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Theremustbeaway

CAN’T WE SELF TEST CURES

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Theremustbeaway

I’m soo frustrated . Can’t we all get a Bio Hacker or a Scientist who is willing to work with us and just self test a cure based on all the available science available . Waiting 15-20years is crazy . I can’t do it . My life is passing by me right now . What do I do now. Is this concept so crazy. Before the 20th century mankind did so much so quickly .imagine if the red tape we see now was around back then nothing would get done within a reasonable time frame . We need action now . 

Collective minds can achieve anything .  with all this said anyone know of any scientist or bio hackers interested in self testing. 

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The

Its not a crazy idea if you have a couple million dollars lying around.

As common as this condition is you have to think that wealthy people simply employ a private lab and have them perform experimental treatments on them with signed consent... while we wait for the FDA to dick around and watch us suffer. These days they are more concerned with upholding their reputation and covering their own ass than bringing swift relief to ailing sufferers.

I remember when I was a child... I was up late and I saw a commercial for Valtrex. Fast forward over 20+ years and now I contract HSV. The first thing I thought to myself during my first OB was... "That valtrex commercial was sooo long ago.... I was a kid. WIth all the advancements in science, medicine, and technology that have been happening, SURELY they have something better now right? And if not, they have to be close to it, right?" WRONG. welcome to the twilight zone. Where every STD on the planet either has a cure or an advanced treatment by now, except HSV.

I just don't get it. If its such a "mild skin condition" then why on earth is it taking soooooo  long to come up with something that could atleast let us live a normal life, then? I understand it's tricky to cure outright, but over a half century of research and they cant even give us a cream or an injection that at least TEMPORARILY disables the virus for a few hours?? We have to sit helplessly as our lives slip away over a "mild skin condition"? Then they have the nerve to obligate us to disclose to everyone. Huh??? You just told me its not a big deal and its a common skin rash thats easily manageable. No cure, no vaccine, but its not a big deal. Research has been stagnant. In fact they dont even test for it.... um Ok??? If you guys clearly don't give a damn then why should we??! Its just not adding up here. Either treat this thing like a serious condition, or don't.

Then I found out how the FDA works. They force every researcher to go through a decade of testing for every new treatment. Approximately 22% of treatments even make it past phase 3 testing as is.  And because its not life threatening, The medical world likens this disease to pink eye or eczema... which means nothing EVER gets fast-tracked for us. Do the math, and we're looking at ONE FDA approved treatment every 50 years. Technically I guess that means we're due for something soon but still. Sorry for the rant but I feel your frustration, its truly sad and outrageous. If you ever meet a biohacker let me know.

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Theremustbeaway

Honestly your rant is exactly how I feel , this makes no sense to me .....everything has a cure or a treatment .....honestly the false morality of this entire issue pisses me off even more , within the last 50 years they started testing for type specific hsv so before this all of humanity there was no communication about this “harmless disease” it’s the dumbest thing, we are in the Twilight Zone .

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Ely

I believe God give cure for every condition its just need to be founded also I believe that they have something for hsv condition, this condition is among us for ages, but pharmaceutical companies don't have interest to cure people they rather collect money for relief but for years it is what it is can't do nothing about it 

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Stock42

I wish that I could say that I had high hopes of a cure being put out there for the general public anytime soon, but I don't think it's ever going to happen to be honest. Herpes isn't taken seriously by ANYONE until they get it. I never even considered it in any way shape or form outside of it being the punchline of a joke in a movie or a standup comedian. It's not until you get that diagnosis that you are ENLIGHTENED and in the worst way possible. Now for my rant and yeah I'm going to sound like a conspiracy theorist nut for a minute, but whatever IT IS the RANT section. I'll keep it short and bitter. It's a business model that even the most braindead wretch slingin dope on a street corner grasps... You want to keep your customers coming back for more. A helluva lot less money in a one time cure as opposed to keeping people dependent on their daily, monthly or whatever fix. So I'm sorry but sitting around and waiting for big pharma and the fda to come to the rescue is a pretty depressing scenario. 

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Stock42
3 hours ago, Cas9 said:

@Stock42

Lots of research is going on for herpes. It's just not an easy virus to cure. And yes, it will be years before something is available, but here's some encouraging research for you.

https://www.youtube.com/watch?v=bn3idMX9x1c

Thanks for sharing that video. I've read some articles on gene editing but didn't think that it was gaining any steam. Great to see otherwise. Fingers crossed!

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