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Braino

Genital Hsv1

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Braino

I see all the post about the need to disclose Genital HSV1 and stories of people disclosing to people that accept their partner having Genital HSV1.  I read the stories of people saying “your sex life is not over.” So I’m sure people on this site with Genital HSV1 have been having sex and/or oral sex. But when the question is asked, does anyone have success stories of not passing the virus to their partner(s) or have you accidentally passed the virus to anyone, seems to be very few responses.  We’ve all read the stats on transmission, I wanted to hear real life stories.

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Braino
13 minutes ago, lali said:

I'm wondering the same

I was diagnosed last October by swab. I 100% got it from receiving oral sex. From October to now I’ve received hella unprotected oral sex with multiple partner multiple times and sex once with a condom. To my knowledge I never passed this virus on. What about you? How long have you had Genital HSV1? Have you had sex or received oral sex after your diagnosis?

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lali

I've had it for 3 years now and i had sex three times protected. Never passed it on to my knowledge. I did dry hump last night and im getting pretty scared about it.

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Scooby2112

I tested blood positive for hsv1. So I don’t have definite confirmation that I have it genitally.  However since July 2017 (after receiving oral from a new partner) I started having burning sensation in my thighs along with some itchy sensation in my penis and testicle area.  

This has gone on basically constantly since then.  

I have since had unprotected penis in vagina sex (not the same person that gave me oral) about twice a week since August 2017 with the same person and have not spread it (to my knowledge- she shows no symptoms).  

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Mrmoney

I have been diagnosed with genital HSV1 I got from oral sex and it was a HORRIBLE initial break out. Since then I haven’t had much if any symptoms. I have had sex multiple times since then protected but unprotected oral and no passage of the virus I know of. I wonder if having genital HSV1 would be more difficult to pass or if it ever would pass due to being in the downstairs in its “unnatural invironment”. Wonder if it’s safe unprotected as I have a girlfriend now and would like to stop using protection. I’ve been taking these supplements said to keep it from coming back and eventually “rids the body of the virus” company name is Synergy pharmaceuticals worth looking them up, not sure if it actually works but I have good results so far been on it for about 2 months now. 

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Skrillah80
5 hours ago, Mrmoney said:

I have been diagnosed with genital HSV1 I got from oral sex and it was a HORRIBLE initial break out. Since then I haven’t had much if any symptoms. I have had sex multiple times since then protected but unprotected oral and no passage of the virus I know of. I wonder if having genital HSV1 would be more difficult to pass or if it ever would pass due to being in the downstairs in its “unnatural invironment”. Wonder if it’s safe unprotected as I have a girlfriend now and would like to stop using protection. I’ve been taking these supplements said to keep it from coming back and eventually “rids the body of the virus” company name is Synergy pharmaceuticals worth looking them up, not sure if it actually works but I have good results so far been on it for about 2 months now. 

Let me know how it all works out for u

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RNY18

Does your GF know ?

There's been lots of commentary about Synergy here, look it up.

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Braino
10 hours ago, Skrillah80 said:

Let me know how it all works out for u

What about you? How long have you had Genital HSV1? Have you had sex or received oral sex after your diagnosis?

8 hours ago, RNY18 said:

Does your GF know ?

There's been lots of commentary about Synergy here, look it up.

What about you? How long have you had Genital HSV1? Have you had sex or received oral sex after your diagnosis?

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Braino
30 minutes ago, RNY18 said:

I was diagnosed in Nov. 2018.

Have you had sex and or  oral sex sense your diagnosis? Protected/ unprotected?

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Braino
On 2/9/2019 at 12:57 PM, Skrillah80 said:

Both.. 

Unprotected or protected?

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Lonelyboy

I do sex with my partner every week,  3 times I did sex with outbreaks HSV1 but it’s not pass to my partner I do not know what’s the resone. 

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Lonelyboy
3 minutes ago, Lonelyboy said:

I do sex with my partner every week,  3 times I did sex with outbreaks HSV1 but it’s not pass to my partner I do not know what’s the resone. 

I did not know I have HSV1 so I was doing sex normal. Later when my doctor see me he said it is HSV1 and it is positive in blood test. Last time 6 months ago I did sex with my partner with outbreaks but until now she is fine.  

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WilsoInAus
31 minutes ago, Lonelyboy said:

I did not know I have HSV1 so I was doing sex normal. Later when my doctor see me he said it is HSV1 and it is positive in blood test. Last time 6 months ago I did sex with my partner with outbreaks but until now she is fine.  

It is likely you have oral HSV-1. You avoid brining into contact your mouth sores with your partner.

Your genitals are not contagious in this setting.

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Lonelyboy
9 hours ago, WilsoInAus said:

It is likely you have oral HSV-1. You avoid brining into contact your mouth sores with your partner.

Your genitals are not contagious in this setting.

But the outbreaks in my genitals area. In my mouth nothing 

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WilsoInAus
1 hour ago, Lonelyboy said:

But the outbreaks in my genitals area. In my mouth nothing 

Then you should get a swab to establish what’s going on when you have an outbreak.

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mconcerned1986
On 2/8/2019 at 9:20 AM, Scooby2112 said:

I tested blood positive for hsv1. So I don’t have definite confirmation that I have it genitally.  However since July 2017 (after receiving oral from a new partner) I started having burning sensation in my thighs along with some itchy sensation in my penis and testicle area.  

This has gone on basically constantly since then.  

I have since had unprotected penis in vagina sex (not the same person that gave me oral) about twice a week since August 2017 with the same person and have not spread it (to my knowledge- she shows no symptoms).  

Did you know if this was low positive or a high positive? Did you get a western blot? Did you have any others in the past?

how long it took for you to convert? 

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Scooby2112

It was a lower positive but hsv1 is more likely to be false negative than false positive.  No blot.  I took the test at approx 9 or 10 weeks post exposure.  

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mconcerned1986

You should check again for a clarification. Because sometimes when u test low positive within 16 weeks it could be you r developing antibodies slowly and seroconverting. Good luck and keep us posted

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Scooby2112

What would testing again show? 

If I am low positive and then test high positive - I am still positive so I don't see the value.  

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mconcerned1986

What happens is sometimes when u get low positives u tend to be in the false positive zone so hence asked to verify that’s all. Cheers bro. 

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    • WilsoInAus
      @LoneWolf let's assume for a moment that you have HSV-2. This would then mean that he is at risk genitally of being infected with HSV-2. His oral HSV-1 cannot be assumed to provide any protection. 'Suppressive' use of antivirals and condoms are what reduces risk to him. You actually have greater protection from HSV-1, HSV-2 just works that way with good cross reaction against HSV-1. In terms of your swab, ask if it was PCR or culture. If PCR then it was typed so ask them which type was detected. If culture ask if an immunofluoresence test was applied to the positive culture. If it wasn't then there was no typing. Of course make sure the swab was indeed positive for HSV in the first place. If type isn't clear from the swab, then request a blood test for IgG antibodies type specific for HSV-1 and HSV-2.
    • LoneWolf
      @WilsoInAus that’s what I thought also, like wow how rude BUT he did tell me he'd understand if I didn’t want to kiss him anymore. He said he felt bad because I kissed him and over the weekend he looked into it further and came  to this conclusion.  So if him and I have different types then what’s the possible outcome, we both infect each other with the strain we don’t have yet? Also, if I call my doctor to try to get specifics on the test results(which I hope they still have), is there anything in particular I need to ask for?    I’ve moved states since my initial outbreak. Moving forward and getting tested again, what do I and  he need to ask for specifically to make sure we get specific results? Also, about how much do these tests run for? I’m assuming insurance doesn’t cover any of it. 
    • WilsoInAus
      Hey @LoneWolf this makes it imperative for you to understand type through a blood test. It sounds like your swab was not typed (or maybe the doc could check the detail). It is funny that it is OK for him to expose you to HSV-1 after disclosure but not for him to accept risk the other way! What you say is true segregated for type. This means it is actually advantageous if you both have the same HSV type, that is, HSV-1 in this instance. This is because your immune system prevents further infection, being so termed 'concordant' is the best position to be in. Note that this does not work if one partner has HSV-2 and the other HSV-1. Thus you need to find out your type for the best outcome here. It would be a shame for this breakup to happen if you are actually concordant. 
    • LoneWolf
      Hello all, I’m hoping for some clarification, hope, and even some “scientific” proof of some sort. It’s been about two years or so since I had my initial outbreak on my vulva. Yes I went to my doctor, yes I got swabbed but no, I never got specific answers on my diagnosis. All I was told was that I had herpes. Well obviously dating has been a little rough but I thought there was hope. So I’ve gone on a couple of dates with an amazing guy, we have a great time together. On our second date, he discloses to me that he has had cold sores on his lips since he was a kid and that he wanted to let me know before we ever got to kissing. I told him I could relate and explained my story to him. He was open and accepting, we agreed on using condoms whenever we get to that point UNTIL today that the topic was brought up again. Today he told me he did a little more research after I encouraged him to do so, then told me that he read he could get herpes on his penis from me and so now we could date but without sex.    Well, sex is a big thing for me because it creates a different sort of bond, it’s a very connecting moment and he knows my opinion on sex. He’s told me he understands if I don’t want to continue anything with him because of my views on sex. I am seriously hurting pretty badly after the conversation and I don’t know how to respond.  I could have sworn that that sort of transmission wasn’t a thing. Also, I thought once you have herpes, you can’t get a second initial outbreak on another location. Please correct me if I’m wrong and please give me some sort of link or something that gives me more information on transmission. I know it may be difficult to help me since neither of us know what exact strain we have. But I’m hoping maybe for some clarification, maybe some information that can possibly make him feel comfortable with protected sex.    This is devastating, please help 
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