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123445

Does anyone else feel like life is a living hell? 

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WilsoInAus

Look they sure do feel that way. However that is what this website is for, transitioning to a better place.

Start with asking questions of yourself. You’ve probably had HSV-1 since before living memory. So what is different about you and your life simply because there’s a piece of paper with HSV-1 positive on it? What do you want to be different about your life?

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Miss Horne
5 hours ago, 123445 said:

Does anyone else feel like life is a living hell? 

Yes a real life living hell, I suffer immensely every day and I don’t respond to antivirals anymore. I’ve lost all hope. 

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WilsoInAus
40 minutes ago, Miss Horne said:

Yes a real life living hell, I suffer immensely every day and I don’t respond to antivirals anymore. I’ve lost all hope. 

What do you suffer from?

If antivirals are no help then it’s extremely likely that this isn’t related to herpes.

What lines of inquiry are you working on with your doctor?

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jeraldpeabody

@WilsoInAus sorry to sound rude, but @Miss Horne quite clearly suffers from terrible symptoms from genital herpes. Not everyone gets the classic blisters that come and go, some of us suffer from constant neuralgic pain in our lower half and genital area. There are many reports on this that I'm sure you can find on the internet. Dr's aren't the best when it comes to this form of herpes as they all defer to 'well i can't see any blisters, so its not herpes' answer. The fact of the matter is that herpes affects different people in different ways depending on their immune system. It upsets me that within this 'community' of suffers there are people that completely ignore this varying scale of symptoms. We're all in the same boat. People need support not criticism or personal opinions on why what they have isn't herpes.  

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Tacotime

Yes it is a living hell. It’s a deadly virus from the depths of hell thats crippled me and almost killed me.

Wilsoinaus is a loser that should be ignored, he’s doing everyone a huge disservice by constantly denying and downplaying herpes- I don’t get why he hasn’t been banned yet.

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Cas9
Posted (edited)
6 hours ago, jeraldpeabody said:

@WilsoInAus sorry to sound rude, but @Miss Horne quite clearly suffers from terrible symptoms from genital herpes. Not everyone gets the classic blisters that come and go, some of us suffer from constant neuralgic pain in our lower half and genital area. There are many reports on this that I'm sure you can find on the internet. Dr's aren't the best when it comes to this form of herpes as they all defer to 'well i can't see any blisters, so its not herpes' answer. The fact of the matter is that herpes affects different people in different ways depending on their immune system. It upsets me that within this 'community' of suffers there are people that completely ignore this varying scale of symptoms. We're all in the same boat. People need support not criticism or personal opinions on why what they have isn't herpes.  

I have spoken to Miss Horne privately. She acknowledged that she was diagnosed with ghsv 4 1/2 years ago. The first few years of her infection were more typical in terms of OBs. But the last year or so has been much worse; continuous soreness and itchiness. That's my recollection of the conversation.

So the issue is not whether she has hsv (she does), but whether her current symptoms are hsv related; i.e. she may have some other additional infection (bacterial or fungal), that's causing some (or most) of her current symptoms.

Edited by Cas9

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WilsoInAus
Posted (edited)
4 hours ago, Tacotime said:

Yes it is a living hell. It’s a deadly virus from the depths of hell thats crippled me and almost killed me.

Wilsoinaus is a loser that should be ignored, he’s doing everyone a huge disservice by constantly denying and downplaying herpes- I don’t get why he hasn’t been banned yet.

How dare you, I do absolutely nothing of the sort. 

It is outright dangerous to simply assume everything is related to HSV-1 or HSV-2 and then self diagnose and self medicate.

We need to support people better than that and show great empathy to their plight and help where we can.

 

Edited by WilsoInAus

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Lulupazoola

I felt like my life was descending into hell with constant OBs that gave me terrible fatigue, pain, etc.  But i have had good success with vitamin C.  I have also made some dietary changes.  I have always had healthy eating habits, but they r healthier now.  I also have some amenalief on hand in case things suddenly go to hell.  I feel very well being mostly OB free for 2 months.  Am starting to think maybe i can work in my yard again, or go for walks.  (Physical activity like that is a trigger for me.)  I started feeling better when i found this forum and began trying things that have lately become successful in suppressing my symptoms.  So its possible there is something out there that will help u with your symptoms.  Its something u have to work at, taking care of yourself.  No silver bullet, as we know.

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heididehk

I’m a newbie so I don’t know shit, but did your doctor ever prescribe you Gabapentin? My doctor gave me it and said it helps with postherpetic nerve pain. 

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