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I need a good vent i guess...


hunger4more

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Im not sure how this thing is for other people but having both oral and genital hsv has crippled my life on all levels... tbh id prefer having just one if I had the choice id take genital over oral without question.

The fact that this thing decides when its going to show up, how big of a spot, where and how long it will take to heal is unbearable. I live in constant fear of making plans, I've lost any and all career aspirations. Ive become complacent and uninspired. It truly feels like a form of inprisonment. The unpredictability is devastating and whats worse is, anytime I listen to or watch anything from a time in my life before i conracted this nuisance I just wish I could go back to that sense of freedom. 

All hope to ever find a mate is gone as well. Im not interested in potentially exchanging or aquiring other strains of this thing...

Anyone else feel like this? I get more like this during an ob. The fact that im not in control of looking my best at any given time is the absolute worst. I dont want to go to work or be seen. Ill hibernate as much as I can until i eventually clears up.

Thid time round i can actually some what eat food without having to only carefully open my mouth as to not crack the scab smfh... 

Lastly, sure theres worse diseases/illnesses to have in life but that isnt a fair observation. It doesnt lessen this reality. Are we really going to wait around until truly most of the population has this before science takes this serious? 

Sidenote I do not take any over the counter meds for this. Ive been able to minimize ob with both diet and hq oregano oil supplements. I also treat ob with turmeric, coconut oil and hydrogen peroxide. Im not interested in destroying my liver for a subpar and minimally effective treatment (from what ive heard) with potential side effects (head aches nausea etc) it isnt worth it for me. 

As far as Im concerned the medical industry currently has no "treatment for this and it's appaulling. Whats more appaulling is people walking around spreading this unknowingly and knowingly in essence with a license to kill...

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I feel the same way... And I have at least the oral version, though I've had itching and a rash in my groin for almost 4 months. I too look at my pictures and videos from the past and I feel robbed of my past happy self. I just turned 40 last Decmeber 2017 and the next month is when I got HSV1 and the next month, I got something... probably HSV2, though no tests can confirm it. Really tough luck... I'm really trying to find happiness, but my body is having a hard time suppressing the virus(es). I don't have a good answer unfortunately. I live in hopes of a cure and not spreading anything to my daughters. I wish you health and happiness and hope science will one day find a way to rid humans of these and other diseases.

Edited by jermhoop
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  • 10 months later...

I hate it 😔 i dont get a tingle or any of that cute bullshit i go to sleep and legit wake up with a whopper on my face. I then treat it with anything i can to reduce the time i have and the little prick still takes the full 14 days to heal 🤬🤬  because for some reason my scab always takes so long to go away . They need to find a cure im 28 and i have had coldsores since i was 6 yrs old .  Whats worse it always.comes pops up when a holiday happens and you have already planned to spend it with heaps of peoole so i cant even hibernate. Ugh stupid virus !!!! Thanks for the vent guys 

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I know how you feel. I’m 33 been getting them since 3 years old. And mine can be anywhere lips, above them or below them, my nose. 

 

So brutal. I hide from the sun, don’t eat nuts, lather myself in sunscreen when in the sun. Every day when I wake up check my face in the mirror and at night to try to spot one coming. But like you I never catch them before. 

 

We need the damn cure already. I wish I had genital outbreaks that would make it 90% better. When we get them the whole world knows it and stares or someone says something. I tend to hide out and look away when I have them. 

 

Im in shape fairly attractive luckily married so don’t have it as hard as some. But I know the feeling all so well and feel your pain.

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On 4/17/2019 at 10:53 PM, J N said:

I know how you feel. I’m 33 been getting them since 3 years old. And mine can be anywhere lips, above them or below them, my nose. 

 

So brutal. I hide from the sun, don’t eat nuts, lather myself in sunscreen when in the sun. Every day when I wake up check my face in the mirror and at night to try to spot one coming. But like you I never catch them before. 

 

We need the damn cure already. I wish I had genital outbreaks that would make it 90% better. When we get them the whole world knows it and stares or someone says something. I tend to hide out and look away when I have them. 

 

Im in shape fairly attractive luckily married so don’t have it as hard as some. But I know the feeling all so well and feel your pain.

GIRL!! I have been struggling too my whole life. Literally having a breakdown every time I feel the tingle, running to CVS and trying every cure in the book but still they'd last the whole 8 days... finally I had enough and made a music video OWNING my cold sore

Repost it & share your tips and tricks to help people shorten the lives of their sores!!! #realslimsorechallenge ❤️❤️❤️ 

 

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    • WilsoInAus
      Welcome @Marlena correct you and your partner would benefit from the type specific version of the HSV test (meaning a separate result for HSV-1 and HSV-2). I had no idea the Euroimmun or equivalent actually had a combined version, it is pretty useless given the high incidence of HSV-1. Only one thing to add is that if you are getting frequent symptoms then you can obtain a swab and have this tested for HSV and other things as well.
    • WilsoInAus
      Yeah @FirstTimeUser there is nothing in the pic suggestive of genital herpes. It seems both you and your partner have HSV-1 orally and that's actually pretty cool. It means you won't pass it to each other's genitals owing to immunity. If the two of you are concerned about genital HSV-2 then mutually test for the IgG HSV-2 and HSV-1 antibodies.
    • CHT
      Hi "firstimeuser".... let's see what "WilsoinAus" thinks but, for what's it worth, I don't see anything in your picture (or description) that looks like herpes..... it actually looks more like a scrape or follicle issue.... maybe even a bug bite.  Also, by the way, the odds of having HSV2 with an outbreak on your testicles is very low.... that is not a typical spot for an HSV2 outbreak.    Have your doctor take a look and if you want some peace of mind, get an IgG antibody test for HSV2 in about 12 weeks (takes that long for antibodies to develop).... but, again, I don't think you have anything to worry about here.... just not seeing anything herpes-related here.    take care....best of luck.
    • CHT
      Hi Marlena..... since you stated you've had "herpes on the lips" then you likely have oral HSV1, which the majority of adults worldwide have... the fact your results for HSV1/2 are positive (at least I believe that's what your results show - I don't speak Polish but, I think I'm seeing your results are positive based on the attachment you included) may simply be reading the fact that you have HSV1.... the question is whether you've contracted HSV2 in your genital area. Your description of symptoms could possibly be related to HSV but, it's difficult to verify with certainty based on your description. You may also have contracted a different type of sexually transmitted infection (STI) or a simple fungal infection.   Your doctor does not believe what he/she is seeing is HSV but, unless your doctor has experience with HSV, they could easily misdiagnose your condition.  You need full STI testing. Do you have the option to travel to a larger city in Poland where you could get an appointment to be seen by a doctor with more experience with STIs?  You really need to have an experienced doctor take a look and run tests to check specifically for HSV2 as well as other STIs.  If they can rule out HSV2 or other STIs then hopefully they can then determine what is causing the redness, itching, and swollen condition.... again, it may not be HSV2 but, you need proper testing to verify.  Have you talked to your boyfriend about all this?  Has he had any symptoms on his genitals that are suspect?  Has he taken any tests to check for STIs?   I hope you can get more definitive testing so you know what you are dealing with and how best to treat it.  If you have any other questions/concerns, please come back and let us know.... I hope this helps a little.... best of luck.... take care.
    • CHT
      Hey Jeremy.... I know only too well that emotional pain you are feeling.... I really do.... and many of us on this site also know that pain.  It's not so much the physical side of having HSV that hurts, it's the stigma and risk of rejection that stings like hell!  You have to do what you think is right as it relates to when you disclose your HSV status when getting to know someone romantically.... I just think it's best to do it relatively early, and certainly before any sexual activity.   Have you looked into dating sites that cater to those with HSV?  I know others have had some luck with meeting partners on these sites.... you don't have to worry about the "disclosure" talk nor would you obviously have to worry about passing along a virus the other person already has.... take a few minutes and search around and see if it's an option you like. By the way, by taking your daily antiviral med and using a condom, your risk of passing along the virus is down around 1.9%.... pretty good odds that if you stick to your regimen you are very unlikely to transmit the virus....keep that in mind when you meet your next girlfriend and need to have "the talk."  That statistic might help calm any concerns about contracting the virus from you. I hope you don't give up.... as tough as it can be to find the right partner, it's still worth trying.... try to stay optimistic and look into some alternate options and see what happens.... all the best.... take care.
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