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MikeIke

Figured out the persistent burning/shooting pain in penis - what do I do?

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MikeIke

It's pudendal neuralgia.  

 

https://rarediseases.info.nih.gov/diseases/10713/pudendal-neuralgia
 

I have all of these: 

Symptoms include burning pain (often unilateral), tingling, or numbness in any of the following areas: buttocks, genitals, or perineum (area between the buttocks and genitals). Symptoms are typically present when a person is sitting but often go away when the person is standing or lying down. The pain tends to increase as the day progresses. Additional symptoms include pain during sex and needing to urinate frequently and/or urgently. 

Should I see a urologist or a neurologist?  I'd like to try nortriptyline or amitriptyline to help me.  

 

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Stolo868

Mike,

I would go to neurologist. As we have talked. I got gebapentin, pregablin, and low dose of antidepressant for me it works pretty good but you need to give it time. I don’t feel super after medication but at least it’s better then pain. 

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blurneworder
4 hours ago, MikeIke said:

It's pudendal neuralgia.  

 

https://rarediseases.info.nih.gov/diseases/10713/pudendal-neuralgia
 

I have all of these: 

Symptoms include burning pain (often unilateral), tingling, or numbness in any of the following areas: buttocks, genitals, or perineum (area between the buttocks and genitals). Symptoms are typically present when a person is sitting but often go away when the person is standing or lying down. The pain tends to increase as the day progresses. Additional symptoms include pain during sex and needing to urinate frequently and/or urgently. 

Should I see a urologist or a neurologist?  I'd like to try nortriptyline or amitriptyline to help me.  

 

Did a doctor diagnose this? Is any of this caused by HSV?

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MikeIke
Posted (edited)
39 minutes ago, blurneworder said:

Did a doctor diagnose this? Is any of this caused by HSV?

I'm seeing a pudendal nerve specialist this month to confirm the dx. I also have an appt with a herpes specialist in my city.  

It's all there though - pain between the legs between scrotum and rectum - when I flex the kegel muscle it is sore, pain is wayyyy better in the morning, worse later in the day.  Sitting sucks and immediately makes my penis burn, standing makes it go away almost to normal.  

I have pelvic floor dysfunction and have for a long time, but this all started with the sexual escapade.  HSV can cause pudendal neuralgia, usually HSV3 (herpes zoster).  But that website says "herpex simplex" can cause it too, so I think HSV1/2 can cause it. 

My theory is that either I contracted HSV1 and my HSV3 antibodies are trying to fight it, or something with the sex triggered a shingles/HSV3 attack.  

Edited by MikeIke

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blurneworder
2 minutes ago, MikeIke said:

I'm seeing a pudendal nerve specialist this month to confirm the dx. I also have an appt with a herpes specialist in my city.  

It's all there though - pain between the legs between scrotum and rectum - when I flex the kegel muscle it is sore, pain is wayyyy better in the morning, worse later in the day.  Sitting sucks and immediately makes my penis burn, standing makes it go away almost to normal.  

How did you find a herpes specialist?

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MikeIke

I googled "herpes specialist" "cityname" and picked one of the hospitals that I liked.  It's easy because I'm in a big city.  

 

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MikeIke

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