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ElasticHeart

Trying to have a better understanding.

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ElasticHeart

Hello everyone!! this is all new to me and I am trying to have a better understanding with whats happening to me. I was recently told by my partner that he was diagnosed with Herps 2. My initial reaction was not about my feelings it was about how is he doing feeling, instead of going into a blame game or storming out I wanted to make sure he was ok before myself. Now shortly after our conversation I got tested and found that I was positive as well. The doctor was extremely helpful and explain what was happening in detail because I was on my way to a full BREAKDOWN, tears, shock, I wanted a blanket and to be held. Here I was at the doctors office alone and she said Yes you do have Herpes 2. Now here is whats to expect. I tested positive for being exposed because there is no real test to show that I have it until I have a OB. She explained as bad as it may sound this is common in the world we live in now. truthfully there was nothing that was registering to me as she was speaking because I was in a dazed state. Kinda like shock but times 200. I literally went from having a few questions common ones like whats the chances to having millions of questions ( well maybe not millions but a lot more than before she told me I was positive). I wanted to speak to someone who can tell me hey this is what you should do. or sit there and say well this is what experience I've had and this can help, to girl this is what you need to take cause the pain is bad. I was in a state of confusion. Nothing was helping me get out of a state of depression. Then my partner tells me hey stress is one of the things that triggers out breaks. Truthfully I wanted to punch him in the kneecap because hello thats all I've been doing, I did not want to put my millions of questions on him, that and my stress was adding on to his possibly giving him a higher chance of an outbreak and not to mention he felt guilty because I got this from him. Now why would I was to stress him more. Heck it was the blind leading the blind. I wanted to know what kind of pain I was going to be going through. is it like child birth cause come on why the pain and no real cure. modern medicine has grown since the 80s. Then because I was stressing Im having my first out break. It feels like I was hit by a truck, bus, and then going into labor with an elephant baby. Pain is an understatement. I feel like I have grown a balls down there cause its so swollen. My partner I can look at him and Im trying my best not to express the pain that I am in, because I see the guilt he is having. but Jesus help me!! this pain is bad. hiding it is becoming a challenge, its not everyday you give birth to an elephant either. But I can't hide it no more. I have sores internal where sitting is not comfortable nor is using the bathroom. Im just hoping there is relief in a day or so tops cause I am in extreme discomfort. plus confusion more like damnit I should have not stressed myself so much. like stress is apart of everyones daily life, how can I avoid it. The person that came up with that must have not had children, significant other, worked, had bills, heck lived in a house probably was a monk. Because once you find out its like my stress multiplied by thousands. I am sorry this is probably one of the weirdest confessions Ive had thus far. But I need something to help subside this. I am great at hiding my pain but this is too much. 

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Dutchy

Why should you hide your pain. I would guess understanding is way better if you both experience the same. Frustration is also in its place. 

It would be great if you could share.

This pain is going away and next OB will be nothing like this one.. Thats for sure. Hang in there, talk to eachother...Most people do not have someone to talk to... 

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  • Posts

    • Trace67
      It doesnt really mean much yet. They still dont know if the herpes is taking advantage of a diseased brain or causing the disease. Furthermore, there is evidence that Alzheimer's might be caused by oral spirochete disease and even Lyme. Many of you could have oral Spirochetes but the Lyme and is less likely. https://globallymealliance.org/pathogen-cause-alzheimers-disease/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5008232/ https://newsblog.drexel.edu/2016/02/10/do-infections-cause-alzheimers-disease/   Of course it could be both! Maybe having hsv-1 and oral spirochetes quadruples the risk.  In my opinion the spirochete theory sounds more likely and its hard to dismiss neurosurgeons and caretakers getting Alzheimers from a disease that was previously thought to be non contagious. I'd worry more about Spirochetes.  
    • Rgs77
      Did ldn work.
    • honkschonks
      I wonder if people in the military are tested for hsv, because the general public isn’t. You have to specifically ask for it and many doctors don’t even see the point because it’s “so common”. It’s very possible he has it and has no symptoms or very mild random symptoms. Sorry to hear what you’re dealing with. It seems like women’s symptoms are worse than men’s.
    • WilsoInAus
      No that’s not the issue at all. The absolute vast majority of nerve pain is not caused by herpes. Hence it cannot be used to reverse engineer a diagnosis of herpes. That is exceptinally dangerous and we must do all we can encourage proper diagnosis.
    • ill47
      Do you have an APOE4 gene? I do. I also have HSV-2, which so far hasn't been linked to dementia. Itzhaki previously found that cold sores occur more frequently in those who carry a gene variant that confers increased risk of Alzheimer’s called APOE-ε4. "Our theory is that in APOE-ε4 carriers, reactivation is more frequent or more harmful in HSV1-infected brain cells, which as a result accumulate damage that culminates in development of Alzheimer's," she said.

      So basically, if you carry the APOE4 gene and have oral HSV-1, you chances of dementia could be quite high. But if you have APOE4, your chances of dementia were higher already. Look, 80% of the population has HSV-1. 80% of the population does not get dementia. You also seem to skip over the fact that antiviral treatment can reduce the increased chances of dementia to almost nothing. "The striking results include evidence that the risk of senile dementia is much greater in those who are infected with HSV, and that anti-herpes antiviral treatment causes a dramatic decrease in number of those subjects severely affected by HSV1 who later develop dementia," Itzhaki said. The data from Taiwan only applies to the rare severe HSV1 or VZV infections. The next step will be to study dementia rates amongst people with mild HSV1 infections, including herpes labialis or mild genital herpes. "Considering that over 150 publications strongly support an HSV1 role in Alzheimer's, these Taiwan findings greatly justify usage of antiherpes antivirals - which are safe and well-tolerated - to treat Alzheimer's disease,” Itzhaki said."They also incentivize development of an HSV1 vaccine, which would likely be the most effective treatment." I think it behooves you to do your research and actually read the articles you are posting before pulling the alarm and trying to scare people. 
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