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    • Runner278
      Here is an article that discusses postherpetic neuralgia. This is what my doctor will finally diagnose me with once I put it cleanly under his nose. While I haven’t had lesions, I’ve had many of the other symptoms of HSV2 that 5 drs, 4 urgent care professionals and Terri Warren has said “it’s not herpes”. I go for my western blot blood draw Thursday and I have an appointment with a neurologist on 9/1. This virus not only needs better treatment, it needs better drs.    https://www.herpesite.org/post-herpetic-neuralgia-from-genital-herpes/
    • themotion
      @Cas9 Hey, Sorry to bother you, but can you share your opinion on the content quoted above. Hope all is well.   Thank you
    • Aubrey77
    • WilsoInAus
      Hey @Aubrey77 these symptoms are not something that oral HSV-1 can cause. In the end herpes would do what it does best and this is cause a sore somewhere on the lips . It might tingle a little as it forms, be inconvenient as it blisters and then crust as it heals and all look a little unsightly. But that’s herpes.    No reason to disbelieve your doctors thoughts on your issues.
    • Aubrey77
      Any feed back is welcome. I get these small bumps inside my right cheek. They do not hurt or burst. They just come and go. I showed them to doctors and the say they come up with stress and foods. Problem is I have pain and muscle spasms down right arm and in legs. Are these all ongoing issues for getting virus? I am not sure was going on with my body anymore 
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hi202020

Shingles confused for HSV-1?

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hi202020

I’ve been experiencing post herpetic neuralgia and I had the thought: is it at all possible that a case of shingles / herpes zoster would be misdiagnosed as HSV-1? I personally was swabbed and tested positive for GHSV-1. However; the more I read and learn about this virus the more I realize doctors and medical community don’t always know what they’re talking about. Is it possible that some strains of shingles are similar enough to HSV that they would be misidentified? 

I know it’s possible to have genital shingles which are also contagious so I’m wondering if this is at all possible.

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WilsoInAus

If you had a swab then there is no doubt, you have HSV-1. 

As you pointed out in another post, you do not have neuralgia but there may be an issue on with your immune system attacking your tissue - your body adjusting to the virus.

Anothet issue that happens is that stress and tension on the muscles in your pelvis causes a dysfunction of pains, burning and itching. Have a look at protadynia that accompanies a herpes infection for some men.

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hi202020
1 hour ago, WilsoInAus said:

If you had a swab then there is no doubt, you have HSV-1. 

As you pointed out in another post, you do not have neuralgia but there may be an issue on with your immune system attacking your tissue - your body adjusting to the virus.

Anothet issue that happens is that stress and tension on the muscles in your pelvis causes a dysfunction of pains, burning and itching. Have a look at protadynia that accompanies a herpes infection for some men.

My symptoms are exactly as PHN is described - pins and needles, itching, burning, sharp pain, crawling under the skin sesnsation, etc. There are hundreds more cases I’ve found in my research of people who experience PHN like symptoms from HSV. I don’t know 100% what’s going on but it sure feels like neuralgia/ nerve pain from the HSV virus activity.

What publication are you citing regarding immune system attacking the tissue? That doesn’t seem to make sense to me but I’m open to reading up on it, can you please provide a link? Also, how long does the immune response typically do this for? And is this an “autoimmune” response you’re referring to? I’m hoping this isn’t a multiple year or even lifelong thing. 

I looked up the protadynia and it did not seem to describe what I’m experiencing but I’m not sure I was looking at the best article, what publication do you recommend for that? 

Edited by hi202020

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WilsoInAus

Hi @hi202020 note that all immune disorders of over activity are related to the immune system attacking the body tissue. They can be highly serious issues such as: lupus, multiple sclerosis, diabetes (type 1), Hasimoto’s etc.

Prostadynia is an umbrella term for a number of issues in the genital region. Often you are able to drill down to a more specific cause but sometimes not. The issues in the umbrella are such things as prostatitis, pudenal nerve ‘entrapment’, erythromelagia and fibromyalgia to name a few. 

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