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f*ckedOver

Constant Outbreaks

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f*ckedOver

Has anyone here also experienced nearly constant outbreaks ? 

This fucking virus 1st showed face in my groin region --> inner thighs --> anus --> balls on occasion --> waist line --> then finally got one in my mouth --> scalp --> neck --> hands --> wrists --> arms --> random nerve pain in hands --> shins --> my stomach --> and now it's f*cking attacking my feet and toes.  I am so sick of the symptoms. 

I have taken multiple tests and do not show any positive tests, but the fact I got cold sores for the first time in my life 3X total within the the first 18 months of this psycho b*tch who straight up lied to me about being clean. I was exposed to the virus, she insisted on using lambskin condoms ( which offer no f*cking protection). I am so pissed. We eventually had sex with no condom ( am a dumbass for that one) well a dumbass period for trusting this woman.  She intentionally gave me the virus.

Anyways, the symptoms are nearly constant between all regions of my body now. I feel like a walking disease. I feel disgusting. I had very good health and ever since this my life has just fallen apart. As soon as one little sore pops up and heals, there is another 1,2, or 3 that has formed in a different part of my body. Doctors will not listen to me bc of my negative tests. I finally caved in and contacted Terri Warren and am in the process of having my diagnosis confirmed. I have taken full panels 3 x now with all negative tests for everything. 

I called my state health department and they told me there really is nothing that can be done to this woman. Just goes to show they don't think much of this virus, I wish I could be like other people having 1 - 6 outbreaks a year. Mine are literally constant. I eat healthy, exercise, steamroom, sauna, etc have always been healthy had my blood counts checked and they are "normal" .

 

Why is this virus kicking my ass ???? My immune system was good I thought, apparently it is shit. 

Only thing I can think of is possible food sensitivities ( I took a test 3 years ago before I had this virus and I had quite the list of foods that I am "sensitive" too and still eat. Like eggs, coffee etc. )They also told me I had high cortisol levels and my adrenal gland was very fatigued. Not sure how to even fix that and it makes me wonder if that has something to do with the immune function ? Are there any people who actually know what the heck they are talking about ? I am desperate for help. 

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f*ckedOver

** Exposed and infected January 2017

Symptoms were hit and miss the 1st year. 

March 2018 it has literally been nonstop and has somehow spread nearly everywhere. 

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WilsoInAus

There’s lots here that doesn’t sound like herpes.

What testing have you had done? The Westernblot? Why not a swab of these symptoms?

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Mrspinkk

Herpes'in vücudun diğer bölgelerine yayıldığını anlıyorum. 

This extremely rare condition. Can Shingles ? I think that would be a different kind of skin disease. 

You should go to the doctor as soon as possible. Notify us of developments

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hellohello111

I agree with Wilson. The negative tests are indicative that this may and likely is not HSV. A swab will confirm which is what docs should have done when you see them. If you’re having symptoms everywhere on your body, go in while they are active and have them swabbed. 

Honestly, it doesn’t sound like HSV and if by some off chance it is, you probably have a serious underlying health issue that is hindering your immune system. I’ve never heard of symptoms doing what you describe. 

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f*ckedOver

@WilsoInAus
@Mrspinkk
@Hellohello111


Well at first the symptoms were only in my groin region....they did not seem to start spreading until around 6 to 9 months later. They usually show face with about 1 -2 sores at time. They usually look like bug bites. 

Again, I realize this may not sound normal. But I got cold sores in the mouth for the first time in my life, I have read that if you get cold sores in the mouth that is specifically attributed to hsv infection. 

I have an appointment next week with Terri Warren in attempt to get the western blot infection. 

1) If it is not herpes, what else could this be ? The tiny sores that show up generally look like bug bites, but the one  on my foot right now looks like a pimple. It itches. They always seem to scab over. The sores in the beginning use to vary from looking like pimples, a couple of times they looked and felt like those painful zits you might have gotten on your face that were hard or impossible to pop,.....They almost always look mild.  The doctors have said dermatitis. I had a one sore last fall popped and swabbed as it was fresh and they did PCR DNA test and it came back negative. 

2) I am also in the works of getting an appointment with a dermatologist. 

3) Doctors will not listen to me, they have tested for my blood cell counts and said it was normal. I feel my immune system is not functioning as it should which is why I am wondering if adrenal fatigue could be a trigger for other issue ? 

If you guys were me, what tests would you be going after ? Sure I have read tons of academic journals, the blogs, and other peoples' stories . So I feel I have a decent understanding of this virus and how it works. Hence I was reading that if you get infection in the anus region, that it is the same dermal layer for your legs, feet ( dermal might not be the right word I know the virus stays in 2 different nerve regions). Even the nurse I last saw for STD paneling had mentioned that the "dermal layer" .SO if it's in the same dermal layer and related nerve region that it can strike anywhere in the lower body. 


I know my symptoms sounds bizarre, but if you read other peoples' stories it seems other people do in fact get sores on different parts of the body. 

4) The fact that I keep getting negative test after test, does that mean my body just can't fight the infection ? I thought there were other parts of the immune system that help fight infections ? 

On Terri Warren's forums you can find multiple instances where she says there are some people whom are infected, but never actually test positive. 

Any help, suggestions would be greatly appreciated. Thanks for responding ladies and gentleman. 
 

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IamPositive

First of all you need to calm yourself down a bit.. then you can think clearly what really happened, take the best approach to get a better diagnoses. So if you think that you are getting outbreak anywhere in your body like bump or blister, the first thing you should do is take the swab test.. then if another bump appears, do the swab test again.. so you could determine whether it’s herpes or just a normal skin problem. Sometimes fear makes us overwhelmed. I’ve been live with herpes for about 5 years. Unprotected sex with my husband who also HSV2+ All the time, perform unprotected oral sex thousand times probably, bukake, been through pregnancy and labour, had the worst outbreak in my life.. but the herpes never been infecting my face nor another part on my body(like breast etc etc). It’s just stay below my waist and above my knees area.

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Mrspinkk

Hastalıklar Eritema Multiforme yapabilirsiniz. HSV kaynaklı bir hastalıktır. Testi yapmanı tavsiye ederim

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WilsoInAus

Hey @f*ckedOver, I'll try to answer your questions and address things as I picked them up in your last post.

The general theme though is please keep curious and push on toward a diagnosis with sound testing and interpretation. Everything else is just speculation, and I can assure you nothing positive comes of that!

Note that most things inside the mouth are not as likely to be herpes-related as other issues. Even on the lips there are many issues such as staph, cheilitis etc. that can cause problems that look exactly like a herpes lesion.

1. Dermatitis is a general description of issues with your skin epidermis. There are a multitude of conditions that cause disruption and outcomes such as rashes, peeling, itching, pigmentation changes, lesions, sores, bumps etc.

2. This is your best bet; an experienced dermatologist will have a tremendous array of ideas. Their mind will race with possibilities but let them think and process. Don't be surprised if you get asked a lot of random sounding questions. There may not be a specific answer on the day, but ask them how you pursue the avenues that are in their head.

3. Don't guess, this may or may not have anything to do with your immune system. Blank your mind and see the dermatologist who can give you the best possible roadmap of testing from here.

4. In life, the most rational and simplest explanation is almost invariably the correct one. If you are consistently receiving negative PCR AND negative blood tests, the simplest, most rational explanation is that you do not have herpes.

On Terri's website you do find people who do not test positive on a Westernblot (ten or so that she is aware of). However they all swab positive!

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f*ckedOver

 

@WilsoInAus @IamPositive 


Thank you for the replies and thank you for not bashing me. 

I guess I just have a hard time believing that it is not herpes bc I never had these symptoms until after I had multiple rounds of sex (lambskin condoms) with this woman whom eventually told me she has HSV-2. One round, included no protection. 


About 2 -3 weeks later is when I first noticed a couple zit-like sores show up. About 8 weeks later about 10 - 15 of these sores show up. I think this was my primary outbreak.  Again I must stress, the symptoms were never this bad until March. In fact the best 3 months I had was when I did intermittent fasting, in which it was about every 4 weeks I would notice a couple very mild sores. 

Lastly, I should clarify some. Terri has documented that some people whom are infected, will never test + on the IGG . I honestly did not know that some people whom were infected did not show + on the Western Blot. I realize those are outliers, but that does kind of make me a tad nervous bc I thought it was pretty much fool proof, that test. I was under the impression it tested for more viral proteins or something of that sort, whereas the IGG does only one ? Please correct me if I am wrong, that is just my understanding based on what I have read about the IGG and Western Blot.

I have also read that Rational Vaccines had developed an amazing test ? Guessing it might never make it to the market if they can't bounce back after the bad media and basing they took. 

@Iampositive 

Please do not take this the wrong way, but if you search the web you can find plenty of information of how you can get infected and how it can spread and reactivate in any region of the body.  If you do enough digging you can find some, not many, but some people whom have experienced similar issues as myself. 

Also, we all different body's, immune systems, and different variable that can cause or not cause certain things to happen. Just bc I am experiencing symptoms in nearly all regions at this point, does not mean that it is not herpes. 


I do not believe this to be shingles or dermatitis. I just had another one pop in between my toes yesterday, it literally looks like the same sore that popped up 2-3 weeks after the HSV2 exposure I had back in January 2017. 

I am going to follow through on the Western Blot, the dermatologist ( medicaid is rough and takes forever though), but guys...what are the odds that I had this exposure, started having symptoms I have never experienced in my life that keep coming back, and that it is not herpes ? 

I mean yes I would love for this to no be herpes, but I am honestly convinced. It's hard to think otherwise. 

Again, thanks for being kind to me, thanks for listening, and thanks for not bashing me. I have had people bash me bc they tell my I am not infected and I guess technically at this point no body really knows. I just know my body has never experienced anything like this, the timing is not looking good for me, and it has taken it's toll on mentally bc i have been living the last 19 months under the impression I have it. 

Last thing I want to say, is that the cold sores in my mouth have appeared once out of the blue, and twice when I get sick. 

I also got sick 3 times in a 5 month time period last winter into spring. I have never had that happen in my life. Not sure if that is relevant or indicates anything. I also experienced a few months where I felt like I was tired all the time. I guess it didn't help going to school 5 days/week working 4/days week, all overlapping, having no day off for 2 semesters in a row with exception of school breaks, and holidays. 

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WilsoInAus

Hey @f*ckedOver mate. I think there is quite a lot of clarity in what you have written here. If you can indulge me to work through it.

As I am always upfront, I do need to tell you that what you have is a fear of herpes and it is manifesting as significant anxiety. You have all you need scientifically to establish you do not have herpes. I'm sorry to say but your mind simply has to catch up. You need to set yourself a firm alignment to perhaps the Westernblot such that when it is negative, it is time to move forward.

It matters not what you 'think' or are 'convinced' of;  but matters what is.

The chance that you do not have herpes is in my view pragmatically 100%, scientifically you're looking at 99.999%.

If infected, a person has lesions within 4 days on average, it is almost never more than 2 weeks. There is no such thing as a 10-11 week timeframe until a primary outbreak.

Please let the WB be the arbiter. Again I point out that it is not just a negative Westernblot that you'll have on the table, but negative swabs as well. Every single one of the handful of people who do not test positive on the WB have a positive swab.

After the Westernblot, you can let this go.

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WilsoInAus

Sorry forgot to expand upon the Westernblot. There are about 30 blood borne antibodies to HSV (1/2). The Westernblot looks for all of them as it uses the full viral protein signature and not just a single viral protein in the case of IgG testing. The 30 antibodies if present stick to the viral protein and then are categorised into four size bands. 

There is another test proposed by Halford known as ABVIC. ABVIC is essentially the Westernblot and picks up no more positives. Its difference lies in a prefiltering of the blood to attract out HSV-1 and junk antibodies before the residual is tested for HSV-2 and vice versa. This reduces the number of ambivalent outcomes.

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f*ckedOver

@WilsoInAus

So I respect what you are saying, but these sores keep popping up. I finally saved up enough money to order the western blot test and spoke with Terri Warren. I should be getting the test next week. I will let you know what the results, I appreciate that you think I have nothing to worry about, but I know my body and never had any of these symptoms until after the exposure. 

I need to clarify something. The sores are not lasting 2 weeks, they are showing face in variable manner. Typically once every 2 - 3 weeks. These last 6 months, between all of my body parts, there is 1-2 that appear nearly every 3 to 5 days. 
 

Also I have read about people whom have had delayed primary outbreaks. Here's a thought let's assume I am correct in that this is herpes, "Maybe the reason why I do not test + on standard tests is because my body's immune system struggles to identify the virus or maybe I have same crazy mutated virus that has seen a little evolution in how it does it's "thing".  Therefore it's possible that I keep having recurring symptoms so frequently bc my body struggles with it. Maybe that's why I am seeing it show face on different parts of the body". 

While I know you think that is not the case. WHAT if it is ??? We will find out and I will let you know. Western Blot should be here next week and I will definitely keep you posted.

On the contrary, maybe you are right. Maybe this is not HSV at all....I doubt it though. My body has never gone through anything like this and the fact that first symptoms showed first within 3 weeks of first exposure and the fact that I have had cold cores ( I did oral on her) when I never had anything like that in my mouth. THe fact that these sores keep coming back .....

I am also staked to see a dermatologist once my medicaid change of doctor happens October 1st. 

Oh man...I really hope you are right, but it's honestly not looking good. 

I

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blurneworder
On 9/25/2018 at 9:11 AM, f*ckedOver said:

@WilsoInAus

So I respect what you are saying, but these sores keep popping up. I finally saved up enough money to order the western blot test and spoke with Terri Warren. I should be getting the test next week. I will let you know what the results, I appreciate that you think I have nothing to worry about, but I know my body and never had any of these symptoms until after the exposure. 

I need to clarify something. The sores are not lasting 2 weeks, they are showing face in variable manner. Typically once every 2 - 3 weeks. These last 6 months, between all of my body parts, there is 1-2 that appear nearly every 3 to 5 days. 
 

Also I have read about people whom have had delayed primary outbreaks. Here's a thought let's assume I am correct in that this is herpes, "Maybe the reason why I do not test + on standard tests is because my body's immune system struggles to identify the virus or maybe I have same crazy mutated virus that has seen a little evolution in how it does it's "thing".  Therefore it's possible that I keep having recurring symptoms so frequently bc my body struggles with it. Maybe that's why I am seeing it show face on different parts of the body". 

While I know you think that is not the case. WHAT if it is ??? We will find out and I will let you know. Western Blot should be here next week and I will definitely keep you posted.

On the contrary, maybe you are right. Maybe this is not HSV at all....I doubt it though. My body has never gone through anything like this and the fact that first symptoms showed first within 3 weeks of first exposure and the fact that I have had cold cores ( I did oral on her) when I never had anything like that in my mouth. THe fact that these sores keep coming back .....

I am also staked to see a dermatologist once my medicaid change of doctor happens October 1st. 

Oh man...I really hope you are right, but it's honestly not looking good. 

I

Any updates?

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Little Star

Hats off to you, that’s one of the best display names I’ve seen so far on this forum, f*ckedOver ...... I like it!

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    • blurneworder
      That’s why I’m seeing a specialist who can do that. Not every doctors office have swabs available, so maybe that’s the case here. I’ve called urgent care clinics before to ask if they swab for HSV and many around here said no.  
    • WilsoInAus
      I doubt this. If the doctor had ANY suspicion that you had herpes around the eye a swab would  have been taken. Gross negligence otherwise. This is totally insulting to the intellect of our readers. Mate, it’s time to leave the delusion behind before you do yourself or anyone else real harm. What do you have to fear by believing you do not have herpes?
    • blurneworder
      Would you like to call my eye doctor and tell them this? The cornea is fine, but there is damage to the outside of my eye. Damage she has seen in other patients with herpes of the eye. I am not making this stuff up. 
    • blurneworder
      Do you have any photos? Sounds similar to me.
    • WilsoInAus
      Hang on that’s not the case. The doctor knows full well those symptoms align potentially to long term HSV-1 infections. You cannot do a swab for eye herpes. The diagnosis involves inspection of the cornea. I am not sure why you feel the need to spread misinformation. Of course you have tested negative for HSV more than three months post possible infection. It is DANGEROUS to both yourself and others to assume your symptoms are herpes related when they may actually be serious. Please reflect upon your need to attempt to erroneously validate other people’s symptoms in order to support a baseless interpretation of your own symptoms.
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