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Nivi

Conflicting results. Help!

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Nivi

Hi,

I have had symptoms like genital inflammation, burning mouth syndrome and swollen lymph nodes in the neck.

So in April I got tested for STDs and have 1 was 1.4 and hsv 2 came out to be 1.45 igg, which was positive. Doctors told me it can't be confirmed since I don't get typical blisters. But I took antivirals for 15-20 days. 

The problem is 2 days back I got tested again and my combined igg is .5 and igm is .34. both of which are negative. I still have inflammation on and off.

Is it herpes? My problems started in August last year and in November it became worse. Till now I thought I had herpes, but I am confused now.

Please help

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WilsoInAus

I am sorry to say that the IgG testing may be letting you down. It may be worthwhile considering a Westernblot blood antibody test and you can take the result as definitive.

Your symptoms would not at all be typical of a herpes infection, certainly not if these symptoms are persistent.

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Nivi

I live in India. 

For a brief second I thought I could move on and try and figure out what else it can be. How the fuck will people know if they have herpes if the commonly available tests are shit.

I need to know if this something else or herpes, so that I can treat it. Taking antivirals for 15-20 days didn't seem to help a bit. I don't know how to get Western blot in india

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WannaCry

Your result was in the low positive range, which can be a false positive result. Especially with the fact that testing later resulted in very low numbers. If you continue to not have any traditional lesions and again test with low results, it's probably not HSV that is the issue.

Yes there are issues with the HSV testing. If anything HSV II testing could be considered 'too sensitive' but at the moment outside of the western blot it is the best option we have.

And as far as the Western Blot goes, it cannot be automated which is why it is only available in a very limited capacity.

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WilsoInAus

I think it is best to unscramble a few things here.

First is that your symptoms in all likelihood are not related to herpes. You are just aligning these symptoms with your test results which does not automaticallly follow at all. I would reapproach your doctor with a blank mind on what the causes might be for your issues. If there was no change in symptoms after three weeks including taking antivirals the rest assured this isn’t herpes related.

Second is an accurate read on your herpes status. The Westernblot would not be available to you easily. What I recommend you do though is request that your doctor look up the pathology catalogue and order a Euroimmun test type specific for HSV-1 and HSV-2.

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Nivi
Posted (edited)

Thank you for your reply. My problem is that every doctor dismisses my case as nothing serious. 

I have weird sensations in the mouth/burnt tongue tip and itching in anal region which can get painful if I take part in some strenuous activity. I can feel some bumps sometimes but nothing external. All started with numbness in feet and vagina :(

I guess I have to first see gynae then gastroenterologist to make sure nothing is bad. Have been to ent too many times.

If anybody has had a similar journey or can share insights into what to do. Please let me know. This has been a very costly and mentally draining journey

Edited by Nivi

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vanish123
On 7/10/2018 at 12:28 PM, Nivi said:

Hi,

I have had symptoms like genital inflammation, burning mouth syndrome and swollen lymph nodes in the neck.

So in April I got tested for STDs and have 1 was 1.4 and hsv 2 came out to be 1.45 igg, which was positive. Doctors told me it can't be confirmed since I don't get typical blisters. But I took antivirals for 15-20 days. 

The problem is 2 days back I got tested again and my combined igg is .5 and igm is .34. both of which are negative. I still have inflammation on and off.

Is it herpes? My problems started in August last year and in November it became worse. Till now I thought I had herpes, but I am confused now.

Please help

See this article.  I would say that it is Herpes.   I have burning mouth syndrome and have to take a lot of antivirals.  Was valtrex then famicyclovir, then acyclovir.  https://www.google.com/amp/s/amp.livescience.com/50455-burning-mouth-syndrome-herpes.html

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