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Newly diagnosed and alone


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Hello all,

I’m a female and was just diagnosed GHSV 1 and I’m devastated. I really need someone to talk to about their experience. I’m at the end of my rope with general practitioners and their horrible bedside manner. If one more person spits a statistic at me or dismisses the psychological pain I’m going through, I’m going to lose my mind. Cannot see a psychologist for another week. Seems like nothing will ever be the same. Please help me.

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Hockeyawesome1

Hey. I'm 22 and am newly diagnosed with GHSV1 as well. There will pronably be a functional cure within the next 10 years. Meaning it's still in your body but dormant. Like chicken pox. Medicine and technology are moving so fast we will advance more in the next 10 years than we did in the past 100. 

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5 minutes ago, Hockeyawesome1 said:

Hey. I'm 22 and am newly diagnosed with GHSV1 as well. There will pronably be a functional cure within the next 10 years. Meaning it's still in your body but dormant. Like chicken pox. Medicine and technology are moving so fast we will advance more in the next 10 years than we did in the past 100. 

This is not accurate. We don’t know the timelines or future efficacy of these treatments. You’re right on medicine and technology moving fast but timelines are not certain.

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