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Confused with doctors

Ashley738

By Ashley738,
in Herpes Veterans

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Ashley738 Honeycomb Member

Ashley738

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So I have a major concern. 

For the last 6 months I’ve been dealing with an irritated vagina. This is the reason that caused me to go get tested. Besides that I had a situation with my lips back in January that hah topped off my concern about herpes. When I went to the doc I had 4 different docstell me that because of the winter weather that my mouth just looked as if it was dry or had windburn. So I took it as that. But with the lip thing happening and then I felt like a had a flu I and the er could t find anything with my throat being sore and etc I felt something was wrong. I’ve been told my irritation down below is Bv and yeast which is common when you have the Mirena. However, I went to a local place in April to get tested. Family owned business and the rest was about 50 buck that showed I tested positive. My primary doc which is the 4th doc I’ve been to still doesn’t think it’s herpes and told me not to worry but with my range being super high and those symptoms ,  wouldn’t you guys think it’s herpes as well. I haven’t had any issues since then besides my irritation and I wanna get retested again because I’ve started dating again an I would hate to pass this to someone not knowing.  What should I do ? 

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Lk2404 Honeycomb Member

Lk2404

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Doctors are a huge reason why HSV is being spread carelessly. My story is I was symptom AND blood work negative of HSV 1 and 2 for 30 years. The asymptomatic man who gave it to me was POSITIVE for HSV1 via IgG test and without his knowledge had sex with me. (he was tested after my outbreak). I now have genital herpes for the rest of my life. He destroyed me. If you are positive via IgG blood work you can infect someone and I’m living proof. Don’t be that person. 

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Ashley738 Honeycomb Member

Ashley738

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9 hours ago, Lk2404 said:

Doctors are a huge reason why HSV is being spread carelessly. My story is I was symptom AND blood work negative of HSV 1 and 2 for 30 years. The asymptomatic man who gave it to me was POSITIVE for HSV1 via IgG test and without his knowledge had sex with me. (he was tested after my outbreak). I now have genital herpes for the rest of my life. He destroyed me. If you are positive via IgG blood work you can infect someone and I’m living proof. Don’t be that person. 

Did u guys do oral to. Because now I have another question

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Lk2404 Honeycomb Member

Lk2404

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10 hours ago, Ashley738 said:

Did u guys do oral to. Because now I have another question

No he did not go down on me. Thankfully he didn’t because then we wouldn’t have been able to know if he had genital or oral hsv

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Ashley738 Honeycomb Member

Ashley738

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Hmmm? It makes me question becuse I hear that it’s very rare to pass Hsv1 genital to genital. I guess you just never know with this tho. My case still shocks me. I was with my sons dad 3 years. Never had an issue. My new partner I was with I was with for about a month before but didn’t have any symptoms until I decided I wanted to make things work out with my child’s dad and we made up and boomthe next day I was having vaginal irritation. My other partner never went down on me and he swears up and down he’s clean and he wouldn’t do that to me ever.  Around that time I had also smoked with my cousin who then told me she had hsv 1. Orally and it bugs me because I believe it can spread that way as well and it’s funny I caught it after she came back around and we shared a smoke. So I will never really know where I got it from. And even with the doctors telling me I’m fine I’m still taking precautions 

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Lk2404 Honeycomb Member

Lk2404

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2 hours ago, Ashley738 said:

Hmmm? It makes me question becuse I hear that it’s very rare to pass Hsv1 genital to genital. I guess you just never know with this tho. My case still shocks me. I was with my sons dad 3 years. Never had an issue. My new partner I was with I was with for about a month before but didn’t have any symptoms until I decided I wanted to make things work out with my child’s dad and we made up and boomthe next day I was having vaginal irritation. My other partner never went down on me and he swears up and down he’s clean and he wouldn’t do that to me ever.  Around that time I had also smoked with my cousin who then told me she had hsv 1. Orally and it bugs me because I believe it can spread that way as well and it’s funny I caught it after she came back around and we shared a smoke. So I will never really know where I got it from. And even with the doctors telling me I’m fine I’m still taking precautions 

Sorry to hear. I wasn’t one of those people who didn’t know who passed it to me. I was tested regularly. 100% you can pass HSV1 genital to genital. This virus does not discriminate. I would not give oral if you aren’t sure, or let your partner know that you have cold sores and it’s a risk if you do. That’s what I would do. 

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WannaCry Acknowledged Support Member

WannaCry

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When you say your results were super high, can you tell us your result numbers? We have had many people recently who have been being tested with inappropriate methods being told they are positive. (Crude antibody tests, IGM tests, combined tests = all of these are NOT correct methods to diagnose HSV infection of type 1 or 2) Please let us know the test type and your result numbers. @Ashley738

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Ashley738 Honeycomb Member

Ashley738

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my results were IGG 27.4 for HSV1

and I cannot remember if it was a combined test not. I’d have to glance at then whenever I’m back home

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WilsoInAus Platinum Support Member

WilsoInAus

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11 minutes ago, Ashley738 said:

my results were IGG 27.4 for HSV1

and I cannot remember if it was a combined test not. I’d have to glance at then whenever I’m back home

That helps a lot. There is the high likelihood that you have had an oral HSV-1 infection since childhood, even from before living memory. 

This does mean that you’re quite immune from a genital infection of HSV-1.

This would leave a HSV-2 infection as the the key herpes possibility. I would point out that most vaginal irritation of the nature you describe is not due to herpes and most people with genital herpes do not experience the irritation of the nature you describe.

I’d look to have a 16 week test post the last encounter with the previous partner for final confirmation.

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  • 3 weeks later...
Nowornever2017 Honeycomb Member

Nowornever2017

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I to have had nothing but an irritated cooch. Its been almost a yr. along with my pissed off kitty my throat has also been sore. 

Edited by Nowornever2017
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    • WilsoInAus
      HSV1/2 blood test results

      By WilsoInAus · Posted

      Welcome @Marlena correct you and your partner would benefit from the type specific version of the HSV test (meaning a separate result for HSV-1 and HSV-2). I had no idea the Euroimmun or equivalent actually had a combined version, it is pretty useless given the high incidence of HSV-1. Only one thing to add is that if you are getting frequent symptoms then you can obtain a swab and have this tested for HSV and other things as well.
    • WilsoInAus
      HELP - IS THIS HERPES?

      By WilsoInAus · Posted

      Yeah @FirstTimeUser there is nothing in the pic suggestive of genital herpes. It seems both you and your partner have HSV-1 orally and that's actually pretty cool. It means you won't pass it to each other's genitals owing to immunity. If the two of you are concerned about genital HSV-2 then mutually test for the IgG HSV-2 and HSV-1 antibodies.
    • CHT
      HELP - IS THIS HERPES?

      By CHT · Posted

      Hi "firstimeuser".... let's see what "WilsoinAus" thinks but, for what's it worth, I don't see anything in your picture (or description) that looks like herpes..... it actually looks more like a scrape or follicle issue.... maybe even a bug bite.  Also, by the way, the odds of having HSV2 with an outbreak on your testicles is very low.... that is not a typical spot for an HSV2 outbreak.    Have your doctor take a look and if you want some peace of mind, get an IgG antibody test for HSV2 in about 12 weeks (takes that long for antibodies to develop).... but, again, I don't think you have anything to worry about here.... just not seeing anything herpes-related here.    take care....best of luck.
    • CHT
      HSV1/2 blood test results

      By CHT · Posted

      Hi Marlena..... since you stated you've had "herpes on the lips" then you likely have oral HSV1, which the majority of adults worldwide have... the fact your results for HSV1/2 are positive (at least I believe that's what your results show - I don't speak Polish but, I think I'm seeing your results are positive based on the attachment you included) may simply be reading the fact that you have HSV1.... the question is whether you've contracted HSV2 in your genital area. Your description of symptoms could possibly be related to HSV but, it's difficult to verify with certainty based on your description. You may also have contracted a different type of sexually transmitted infection (STI) or a simple fungal infection.   Your doctor does not believe what he/she is seeing is HSV but, unless your doctor has experience with HSV, they could easily misdiagnose your condition.  You need full STI testing. Do you have the option to travel to a larger city in Poland where you could get an appointment to be seen by a doctor with more experience with STIs?  You really need to have an experienced doctor take a look and run tests to check specifically for HSV2 as well as other STIs.  If they can rule out HSV2 or other STIs then hopefully they can then determine what is causing the redness, itching, and swollen condition.... again, it may not be HSV2 but, you need proper testing to verify.  Have you talked to your boyfriend about all this?  Has he had any symptoms on his genitals that are suspect?  Has he taken any tests to check for STIs?   I hope you can get more definitive testing so you know what you are dealing with and how best to treat it.  If you have any other questions/concerns, please come back and let us know.... I hope this helps a little.... best of luck.... take care.
    • CHT
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      By CHT · Posted

      Hey Jeremy.... I know only too well that emotional pain you are feeling.... I really do.... and many of us on this site also know that pain.  It's not so much the physical side of having HSV that hurts, it's the stigma and risk of rejection that stings like hell!  You have to do what you think is right as it relates to when you disclose your HSV status when getting to know someone romantically.... I just think it's best to do it relatively early, and certainly before any sexual activity.   Have you looked into dating sites that cater to those with HSV?  I know others have had some luck with meeting partners on these sites.... you don't have to worry about the "disclosure" talk nor would you obviously have to worry about passing along a virus the other person already has.... take a few minutes and search around and see if it's an option you like. By the way, by taking your daily antiviral med and using a condom, your risk of passing along the virus is down around 1.9%.... pretty good odds that if you stick to your regimen you are very unlikely to transmit the virus....keep that in mind when you meet your next girlfriend and need to have "the talk."  That statistic might help calm any concerns about contracting the virus from you. I hope you don't give up.... as tough as it can be to find the right partner, it's still worth trying.... try to stay optimistic and look into some alternate options and see what happens.... all the best.... take care.
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