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emcee

PCR testing in Ontario or USA?

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emcee

I live in Ontario where PCR testing is not available. I've had a year and a half of horrible symptoms and subtle lesions. The lesions are too small to be accurately cultured, and my IgG tests have been negative as of three weeks ago, but my symptoms are highly suggestive of herpes. I saw an infectious disease specialist recommended i get a biopsy (which it looks like I'll have to do, but funny, herpes doesn't care when my appointment with a dermatologist is and the lesions only last a few days). I'd prefer to not have a doctor cut away my skin where the nerves are already in frequent pain.

Does anyone know of a way to get a PCR test done in Ontario or in the USA a short drive away? I've been researching but can't find a company online that lets you do it over the mail. If I go to the USA, I presume I'd still need to see a specialist which would require a referral from a US doctor?

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higgboson2

What about selfcollect.com? They have a swab HSV kit that I think is PCR. Not sure if they ship to Canada but you could probably ship to a proxy in the U.S. 

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emcee
24 minutes ago, higgboson2 said:

What about selfcollect.com? They have a swab HSV kit that I think is PCR. Not sure if they ship to Canada but you could probably ship to a proxy in the U.S. 


THanks, @higgboson2, I found out about them yesterday and called. It is PCR and the do ship to Canada

 

 

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higgboson2
On 6/18/2019 at 3:56 PM, emcee said:


THanks, @higgboson2, I found out about them yesterday and called. It is PCR and the do ship to Canada

 

 

That's good. I'm interested in what you find out, I have a case that is similar in some ways to yours.

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emcee
1 hour ago, higgboson2 said:

That's good. I'm interested in what you find out, I have a case that is similar in some ways to yours.

@higgboson2 what are your symptoms like?

I have mild fevers sometimes, near chronic fatigue and nerve pains in my lower right groin and hip where I (only recently) get burning on my skin and small lesions. It feels almost like someone kicked me there. The lesions and burning started 3 months ago and has been non stop since then. Some nights it's bad enough that I have trouble sleeping. Over the past year I've also often had bilateral burning in my thighs, hips, and lower back. Also, valtrex does nothing

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higgboson2
On 6/20/2019 at 12:16 PM, emcee said:

@higgboson2 what are your symptoms like?

 

In genital area, itching and burning. No classic blisters, but I get things that look like folliculitis (bascially they look like zits) as well as red patches. No nerve pain, but I do have extreme fatigue maybe one week out of a month. I also have oral symptoms but inside the mouth rather than around it. I also get strange rashes on my torso occasionally. I'm getting both swabbing and western blot done, I'll let you know what I find out. 

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JP9
On 7/4/2019 at 6:02 PM, higgboson2 said:

In genital area, itching and burning. No classic blisters, but I get things that look like folliculitis (bascially they look like zits) as well as red patches. No nerve pain, but I do have extreme fatigue maybe one week out of a month. I also have oral symptoms but inside the mouth rather than around it. I also get strange rashes on my torso occasionally. I'm getting both swabbing and western blot done, I'll let you know what I find out. 

Hope you're okay. I'm newly diagnosed. The worst time is waiting and trying to determine what's going on with your health. It causes a lot of anxiety. I'm here if you ever need someone to talk to or bring your frustrations and worries to. You don't need to do it alone. I know how it feels. Hang in there.

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