bunch of tiny white bumps showed up that doctors have yet to fully explain what it is. I also have a constant feeling of a dry, chapped upper lip. A few weeks later the white tongue showed up. I'm also currently dealing with a change in taste in my mouth. I eventually tested positive fro HSV1 months later, but I don't know where on my body it is. I also have discoloration on my the tip of my penis. One dentist told me I had bacteria covering my tongue, and another dentist said nothing looked suspicious. I also get the cut on my tongue.  Prepare yourself for a journey of doctors telling you that you look normal when, in fact, you do not.
    • WilsoInAus
      @CheekyMunkey there is absolutely no way you, me or anyone has any chance of diagnosing what issues inside the mouth might be. There are simply too many issues that create similar looking outcomes. All I can say is that issues inside the mouth are way, way less likely to be related to herpes compared to if you were having issues on the lips.
    • CheekyMunkey
      Hi mate.  Thank you for responding. I do feel better but I think the oral might be the issue. I was looking at my tongue and it looks white. Well whiter than normal. Also about 3 days ago I had a really sharp pain in my tongue which lasted like seconds. Later in the day when I saw it it had like a line cut into it. Is it a lesion? I have no pain in my tongue at all, no fluid filled sores but I noticed that Its shape isn't right. Like a bits missing on the tip of the right hand side. I've added two pics. It looks whiter in the pics then it actually is but I noticed red dots all down near the tip. Could that be something? Herpes? Also, where the tongue goes out of shape there is nothing on that side. I did burn my mouth on some pizza on the day I felt that sharp pain so not sure if that's got something to do with it.  https://ibb.co/zhphnMD https://ibb.co/G0pPRLh Thanks in advance.
    • RNY18
      Personally, I'm still wondering how likely is it China will cure HSV before the States does ?...
    • WilsoInAus
      I’m sorry your still angry, but drop the relationship with the Jay profiles and you will feel much better about life, I promise.
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