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viralfrog

My 28 Days Experiment with Amenalief

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viralfrog
12 hours ago, Quest said:

 Just info, but my blisters looked like that if I didn't touch them. I could not really see them on my back so I had my hubby take a picture.  That's why I believe that 80% of people don't even notice them!?!

Did you test positive via swab?

Don't take piracetam without choline or it can give a headache. I love the energy and computer mind. That's my fave and Dr. Steve Fowkes who wrote the free book on BHT still takes piracetam. He also was an author on Smart Drugs II. He also has videos on YouTube.

I'm 99% confident that these are caused by Herpes. This is what they looked like when I first caught the virus, and in the same spots as well, although now much milder and smaller in size. 
I have tested positive via swab when I first got the virus, and two times via blood test. However, since several people here are doubting my symptoms are caused by HSV, I might do another swab just to be sure. It's still good to rule anything else out beforehand. 

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blurneworder
7 hours ago, viralfrog said:

I'm 99% confident that these are caused by Herpes. This is what they looked like when I first caught the virus, and in the same spots as well, although now much milder and smaller in size. 
I have tested positive via swab when I first got the virus, and two times via blood test. However, since several people here are doubting my symptoms are caused by HSV, I might do another swab just to be sure. It's still good to rule anything else out beforehand. 

You tested positive already - why go through this again?

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viralfrog
55 minutes ago, blurneworder said:

You tested positive already - why go through this again?

While I personally feel my symptoms are caused by HSV-2, several knowledgeable members here seem to doubt my symptoms look like Herpes. No doubt that I carry the virus, but it's not a bad idea to make sure my condition is caused by Herpes, because my case is very unsual. I have outbreaks practically every day. It would be very bad if I'm filling my body with high doses of antivirals trying to tread something else. 

Little update: I stopped antivirals compeltely a few days ago and started eating ascorbic acid 12g/day and NAC 1g per day. I'm actually feeling better, still some redness but my energy levels are getting back up. 

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readytostart

I wonder, in a scenario where a cure would exist, I imagine a blood test to check if someone´s actually cured would be a nonsense, would it?...I was recently reading about that synergy pharmaceuticals thread, and in their web they show some "results". The only thing showed to confirm someone is negative for herpes is "not detected", which I assume is a blood test Igg, Igm, but, ¿isn´t it true that even if an infection is resolved, the antibodies remain present?, I mean, viral load or presence of the virus can not be determined by a blood test in case of eliminating the virus, am I wrong?

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Cas9
15 minutes ago, readytostart said:

I wonder, in a scenario where a cure would exist, I imagine a blood test to check if someone´s actually cured would be a nonsense, would it?...I was recently reading about that synergy pharmaceuticals thread, and in their web they show some "results". The only thing showed to confirm someone is negative for herpes is "not detected", which I assume is a blood test Igg, Igm, but, ¿isn´t it true that even if an infection is resolved, the antibodies remain present?, I mean, viral load or presence of the virus can not be determined by a blood test in case of eliminating the virus, am I wrong?

Synergy or any product that claims it will cure you is a scam.

To prove someone was cured I assume something like a ongoing PCR test would be the way. That test would test for shedding also. I believe shedding occurs fairly regularly. I don't think you can go for months without shedding. In fact, shedding may occur monthly, but I don't know for sure. In any event, if you were to take a PCR test daily for several months and there was no virus present, then it would probably mean you were cured.  The only chance of a cure is through serious research, not scams like Synergy or ozone or oregano oil or ........

In animals their nerve tissue can be analyzed. Of course we can't do that in humans which is why we need something like a PCR test.

 

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Quest

Thanks for the information. 

I also agree with Blurneworder -not doing testing again if you have already tested positive multiple occasions.

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WilsoInAus
2 hours ago, Quest said:

Thanks for the information. 

I also agree with Blurneworder -not doing testing again if you have already tested positive multiple occasions.

Hang on, no one is talking about testing again for herpes. We are suggesting an analysis of the serum in the blisters that will give clues as to the cause.

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Quest

Why? He is positive.

ViralFrog glad you are moving forward and at some point you can enjoy having a functional cure.

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jmherped

NAC is great.  Memantine is horrible, dont do it, but adamantine, sold as flu medication seemed to help repress my last breakout.  

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emcee
On 4/15/2019 at 2:59 AM, vzhe said:

Wait so neither valacyclovir nor amenamevir nor a combination of the two are yielding any improvements? And you've had it since 2014 and symptoms have gotten worse to the point of having outbreaks 27 out of 28 days while taking heavy antiviral combos? How bad was it in 2016? That sounds terrible. Are you seeing a specialist? What you describe sounds highly unusual and worse than what most people on here encounter. If you really have non-stop outbreaks caused by HSV you probably should consider working with a specialist who might give you both a differential, check you for heavy immune suppression, and give you intravenous antivirals.

Just to chime in here, @vzhe, I suffer very similarly to @viralfrog with constant outbreaks, so far for a year and a half, that include the same lethargy and flu-like fevers regularly. I've seen three infectious disease specialists. The first two denied that it could be caused by HSV2 and dismissed me. The third, and I had pictures of lesions finally to show him, agreed it might be HSV2, but he told me there's literally nothing else to be done. I asked him about intravenous ACV and he said that it's no better (or not much different) than high dosage oral valtrex. I also asked him about foscarnet, and he said it was extremely toxic and only reserved for immunosuppressed patients with disseminated disease. In his words: "you just have to wait it out and hope it calms down eventually"

I'm going to an immunologist in two weeks, but I'm almost certain there is nothing to be done.

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vzhe
Posted (edited)
On 6/3/2019 at 5:57 PM, emcee said:

Just to chime in here, @vzhe, I suffer very similarly to @viralfrog with constant outbreaks, so far for a year and a half, that include the same lethargy and flu-like fevers regularly. I've seen three infectious disease specialists. The first two denied that it could be caused by HSV2 and dismissed me. The third, and I had pictures of lesions finally to show him, agreed it might be HSV2, but he told me there's literally nothing else to be done. I asked him about intravenous ACV and he said that it's no better (or not much different) than high dosage oral valtrex. I also asked him about foscarnet, and he said it was extremely toxic and only reserved for immunosuppressed patients with disseminated disease. In his words: "you just have to wait it out and hope it calms down eventually"

I'm going to an immunologist in two weeks, but I'm almost certain there is nothing to be done.

Have you done IgG and IgM antibody tests?

Edited by vzhe

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emcee
4 hours ago, vzhe said:

Have you done IgG and IgM antibody tests?

My IgG continues to be negative at 1.5 years (negative for HSV2, that is). And right now I'm about three months into a period of back to back lesions and daily burning nerve pain behind them in the right hip and lower abdomen.

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WilsoInAus
26 minutes ago, emcee said:

My IgG continues to be negative at 1.5 years (negative for HSV2, that is). And right now I'm about three months into a period of back to back lesions and daily burning nerve pain behind them in the right hip and lower abdomen.

Then why haven’t you had them swabbed?

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emcee
45 minutes ago, WilsoInAus said:

Then why haven’t you had them swabbed?

In Toronto, PCR is very difficult to get, so we only have viral cultures. In the first year, I didn't have visible lesions, so swabbing was not possible. I do have them now, but they almost always just a small ulcerated cut or two, too small to be accurately swabbed by viral culture. My GP has tried twice, but it has been negative each time. By seeing as they appear in the exact location of burning nerve pain behind them, my GP has no doubt what they are. I have a referral to a dermatologist to get one biopsied, which will hopefully happen in the next few weeks

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WilsoInAus

@emcee that is a really frustrating aspect of the Canadian medical system. It’s stymied many on here.

If a biopsy is the best you can get, then go for it! It’s got to be best to bring this to a close.

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emcee
3 hours ago, WilsoInAus said:

@emcee that is a really frustrating aspect of the Canadian medical system. It’s stymied many on here.

If a biopsy is the best you can get, then go for it! It’s got to be best to bring this to a close.

I'm seeing the dermatologist next Tuesday, however I may not have a lesion to biopsy, so after that visit, it will be a waiting game and a hope that I can get in to see him in time when one does come up. Although based on recent months, it shouldn't take too long

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WilsoInAus
6 hours ago, emcee said:

I'm seeing the dermatologist next Tuesday, however I may not have a lesion to biopsy, so after that visit, it will be a waiting game and a hope that I can get in to see him in time when one does come up. Although based on recent months, it shouldn't take too long

Take some good clear pictures in strong light to take along.

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