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KatJ
Posted (edited)

I was diagnosed almost a year ago and have always struggled to find an outlet or any support. I stumbled upon this site when researching a new rash. I’ve constantly struggled with dealing with my herpes, especially since I got it due to being raped.

I hope to be able to talk to some people with similar experiences and problems. I have HSV1 in the genital region. Does anybody else deal with that as well? 

Edited by KatJ

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Quest

I'm so sorry that happened to you! GHSV1 is common in here.

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KatJ
1 hour ago, Quest said:

I'm so sorry that happened to you! GHSV1 is common in here.

Yeah i never realized how common it was till I browsed through here! Makes me feel a lot better and not so isolated. The med express I went to to get diagnosed told me it was uncommon to have GHSV1, it made me feel so embarrassed. 

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WilsoInAus
10 minutes ago, KatJ said:

Yeah i never realized how common it was till I browsed through here! Makes me feel a lot better and not so isolated. The med express I went to to get diagnosed told me it was uncommon to have GHSV1, it made me feel so embarrassed. 

Oh no it sure isn't. Probably about half of all genital infections are of HSV-1. Was it a PCR swab on your primary outbreak or a blood test? What is your outbreak frequency looking like a year on?

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KatJ
1 minute ago, WilsoInAus said:

Oh no it sure isn't. Probably about half of all genital infections are of HSV-1. Was it a PCR swab on your primary outbreak or a blood test? What is your outbreak frequency looking like a year on?

It was a swab test on the initial outbreak. It’s about to be a year since I was diagnosed and I just recently had my 3rd outbreak. My second outbreak was around November and was almost as bad as the first. This one is just on my butt cheek and is more annoying than painful. It seems to be clearing up pretty quickly though.

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WilsoInAus

@KatJ what do you feel you main concerns are? 

Perhaps you might talk to your doctor about a suppressive treatment of antivirals for 6-12 months say to assist you build confidence in being outbreak free and have a brighter outlook?

Also note that you are not a pragmatic risk to guys who already have oral HSV-1 and vice versa, do you can date away with confidence.

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KatJ
4 minutes ago, WilsoInAus said:

@KatJ what do you feel you main concerns are? 

Perhaps you might talk to your doctor about a suppressive treatment of antivirals for 6-12 months say to assist you build confidence in being outbreak free and have a brighter outlook?

Also note that you are not a pragmatic risk to guys who already have oral HSV-1 and vice versa, do you can date away with confidence.

My main concern is just with trying to prevent it. I probably should take antivirals but I already take so many other meds daily due to other illnesses I have. Im a type 1 diabetic so I’m constantly taking insulin, I also take medication already for depression, anxiety, vitamin deficiencies, and allergies. I tend to ignore my medical issues, though I shouldn’t. I think starting to use this forum will give me a step in the right direction, to not ignore my problems and work on healthy alternatives.

I’ve kinda given up on worrying about sex since I’ve not only had to mentally cope with having HSV but also cope with the fact I was raped. I get really scared of anyone touching me in certain areas, not only in fear of spreading HSV, but also from PTSD

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G77
On 6/15/2019 at 6:28 AM, KatJ said:

I was diagnosed almost a year ago and have always struggled to find an outlet or any support. I stumbled upon this site when researching a new rash. I’ve constantly struggled with dealing with my herpes, especially since I got it due to being raped.

I hope to be able to talk to some people with similar experiences and problems. I have HSV1 in the genital region. Does anybody else deal with that as well? 

Hi I'm sorry to hear what happened to you.  I have ghsv1 too and it's been just over a year for me. I didn't get it in the same circumstances as you but I have been sexually assaulted when I was younger so if you need anyone to talk to about that, send me a dm and I will be happy to help if I can. 

 I've had 4 ob in total, 3 of which were very mild. I've not had one in 8-9  months now. I eat a healthy diet but don't cut out the foods they tell you not to eat like nuts, dark chocolate or caffeine. I think if you stay as healthy as you can and build up your immune system then over time your body will get used to it and probably fight off future ob's. I don't take antivirals but plan on taking them when I go on holiday as I had my first ob whilst abroad and don't want to go through that experience again! I feel like I repeat myself in these messages to people as I don't really have anything else to say lol. My experience has been pretty straight forward to be honest. Hope this helps x

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