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blurneworder

After 11 months and 12 doctors telling me no - I tested positive

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blurneworder
3 hours ago, G77 said:

Well he still denies having it lol. Have you ever had any sores or rash since? Has the rash been swabbed to see what it might be? I'm not sure about all cases but my sores were full on blisters that weeped rather than a rash. Even the 3 outbreaks after the first with 1 or 2 sores were proper blisters. They looked almost like whitehead spots to start with. Hope you get yourself sorted soon 

It started as white heads and then became blisters?

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Stolo868

Blurneworder PCR costs my around 40$ and I get kid to swab it for free. 

I have just seen specialist for hsv. He told me that some people will never serocovert and usually those people have severe and constant symptoms due to lack of antibodies and only way to know it is just PCR. 

I wish I knew about hsv when I had recurrent pimple on top of my mouth because downstair I have only reoccurring nerve pain and redness but acyclovir works for me pretty good. 

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G77
44 minutes ago, blurneworder said:

It started as white heads and then became blisters?

Yeah that's how mine started then the blisters weeped stuff out of them. 

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mconcerned1986

Don’t know how to differentiate between the herpes blisters and normal red bumps on the skin. Do you happen to have any pictures of the bumps alone? 

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emcee
On 5/29/2019 at 1:06 PM, Stolo868 said:

Blurneworder PCR costs my around 40$ and I get kid to swab it for free. 

I have just seen specialist for hsv. He told me that some people will never serocovert and usually those people have severe and constant symptoms due to lack of antibodies and only way to know it is just PCR. 

I wish I knew about hsv when I had recurrent pimple on top of my mouth because downstair I have only reoccurring nerve pain and redness but acyclovir works for me pretty good. 

@Stolo868 that sounds like me. I have constant outbreaks, fevers, fatigue, burning nerve pains in my groin. I started having constant lesions two months ago (after having a year of no lesions but all the rest of it) but they are too small to test positive on a viral culture and for some reason we don't have PCR in Toronto where I am (or it's really hard to get). I just tested negative on the IgG after a year and a half. Did he say if he knew why some people never seroconvert? Makes no sense to me. I have HSV1 antibodies every test.

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Tone123
41 minutes ago, emcee said:

@Stolo868 that sounds like me. I have constant outbreaks, fevers, fatigue, burning nerve pains in my groin. I started having constant lesions two months ago (after having a year of no lesions but all the rest of it) but they are too small to test positive on a viral culture and for some reason we don't have PCR in Toronto where I am (or it's really hard to get). I just tested negative on the IgG after a year and a half. Did he say if he knew why some people never seroconvert? Makes no sense to me. I have HSV1 antibodies every test.

People will eventually seroconvert some take longer for immune compromised reasons. I had a high risk exposure to hsv2. I've tested negative at 7 months now and it always caught hsv1. I've even done a western blot at 24 weeks and was negative. I'm not convinced cause it's known the igG catches it before the western blot. Especially reading about people with posivte swabs and neg blood for a year or 2 later and stories like blurners. I've had some weird things happen I wish I'm not in the slow to convert category smh. Wilso always helped me regardless of the issue he makes u think of the possibilities and I appreciate his input always. 

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emcee
11 minutes ago, Tone123 said:

People will eventually seroconvert some take longer for immune compromised reasons. I had a high risk exposure to hsv2. I've tested negative at 7 months now and it always caught hsv1. I've even done a western blot at 24 weeks and was negative. I'm not convinced cause it's known the igG catches it before the western blot. Especially reading about people with posivte swabs and neg blood for a year or 2 later and stories like blurners. I've had some weird things happen I wish I'm not in the slow to convert category smh. Wilso always helped me regardless of the issue he makes u think of the possibilities and I appreciate his input always. 

People like me, who have non-stop outbreaks, I would think, would create antibodies faster than most people because our immune system has huge exposure to the virus, but I suppose that's not the case with me. Well, I'm at a year and a half. I have read sentences like "some people never seroconvert" on some websites, and Wilso said it was less than 1 % (but exists)

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blurneworder

I’ve started to get constant body aches in both my armpits

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Tone123
2 minutes ago, emcee said:

People like me, who have non-stop outbreaks, I would think, would create antibodies faster than most people because our immune system has huge exposure to the virus, but I suppose that's not the case with me. Well, I'm at a year and a half. I have read sentences like "some people never seroconvert" on some websites, and Wilso said it was less than 1 % (but exists)

Definetly more than 1%. On medhelp alone there are alot of cases of people swabing + and - blood. I feel this is why hsv will continue to grow and the timeline they give  to test is bs. If it dont show and people think theyre in the clear and go on infecting people smh. The medical world is lost about the issue and tells u not to worry it's so common.

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G77
On 5/31/2019 at 7:08 PM, mconcerned1986 said:

Don’t know how to differentiate between the herpes blisters and normal red bumps on the skin. Do you happen to have any pictures of the bumps alone? 

I don't have any pics anymore as I deleted them but they looked like a normal spot would as it first appears. A normal red bump, then a whitehead under the skin. I can't remember fully how long it took for them to blister but I know that they appeared within a few days of exposure and a week after exposure I was in agony taking a pee so they must have been open blisters by that point. New ones kept appearing for at least 5 days after that as I went to get swabbed 12 days after exposure and the doc said new blisters were forming. 

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blurneworder

Finally saw the values for my second positive HSV1 IgG test result.

April 23 - 1.25

April 30 - 1.596

 

This is what the infectious disease doctor had to say about my first result.

"Patient with a positive HSV-1 Ab for IgG, very low level, may be false positive given he has prior negative

results, but even so, this is a terrible test for diagnosis of herpes because up to 80-90% of the population will

have evidence of Ab against HSV-1."

 

Upon seeing the second result, he relented that I have herpes.

 

Is a Western Blot really worth getting at this point?

 

 

Edited by blurneworder

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WilsoInAus
7 minutes ago, blurneworder said:

Finally saw the values for my second positive HSV1 IgG test result.

April 23 - 1.25

April 30 - 1.596

 

This is what the infectious disease doctor had to say about my results:

"Patient with a positive HSV-1 Ab for IgG, very low level, may be false positive given he has prior negative

results, but even so, this is a terrible test for diagnosis of herpes because up to 80-90% of the population will

have evidence of Ab against HSV-1."

 

Is a Western Blot really worth getting at this point?

 

 

Depends if it will make a difference to what you believe now.

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blurneworder
3 minutes ago, WilsoInAus said:

Depends if it will make a difference to what you believe now.

I don't get it. You kept telling me to get one because the IgG numbers were low. 

Now you say it depends on what it makes me believe.

 

Edited by blurneworder

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WilsoInAus
4 minutes ago, blurneworder said:

I don't get it. You kept telling me to get one because the IgG numbers were low. 

Now you say it depends on what it makes me believe.

 

What I am saying is that if a Westernblot negative won't change your mind regarding being infected with HSV-1 in at least two locations by a person that tests negative and causes all manner of oral, genital and all over body symptoms... then why bother?

Surely spending the money on swabs would be better.

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blurneworder
4 minutes ago, WilsoInAus said:

What I am saying is that if a Westernblot negative won't change your mind regarding being infected with HSV-1 in at least two locations by a person that tests negative and causes all manner of oral, genital and all over body symptoms... then why bother?

Surely spending the money on swabs would be better.

I have no idea what the other persons current status is or what kind of tests they had done. 

I cannot be sure what their status is because I was not there to see their test results and methods used.

That was many months ago. It's possible that person could be testing positive now.

Edited by blurneworder

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WilsoInAus
5 minutes ago, blurneworder said:

I have no idea what the other persons current status is or what kind of tests they had done. 

I cannot be sure what their status is because I was not there to see their test results and methods used.

That was many months ago. It's possible that person could be testing positive now.

Both swabs and bloods were negative covering the period she was with you and her own symptoms. Her final diagnosis was vaginosis. Her status now is irrelevant as shes had sex with other people.

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blurneworder
7 minutes ago, WilsoInAus said:

Both swabs and bloods were negative covering the period she was with you and her own symptoms. Her final diagnosis was vaginosis. Her status now is irrelevant as shes had sex with other people.

My blood work was also negative. . . then turned positive.

Vaginosis is a symptom of HSV as reported by many people on this site as well as reputable health sites.

Edited by blurneworder

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WilsoInAus
3 minutes ago, blurneworder said:

My blood work was also negative. . . then turned positive.

Vaginosis is a symptom of HSV as reported by many people on this site as well as reputable health sites.

Its an independent if sometimes concurrent ailment. It occurs without herpes as well, which was confirmed in this case by a negative swab.

And that's how all this seeded in your mind. A girl who had an open mind regarding a possible herpes infection, yet closed it off.

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