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Anybody never had any sores/blisters yet still tested positive?

CheekyMunkey

By CheekyMunkey,
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CheekyMunkey Honeycomb Member

CheekyMunkey

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Hey. So I guess this questions is for those living with HSV already. I had an encounter and I feel like I've been exposed to a form of HSV (still need to get tested as it's about 7 or so weeks. Going to wait till 12 weeks now).

Apart from early symptoms of tiredness after the encounter all I've had is constant nerve pain in my hands, arms, shoulders, partial face, glutes, thighs, shins, ankles, feet and an odd itchy in my genitals. This has continued till this day but has decreased a little. However, I've had no obvious blisters or sores that resemble HSV. I've had cold sores as a child so I assume I'm HSV1 positive already. 

My question is for those who do have HSV1 or 2 and caught it have you never had any sores/blisters? If so, what other symptoms did you have and how/what test did you undertake? Here in the UK they refuse to test for HSV if you do not have a visual symptom eh sore/blister. I will end up paying for a private IgG. 

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CheekyMunkey Honeycomb Member

CheekyMunkey

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@WilsoInAus Hey. Hope all is well.

I've just done a lot of reading online and on this forum. Ive tested clear for everything else and just never been tested for HSV.

There are a few posts I've found on here regarding itching/nerve pain all over which you have been involved in and dismissed as they do not match the usual HSV symptoms. However I see no reason for people to lie and they have said they have been diagnosed for HSV at or around the time the symptoms started. I'm just gathering info I guess.

I had my turning 40 healthcheck today. I've come back clear for everything but HSV was not tested. The nurse openly said they do not test for it unless they see a sore. She said it was all down to cost. She did recommend for my own piece of mind I could pay for a private test but said I should wait for 12weeks. 

I don't want to have HSV2 etc but I feel my symptoms do point towards it except not having had a visual outbreak.

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WilsoInAus Platinum Support Member

WilsoInAus

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@CheekyMunkey I do challenge as to whether such symptoms are related. I’m willing to bet in most every story you have read, whether I have been involved or not, that involves all over body symptoms that a genital infection has not occurred.

No one is saying these people are lying about their symptoms, but that does not mean if they do have HSV that they have genital herpes causing those symptoms.

Thats why myself and others challenge such stories, because they haunt people like yourself, they fuel irrational fears.

You have not been tested for everything. You have been tested for a handful of serious asymptomatic (at least initially) viruses and bacteria.

Thats also assuming that your symptoms are viral or bacterial rather than tens of other possible issues.

Matching your symptoms to some other people who do not have confirmed genital herpes is not  really a rational approach, it may even be potentially dangerous.

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Muscha Acknowledged Support Member

Muscha

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Cheekymonkey.  If you have ever read Dr Hunter H. Handsfield.  He is a very prominent Dr in this field.  You can look him up from the Medhelp forums.  The forum is not active for hsv discussion anymore but there are many postings still available for reading.  He stated several times symptoms absent of lesions (obvious blister, ulcer sores then scabs that take 10 -14 days to 4 weeks to heal) are not suggestive of herpes.. He did say it was likely from "genitally focused anxiety"

 I too was gripped in fear and hypochondria but after research and some guidance from this forum and a few others i have been able to put my fears to rest.  Guess what....my symptoms went away as well.  I self diagnosed the worst because of fear.  It seems you may be doing as well.  There have been others who have done it also. 

The problem is when somebody/anybody on this forum says they have "some symptoms" and assume it must be from hsv but yet they test negative or dont listen to their DR's. Then, those of us gripped in fear who then see those post helps our own fears to run amok. 

Try to relax and give it time.  Easier said than done I realize but I believe you will find you are going to be OK.

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CheekyMunkey Honeycomb Member

CheekyMunkey

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@WilsoInAus @Muscha. Hey guys I appreciate your input on this and I understand exactly where you are coming from. I have just never felt these symptoms before. I did think it might be down to a herniated disc in my back/neck area so I have been doing the physio thing to see if this pain improves but then I also understand thay HSV can improve and outbreak symptoms usually run their course for about 4-6weeks. I'm obviously beyond that now and it is less obvious then say 3-4 weeks ago. I rarely go to the Dr too as I don't like wasting their time but this is freaking me out a little. 

As you say @Muscha I have been trying to ignore it and get on with things but as the pain is constant it's quite hard to do. If I'm honest it does feel like nerve pain and like something is in my blood as the skin everywhere is also hypersensitive to touch. That kinda feeling of stinging skin all over and I feel hot all the time. I'm usually someone who always feels cold. So something has happened. It could be bacterial but my blood tests are clear. Had a full count done and organ function tests. All fine. 

I'll have a look at Dr Hunter. Sounds interesting. I just have to hope it subsides. Maybe I'm drinking contaminated water. God knows. 

 

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  • 4 weeks later...
balb9 Newbie

balb9

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Have you received any clarification on these signs and symptoms? I have been experiencing the same thing with the nerve pain in the same approximate locations and was wondering if you had found anything out about it being related to HSV-2?

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CheekyMunkey Honeycomb Member

CheekyMunkey

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Hey @balb9. I haven't tested yet. This is my 12th week so if I'm going to have anything it will show now. I've ordered a test and need to arrange an appointment for them to withdraw blood. Has your condition changed?

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  • 2 weeks later...
CheekyMunkey Honeycomb Member

CheekyMunkey

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14 hours ago, Contador 123 said:

Any update?

Hi Mate. You can follow my other thread which covers my whole journey. I did get tested and I'm negative. My symptoms have generally reduced by 95%. The test at least confirms it's not any type of HSV. Could have just been a reaction from my body.

I think the not knowing probably amplified the symptoms more. Now I know it's not HSV and pretty much tested for everything else I'm just going to try and move on. Wish you the best.

 

 

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    • WilsoInAus
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      By WilsoInAus · Posted

      Yeah @FirstTimeUser there is nothing in the pic suggestive of genital herpes. It seems both you and your partner have HSV-1 orally and that's actually pretty cool. It means you won't pass it to each other's genitals owing to immunity. If the two of you are concerned about genital HSV-2 then mutually test for the IgG HSV-2 and HSV-1 antibodies.
    • CHT
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    • CHT
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      By CHT · Posted

      Hi Marlena..... since you stated you've had "herpes on the lips" then you likely have oral HSV1, which the majority of adults worldwide have... the fact your results for HSV1/2 are positive (at least I believe that's what your results show - I don't speak Polish but, I think I'm seeing your results are positive based on the attachment you included) may simply be reading the fact that you have HSV1.... the question is whether you've contracted HSV2 in your genital area. Your description of symptoms could possibly be related to HSV but, it's difficult to verify with certainty based on your description. You may also have contracted a different type of sexually transmitted infection (STI) or a simple fungal infection.   Your doctor does not believe what he/she is seeing is HSV but, unless your doctor has experience with HSV, they could easily misdiagnose your condition.  You need full STI testing. Do you have the option to travel to a larger city in Poland where you could get an appointment to be seen by a doctor with more experience with STIs?  You really need to have an experienced doctor take a look and run tests to check specifically for HSV2 as well as other STIs.  If they can rule out HSV2 or other STIs then hopefully they can then determine what is causing the redness, itching, and swollen condition.... again, it may not be HSV2 but, you need proper testing to verify.  Have you talked to your boyfriend about all this?  Has he had any symptoms on his genitals that are suspect?  Has he taken any tests to check for STIs?   I hope you can get more definitive testing so you know what you are dealing with and how best to treat it.  If you have any other questions/concerns, please come back and let us know.... I hope this helps a little.... best of luck.... take care.
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      Hey Jeremy.... I know only too well that emotional pain you are feeling.... I really do.... and many of us on this site also know that pain.  It's not so much the physical side of having HSV that hurts, it's the stigma and risk of rejection that stings like hell!  You have to do what you think is right as it relates to when you disclose your HSV status when getting to know someone romantically.... I just think it's best to do it relatively early, and certainly before any sexual activity.   Have you looked into dating sites that cater to those with HSV?  I know others have had some luck with meeting partners on these sites.... you don't have to worry about the "disclosure" talk nor would you obviously have to worry about passing along a virus the other person already has.... take a few minutes and search around and see if it's an option you like. By the way, by taking your daily antiviral med and using a condom, your risk of passing along the virus is down around 1.9%.... pretty good odds that if you stick to your regimen you are very unlikely to transmit the virus....keep that in mind when you meet your next girlfriend and need to have "the talk."  That statistic might help calm any concerns about contracting the virus from you. I hope you don't give up.... as tough as it can be to find the right partner, it's still worth trying.... try to stay optimistic and look into some alternate options and see what happens.... all the best.... take care.
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