Jump to content
World's Largest Herpes Support Group
Sign in to follow this  
PurpleandGray

What's the real story on Valtrex?

Recommended Posts

PurpleandGray

Dos anyone know the real story on Valtrex? Meaning is it safe to stay on longterm? I've been on it fir two full years now. I still di get burning OB pain and tiny sores but I'm a lot better then I was at the beginning of my diagnosis. So am I ok with staying on it longterm? Or should I come off it and let my body rest for awhile?  I hear that it can stop working after awhile which is a big fear of mine! What do you all think? 

Share this post


Link to post
Share on other sites
Blushed
On 1/3/2019 at 1:54 PM, PurpleandGray said:

Dos anyone know the real story on Valtrex? Meaning is it safe to stay on longterm? I've been on it fir two full years now. I still di get burning OB pain and tiny sores but I'm a lot better then I was at the beginning of my diagnosis. So am I ok with staying on it longterm? Or should I come off it and let my body rest for awhile?  I hear that it can stop working after awhile which is a big fear of mine! What do you all think? 

I was on it for 5 years and eventually it gave me horrible side effects and I just felt shitty overall.  If I could go back I would have come off it earlier.  It’s very hard but I’m just not a fan of the drug.  Now I’m trying to find natural ways to stay symptom free still struggling.  My advice is to come off and let your body use it’s own mechanism to fight it along with natural remedies that can help.  

Share this post


Link to post
Share on other sites
Miss Horne

I’ve just come off aciclovir after taking a high dose for almost a year, it just doesn’t work that well for me. First couple of days I felt better than I had done in months but I can feel the tingling, burning and neuralgia pain slowly creeping back in and the sores are coming back. It’s totally disheartening at times. 

Share this post


Link to post
Share on other sites
PurpleandGray

Thanks guys. Miss Home I’m so sore you’re dealing with this too, I was put on LDN which seems to help the burning pain. Are you taking any natural supplements?  

Share this post


Link to post
Share on other sites
Miss Horne
23 minutes ago, PurpleandGray said:

Thanks guys. Miss Home I’m so sore you’re dealing with this too, I was put on LDN which seems to help the burning pain. Are you taking any natural supplements?  

My Doctor gave me Amitriptyline for the neuralgia pain but it turned me into a walking zombie, I could barely function whilst using it. I’m taking zinc but I don’t think it makes much difference. Nothing seems to keep this virus under control, I’m riddled with it and probably contagious as f’ck :joy:

Share this post


Link to post
Share on other sites
PurpleandGray

I’m so sorry :(  How long have you had this? I’m on Amitri as well but your right it doesn’t do all that much. Lystine helped me the most. My doctor said I can take up to six grams during an OB which is a lot.

Share this post


Link to post
Share on other sites
Miss Horne

About a year on and off but actually feel better since I’ve stopped the aciclovir weirdly enough! F’ck knows what’s going on :joy:

Share this post


Link to post
Share on other sites
Roja
13 hours ago, Blushed said:

I was on it for 5 years and eventually it gave me horrible side effects and I just felt shitty overall.  If I could go back I would have come off it earlier.  It’s very hard but I’m just not a fan of the drug.  Now I’m trying to find natural ways to stay symptom free still struggling.  My advice is to come off and let your body use it’s own mechanism to fight it along with natural remedies that can help.  

Thank you!! I had bad side effects too and no one really believed me.. 

Share this post


Link to post
Share on other sites
PurpleandGray

I encourage you to stay off it and try natural supplements like Lystine  or Oil of Oregano. Each person’s body is different so it will take some time to find out what works for you but in the end it will be worth it. 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

  • The Hive is Thriving!

    • Total Topics
      69,333
    • Total Posts
      466,587
  • Posts

    • information seeker
      I will get it fixed. I getting some help from some former journalist to make ads
    • Friends
      My Neurologist prescribed me Escitalopram for the nerve pain. Really haven’t started taking it, I was hoping the nerve pain just stops. Some way some how he told me that I will never have an outbreak and I haven’t..Weird?  Anyway I’m married, for 15years. When I discovered I had HSV my wife got tested as we’ll found out she had it since college!! Didn’t know that the fever blisters she got in college was HSV...I trust that this is how I got it. But wouldn’t you know she has no symptoms at all other than she knows she has it. There maybe something to this that there is something else wrong here besides HSV.
    • oneday
      Dr David Knipe from Harvard I'm pretty sure
    • Lucy29
      It’s not our heads that cause the sores I think this wound be very stupid for doctors to say as you can clearly see a sore.. however I do think if you are focused on a sensation constantly you will zone in on this feeling and always notice it I suffer from anxiety anyway in general so I do think some of my sensations maybe anxiety related.. but no or course cuts/ blisters  cannot be  
    • blurneworder
      I've noticed a trend of people sharing stories about doctors telling them the tingling sensation is all in their head or caused by the patient themselves. My doctors did the same thing. I explained that I am not making myself confused and dizzy nor am I causing my skin to cut itself open on my penis and lips.
×

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.