Jump to content
World's Largest Herpes Support Group

Recommended Posts

CopingWithG

Hi guys,

So I am new to all this, but I'm struggling with life and needed to chat to someone.

I got diagnosed with genital HSV-1 when I was 19. In the first year I had a few nasty outbreaks, then 18 months of nothing, then one odd outbreak, and now I am currently 2.5 years clear.

I feel like I should be happy and content with life because I know it could be so so so much worse. But, genital HSV-1 rules my life!

Every time I get the tiniest rash / tingle / itch / pain / swollen gland I panic... I tell myself its because I've shaved or because I went heavy at the gym. I try to convince myself its not a outbreak. This it simply is just shaving rash or achy sore legs. I am constantly reaching for acyclovir when I probably don't need it. I feel every day is just a ticking clock waiting for the next outbreak. 

This has all got worse since I started dating my new boyfriend - I told him but he simply thinks it just a "cold sore down there that stops me from having sex every so often".

So my questions are...

1) Does anyone feel their lives are rules by HSV and how do they deal with it - do I need to talk to a professional? How can I stop panicking?

2) Does it ever go away? Any "success" stories? Am I worrying over nothing because it has been so long since my last outbreak?

xxxx

Share this post


Link to post
Share on other sites
friendlyboy
On 22/3/2018 at 8:23 PM, CopingWithG said:

1) Does anyone feel their lives are rules by HSV and how do they deal with it - do I need to talk to a professional? How can I stop panicking?

At first it did, now, a year later, I've learned to just accept the situation. It bothers me no more, even though I have daily OBs and I'm on daily AV, for as long as I keep OBs under control. Btw I have HSV2

On 22/3/2018 at 8:23 PM, CopingWithG said:

2) Does it ever go away? Any "success" stories? Am I worrying over nothing because it has been so long since my last outbreak?

Most people don't ever get an OB, or at least notice one. Most who notice won't get a recurrent disease, or at least their symptoms are so mild they don't notice. Stop worrying, you are in this group.

Share this post


Link to post
Share on other sites
junderstands

I don't blame you for panicking. You can try to express yourself to someone who knows you have it, but I know not everyone is so understanding. I would find any way to express your feelings. It seems like the problem you're having is more mental than physical and just venting might relax you. 

As far as what I've read, HSV-1 in the genital area TENDS to be much less pervasive than HSV-2 and usually goes away completely with time. I don't think you should worry.

If you keep having trouble I would be happy to listen. Goodluck 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • The Hive is Thriving!

    • Total Topics
      69,917
    • Total Posts
      471,958
  • Posts

    • blurneworder
      Your symptoms and photos match exactly what I've been dealing with on and off since October 2018 after I had a a really bad flu that brought about tingling on my lips. It felt like a cold sore was going to develop, but a bunch of tiny white bumps showed up that doctors have yet to fully explain what it is. I also have a constant feeling of a dry, chapped upper lip. A few weeks later the white tongue showed up. I'm also currently dealing with a change in taste in my mouth. I eventually tested positive fro HSV1 months later, but I don't know where on my body it is. I also have discoloration on my the tip of my penis. One dentist told me I had bacteria covering my tongue, and another dentist said nothing looked suspicious. I also get the cut on my tongue.  Prepare yourself for a journey of doctors telling you that you look normal when, in fact, you do not.
    • WilsoInAus
      @CheekyMunkey there is absolutely no way you, me or anyone has any chance of diagnosing what issues inside the mouth might be. There are simply too many issues that create similar looking outcomes. All I can say is that issues inside the mouth are way, way less likely to be related to herpes compared to if you were having issues on the lips.
    • CheekyMunkey
      Hi mate.  Thank you for responding. I do feel better but I think the oral might be the issue. I was looking at my tongue and it looks white. Well whiter than normal. Also about 3 days ago I had a really sharp pain in my tongue which lasted like seconds. Later in the day when I saw it it had like a line cut into it. Is it a lesion? I have no pain in my tongue at all, no fluid filled sores but I noticed that Its shape isn't right. Like a bits missing on the tip of the right hand side. I've added two pics. It looks whiter in the pics then it actually is but I noticed red dots all down near the tip. Could that be something? Herpes? Also, where the tongue goes out of shape there is nothing on that side. I did burn my mouth on some pizza on the day I felt that sharp pain so not sure if that's got something to do with it.  https://ibb.co/zhphnMD https://ibb.co/G0pPRLh Thanks in advance.
    • RNY18
      Personally, I'm still wondering how likely is it China will cure HSV before the States does ?...
    • WilsoInAus
      I’m sorry your still angry, but drop the relationship with the Jay profiles and you will feel much better about life, I promise.
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.