Jump to content
World's Largest Herpes Support Group
Nowornever2017

Kitty still feels off!

Recommended Posts

Nowornever2017

It has been almost a yr & my vag is still pissed off at the world! How long until i feel normal down there? 

 

Dx GHSV1. No sores since 1st out break last aug. but im sore down there. Irritated. Red. Constantly feel raw. 

Messed around with a guy a week ago & i was so swollen from it! Felt like i had cow lips between my legs. 

 

Would love some insight! 

Share this post


Link to post
Share on other sites
Scooby2112

I am a boy and have the same thing just on my penis.  I also still get burning on my legs constantly   

I have never experienced actual blisters though   

But sex definitely inflames the penis   I tried a lot of creams etc  but I think that made it even worse   

Doctors think it may be a nerve issue maybe triggered by H but not actually H

I have just started cymbalta but after two days still have nerve sensations and really drowsy.   

YOu might need to see your gyne to make sure nothing else is going on BV and yeast etc.  

Share this post


Link to post
Share on other sites
Nowornever2017
3 hours ago, Scooby2112 said:

I am a boy and have the same thing just on my penis.  I also still get burning on my legs constantly   

I have never experienced actual blisters though   

But sex definitely inflames the penis   I tried a lot of creams etc  but I think that made it even worse   

Doctors think it may be a nerve issue maybe triggered by H but not actually H

I have just started cymbalta but after two days still have nerve sensations and really drowsy.   

YOu might need to see your gyne to make sure nothing else is going on BV and yeast etc.  

Thank you...ive gone to a couple diff docs & they look between my legs & say, welp all looks well. & thats it. One doc told me its all in my head & gave me a cream. (Like a antifungel cream or something) I just want me kitty to fell better! Ugh. 

 

Hope you figure something out as well. Keep me posted please! :)

Share this post


Link to post
Share on other sites
justanothersufferer

could you try suppressive valtrex for a few months and see if it goes away?

Share this post


Link to post
Share on other sites
Nowornever2017
2 hours ago, justanothersufferer said:

could you try suppressive valtrex for a few months and see if it goes away?

I have been actually. Just bummed my dose up to 1000mg a day, was only taking 500 a day for the past couple months. Im hopin it helps. Its been a week & a halfish. 

Share this post


Link to post
Share on other sites
justanothersufferer

ah, yea i've been on 500mg haven't taken any in a long while now, but use to take it daily.

when i was first diagnosed for the first year i'd get neurological stuff all the time. twitches, itchiness, tingling etc. but its been a few years since i've felt that. 

Share this post


Link to post
Share on other sites
Scooby2112

Please let me know how antiviral work for you.  I have been considering going in them as well as the cymbalta to try to get things back to normal   

The hard part is how do I know when I may be shedding if I have constant sensations and can’t tell the difference between it and prodrome. 

 

@justanothersufferer were your sensations constant? Or just here and there?  Did you get them on your thighs mine is mainly burning sensation on the front of my thighs. But I also get some sensations down the back of my thighs that feels more like a chill that runs down.  

I have a spot on my glans that seems slightly pink like raw skin but never had a blister there.  Seems like it's always there.  

Then twitchy/pinchy feeling on my testicles.  

 

Share this post


Link to post
Share on other sites
Scooby2112
11 hours ago, Nowornever2017 said:

Thank you...ive gone to a couple diff docs & they look between my legs & say, welp all looks well. & thats it. One doc told me its all in my head & gave me a cream. (Like a antifungel cream or something) I just want me kitty to fell better! Ugh. 

 

Hope you figure something out as well. Keep me posted please! :)

I have been to many Dr that look and say I don't even have H because it's not typical blisters.  Then I say my legs burn and they look and say my skin is fine.  Like you one told me that I should consider getting a psychiatrist.  

How was your first outbreak?   

Did you get anti-virals early on?  Since my Drs didn't believe anything was going on I had to go to about 6 doctors before someone let me try some but they still didn't believe I had anything. 

 

Share this post


Link to post
Share on other sites
G77

I got infected 8 weeks ago and my vag has been itchy and burning ever since! Really hope it goes away eventually as it can be pretty awkward when I'm at work and I have to itch! I've found coconut oil really helps though..it stops the itch and soothes the burn. 

Share this post


Link to post
Share on other sites
Scooby2112

Burning only on the kitty? Or do you have pain elsewhere too?

Share this post


Link to post
Share on other sites
Nowornever2017
2 hours ago, Scooby2112 said:

Burning only on the kitty? Or do you have pain elsewhere too?

Me or Gilly?

Share this post


Link to post
Share on other sites
justanothersufferer
On 6/30/2018 at 10:31 AM, Scooby2112 said:

Please let me know how antiviral work for you.  I have been considering going in them as well as the cymbalta to try to get things back to normal   

The hard part is how do I know when I may be shedding if I have constant sensations and can’t tell the difference between it and prodrome. 

 

@justanothersufferer were your sensations constant? Or just here and there?  Did you get them on your thighs mine is mainly burning sensation on the front of my thighs. But I also get some sensations down the back of my thighs that feels more like a chill that runs down.  

 I have a spot on my glans that seems slightly pink like raw skin but never had a blister there.  Seems like it's always there.  

Then twitchy/pinchy feeling on my testicles.  

 

For many months they were constant. After the first year it sorta eased up for the most part. I think I had a few instances where for a month or so I felt tingly, itchy, and had weird jolt like twitches every once in a while. However out of my 4 years having hsv2 the last two have generally been a breeze.

I've noticed a few folks on this forum suggest that after about a year things get easier. That was generally accurate for me!

Share this post


Link to post
Share on other sites
whyme24
On 6/30/2018 at 5:36 PM, Scooby2112 said:

I have been to many Dr that look and say I don't even have H because it's not typical blisters.  Then I say my legs burn and they look and say my skin is fine.  Like you one told me that I should consider getting a psychiatrist.  

How was your first outbreak?   

Did you get anti-virals early on?  Since my Drs didn't believe anything was going on I had to go to about 6 doctors before someone let me try some but they still didn't believe I had anything. 

 

It is definetely herpes related. It is just not written in the medicine literature thats why so many doctors dont know.Actually even they do know there is not much to do. Again bone or joint aches are also related. It is an autoimmune issue.Try vitamin b12 get some nerve meds and just wait. But you should go to a good neourologist otherwise they will keep saying you it is not herpes related. But even symtoms are so definite for nerve issues ehhh going med school is not making a person clever i guess.

Share this post


Link to post
Share on other sites
KMB
Posted (edited)

I’m going through the exact same thing. I was diagnosed 2 months ago and have never had a blister/sore. Just almost constant discomfort, burning, itching. I feel like I’m getting no help at all from my doctor-although I am taking meds 1000 mg a day. The depression is really starting to get to me too-I’m holding out hope that it will get better and I will have more good days than bad but it’s really hard-just want to feel normal again. @Nowornever2017

Edited by KMB

Share this post


Link to post
Share on other sites
floridaguy

It's the same thing with everyone I see. You tell Dr. something is not right they tell you it's all in your head. But we feel the pain all the to real. I experience tingling, itching and shooting pains down there as well. I get pains on my penis head and inside. I dont get outbreaks tho. Drs say it's not herpes related because herpes symptoms dont linger on they stop. Man this damn virus is the devil. 

Share this post


Link to post
Share on other sites
KMB

@floridaguy it really feels like there is NO support for this. I asked my doctor if I should come back if I get an outbreak and she said no. Plus the emotional toll it takes. I googled support groups today and couldn’t find anything. So I’m basically left to just suffer alone. 

Share this post


Link to post
Share on other sites
Inlimbo

KMB have you tried a probiotic? I'm very recently diagnosed but along with antiviral I've started a probiotic for gut and vaginal health. 

Share this post


Link to post
Share on other sites
Terrell
On 6/29/2018 at 7:43 PM, Scooby2112 said:

I am a boy and have the same thing just on my penis.  I also still get burning on my legs constantly   

I have never experienced actual blisters though   

But sex definitely inflames the penis   I tried a lot of creams etc  but I think that made it even worse   

Doctors think it may be a nerve issue maybe triggered by H but not actually H

I have just started cymbalta but after two days still have nerve sensations and really drowsy.   

YOu might need to see your gyne to make sure nothing else is going on BV and yeast etc.  

How long have you had it? Because I don’t experience that however initially I did.

On 6/29/2018 at 2:33 PM, Nowornever2017 said:

It has been almost a yr & my vag is still pissed off at the world! How long until i feel normal down there? 

 

Dx GHSV1. No sores since 1st out break last aug. but im sore down there. Irritated. Red. Constantly feel raw. 

Messed around with a guy a week ago & i was so swollen from it! Felt like i had cow lips between my legs. 

 

Would love some insight! 

Patience sweetheart it will subside. Thank God I told myself 

Share this post


Link to post
Share on other sites
Scooby2112
Posted (edited)
10 hours ago, Terrell said:

How long have you had it? Because I don’t experience that however initially I did.

I am coming up on 1 year.  It has not been a fun experience.  I hear of others that say that they feel normal.  I definitely have not felt normal in a year.  

It's hard to even know when I am shedding  how can I minimize transmission When you have irritation all the time?

Edited by Scooby2112

Share this post


Link to post
Share on other sites
brookeb300

I have it all of the time too

Share this post


Link to post
Share on other sites
KMB

@Inlimbo I have not tried a probiotic. I’m taking vitamin c daily for immune boosting purposes and Lysine for suppression of cold sores. I’ve seen so many different suggestions I don’t even know what to do! 

Share this post


Link to post
Share on other sites
Scooby2112

Just know that nothing has been proven to help Herpes. 

That doesn't mean it doesn't help some just across a broad population there is not data that supports any of the vitamins etc at doing any better than placebo.  

Share this post


Link to post
Share on other sites
Terrell
On 7/11/2018 at 7:55 AM, Scooby2112 said:

I am coming up on 1 year.  It has not been a fun experience.  I hear of others that say that they feel normal.  I definitely have not felt normal in a year.  

It's hard to even know when I am shedding  how can I minimize transmission When you have irritation all the time?

Please buy a book on immunology rather being mislead you can gain an understanding of the immune system. Patience is essentially in our unprecedented situation. I thought i would never feel normal again however I was wrong. Law off attraction please think positive 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Advertisement

Try a Lysine supplement for cold sores

  • The Hive is Thriving!

    • Total Topics
      67,716
    • Total Posts
      451,066
  • Posts

    • SillyGirlMel
      I agree, but funny thing is that I didn't check to see what they tested for until after I got HVS2, and then I looked at the testing panel and realized that testing for HVS2 is not required for this industry, it's not something they disclose to you, it's something you have to figure out for yourself.  There isn't an orientation or anything for this field of work and many girls are 18, just out of high school, some still in, when they enter... It's something I'm trying to figure out how to change... Personally as a solo and girl/girl only performer, I see a lot of good in the adult industry if they just tweaked things such as testing for HSV2, or disclosing that they don't beforehand.
    • HerpesDumbAf
      Okay so I want some physical pains, emotional pains, psychological pains, etc to how this has affected you! I’m doing this so I can have some background on not just me but for EVERYONE who experiences chronic pains or mental pains or more when I go meet with the head GYN to talk about and I quote    “You are certainly welcome to schedule an appointment with one of the other GYN providers who are in clinic this month especially if you have questions or concerns about your own health. I believe Fadyia was trying to connect us as you raised concerns about areas affecting all students in which case I’d be happy to meet and discuss when I return. J “    but the only physical pain I’ve experienced was severe nerve pain and blisters but they’ve healed and never returned , and the only mental pain i experience is when knowing you’re the “only one who has it” but I want to hear from YOU guys so I can have some backbone To why this should be talked about more when she returns. I mean everyone says we should give back to the community. So type the problems/concerns below and I’ll check them and when she returns I’ll state them! 
    • HerpesDumbAf
      Well hell if they don’t test then that’s the risk everyone takes   
    • SillyGirlMel
      I recently had to build up courage to disclose, but it was after I already had intimacy with him, I know you won't make the same mistake I did... but I think disclosing AFTER is much harder than BEFORE so let me tell you how I got myself to finally pick-up the phone and tell him... 1. I watched a lot of youtube videos about how it's the right thing to do and HAVE to do. 2.I googled about other people in my situation and how to disclose. 3.I texted him telling him that I have something I needed to tell him, then I called after he said it was good to call, and I just Nike! (Do it/Did it) The common advice I found on every google suggestion and youtube video is to "STAY CALM", he will feed off of your emotion so be calm, and be informative without being too informative/overwhelming him. I only disclosed today, but I do know that the conversation went well for what it was and for being over the phone... What happens next I don't know, I cried after I got off the phone because I felt so awful. And though I think he knew I felt guilty, ashamed and whole bunch of other things, I didn't let it take-over the discussion of what's important which is letting him know that HE will be okay, and that HSV2 is okay, common, and treatable although incurable, also the statistics of the likeliness to spread.  There has been MANY cases where one person DOESN'T spread it to their partner long as they both take precautions. I know I messed up, so I'm not the best person to get advice from, but I hope this helps at least a little bit.  If you need any youtube video references, let me know.
    • Hockeyawesome1
      I’m going to be working outside in Florida and want to know how to stop cold sores in the sun 
×

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.