I had my first HSV2 outbreak 8 years ago.
The first one is the worst -- the actual outbreak hurts like hell. The outbreak itself was very tiny and localized in a small genital area. However It came with side effects I didn't expect like an acute and intense tingling sensation in my lower back, buttocks, and spread down to my feet/toes.
Fast forward years.
I rarely get actual outbreaks if ever.
But I do experience that intense nerve pain I remember that comes before an outbreak manifests as a skin lesion.
So now the outbreaks don't happen, but the prodrome pre-tingles happen often. Except now those piercing sharp tingles aren't just perceptible in the aforementioned areas. I feel it all over my body intermittently - neck, shoulders, arm, yes leg and lower back, foot, etc..
To emphasize, I never experienced any chronic pain remotely similar to "herpes tingles" pre- first HSV 2 outbreak.
Does this pain sound familiar to you? Has it migrated outside of where it was when you first had an outbreak? When I bring this up to multiple doctors, I'm baffled that they have no idea what I'm talking about. Or don't see the connection between the nerve(?) /lymph node (?) pain / neuralgia/ paresthesia and HSV. Every time I see a "Lyrica" commercial for fibromyalgia I think to myself, "well this is fucking it. this is what I'm feeling/experiencing in my body." Is there a link between fibromyalgia and herpes? I wonder how many patients diagnosed with fibromyalgia have either HSV 1/ HSV 2/ shingles/ varicella-zoster viruses or something related? It seems to me there is a there there. But I also feel I'm being gas lit by the world and that in general researchers / HCPs are too "embarrassed" to even commit to research around the "not talked about" symptoms of HSV; or even HSV in general. How can herpes be so "common" and yet not a single medical professional is conversant in the totality of the disease or specializing in it? >_< Not related, but where can I purchase acyclovir cream? That stuff is like contraband in the USA lol. ugh this country sucks in this arena.
I am curious to know what is going on with me. I tested positive for hsv1 about a year ago when i went in for a std check just cuz i was curious, which is no big deal. My docs and I believe it to be oral and i dont think my body is that amazing at suppressing this either if i did have it in the genitals since im also a chain smoker (my immune system sucks), and when i was a kid i remember having sores in my mouth that burned and stung like crazy. Also my family gets cold sores every once in a while. But something odd happened and im just curious. my gf and i are doing long distance. she came to visit me for a week in aug where we basically had sex everyday, twice a day. oral, vaginal and anal, all unprotected. Please dont try to convince me that my gf is also cheating.
Anyways, a little after she left back in august i switched to E-ciggs and have been smoking that a lot to the point where i had cotton mouth and dehydration. When i pee in the morning it would hurt a bit, nothing crazy, mostly since pee is concentrated in the morning. A week later while playing computer games, it was really hot and humid and i had an itch on my scrotum. I guess i was really frustrated i lost the game so i took it out on my itch by pulling the skin through my boxers and i was left with an abrasion that my doctor took a look at the very next day. My doctor told me it was a simple abrasion and if more pop up or doesnt heal within a few days then come back. well, in about 2 to 3 days it healed up with no scab.
After two weeks and still having some burning urination, i still masturbated thinking it was nothing. While masturbating I guess i didnt want to finish and i squeezed my penis while it was on the verge of ejaculating and my cum went up and down and then i shot. It left this throbbing feeling in my urethra, and again thought nothing of it and went to sleep. The next day my urethra was super itchy, it was for a few days until i had white discharge. Got seen by a urologist and my test came out as negative, nothing and said it was NGU.
I asked my gf to take an std test and she did. She was positive for HSV 1 IGG and also had BV ( common in women), ureaplasma urealyticum, and mycoplasma hominis. I found out through some research and my urologist that it can cause ngu and rarely/uncommon for ngu to be caused by herpes and i dont think it was in my urethra otherwise i would be in extreme pain. I also had Ureaplasma U back when i was in Korea and took two weeks of doxcy. my urologist gave me 7 days of doxy, while taking the doxcy it took about four to five days for my symptoms to clear up, but i still had some burning urination. I also still dry masturbated and felt some friction burns under the helmet of my penis next and thought nothing of it and took a shower. I used this exfoliating soap by dove that contained micro beads( at the time i didnt know), lathered it in my hands and washed my penis with it, which afterwards my penis helmet was pink and had some bumps and a cool burning sensation. This was gone the next day after flushing it with cold water. But stupid me i kept masturbating and it really irritated my penis. I feel like the soap stripped my penis of its natural oils and dried out my skin. But somehow i didnt feel like the doctors were helping me. So after a full blood test for HIV, HSV 1 & 2 IGG, hep B, C, and syphilis, all negative except hsv 1, after 6 weeks. and seeing 5 general doctors, PCP, and 2 urologists that tell me im fine and its friction burn and burst blood vessels under the helmet of my penis, which are called petechiae( not too sure), im going nuts. Im hyper aware of every little movement thats going on down there and its driving me crazy. Also i used this lube from tenga (sex toy company) and a fleshlight so i dont dry masturbate and it seemed to have made it worse. does any of this or these symptoms say i have ghsv1? I do have some burning every now and then and some pee that hurts every now and then, (still didnt give my penis a break from masturbating btw) but i dont know if this is all in my head or just something else. My doctor and a friend who has hsv tell me you would definitely know if you have it in your urethra and herpes arent going to stay teeny tiny there going to swell and cluster. I also am fully aware of some of the symptoms hsv cuz of a scare that happened a few years ago and i did some crazy research and went to about 12 different doctors, which ended with i just tore some skin off my penis while pulling off the condom. Could these broken blood vessels be the cause of my burning sensation near the tip of my urethra or under the glans? does herpes have pain for a few hrs and no pain for a few hrs? cant seem to pin point where the actual pain is coming from. Is this contact dermatitis or allergic? also the glans of my penis seem to be pretty red, or from what i see but my doctors say im fine. please help me, its driving me insane. just to add, i didnt have flu symptoms, no initial out break ever or so i recall, maybe a pimple or two in my pubic hair area, which actually looked like a pimple and went away in a week. i was cold but not to the point where i was shivering, i guess its due to my anxiety and stress and i check my penis like every day or so, did have back pain in my buttocks and behind my knee, but i sit in this cross leg position dont want to be sexist but how usually women sit with there legs crossed, for hrs. also no blisters or sores other than that one abrasion which healed up and never came back and broken blood vessels that look like red dots examined by the doctor, i mean its tiny tiny purple dots. Sorry, one more thing i also did a urethra swab but apparently the doctor who did it, said it was the wrong one after a few days, but by then i didnt have symptoms since the doxcy cleared it up. that urethra swab was extremely painful and pee that came afterwards was nothing ive felt before. it was worse than breaking your collar bone. Male in my late 20s.
I'm freaking out, I must be such a horrible person. It was a little over a year since I've be in any kind of relationship or had sex. Recently, things got heated with a guy and I. For various reason I solely wanted a physical affair. But now I feel like I made yet another mistake. We did not have intercourse because we didnt have condoms. We did fool around and he gave me oral sex. I'm freaking out because I have HSV2. I'm scared with him giving my oral sex I've passed the virus on to him. We havent spoken since that night which is another reason why I'm so distraught over this. Any thoughts? Please, also, dont judge me. I have yet to come to terms with myself in telling ANYONE that I live with this virus. I dont know how I'll ever have a regular relationship or fall in love. I just need a little light shed, if any..