Jump to content

Recommended Posts

I am GHSV2 positive with a full credential--an unequivocal and indisputable blood test with lots of little antibodies in it.  I even obtained an advanced degree--a biopsy of the first OB. I've had this nervous system infection for several years...yes, nervous system infection...not a dermatologic infection. It is a widely known fact that GHSV2 resides in the sacral ganglia.  Pesky things, them facts!!! 

My first OB presented with all the bells and whistles...and sirens.  Now, I rarely get OBs.  By rarely, I mean that I can go a couple of years or more without one.  However, I do frequently suffer from the same identical sacral nerve pain that I experienced when I had my first OB.  I did not experience this type of pain prior to being exposed to HSV2.   There are two reasons I use Valacyclovir, but I do not take it every day.  1. I want to decrease the likelihood of giving HSV2 to my significant other (I don't medicate daily because it was a LDR) and/or 2. I am in a lot of sacral nerve pain and I don't want to wait it out.  In my case, whether or not I use Valacyclovir, I rarely have an OB...I just have nerve pain.  The nerve pain is alleviated by taking Valacyclovir.  It's like prodrome nerve pain, but without the blisters.  Does anyone doubt what I am experiencing as being HSV2 related?  If so, please explain why.  Make sure you have done significant research and are able to post charts and graphs and multiple sources to back up your statements...because this shit's real 😤 

Edited by CookieSC
Link to post
Share on other sites

@CookieSC

Hey. Out of curiosity are you able to describe what nerve pain you get and where? Also does it just continue non stop or does it vanish and return intermittently? You mentioned you had a positive confirmation of HSV2 when this all started so I guess it makes sense to link them together. 

Link to post
Share on other sites
5 hours ago, CheekyMunkey said:

@CookieSC

Hey. Out of curiosity are you able to describe what nerve pain you get and where? Also does it just continue non stop or does it vanish and return intermittently? You mentioned you had a positive confirmation of HSV2 when this all started so I guess it makes sense to link them together. 

It is an intense ache/stabbing type of pain that radiates from my butt cheek/hip area down to my calf.  It's usually in one leg much stronger than the other.  It is an intermittent pain, and, as I stated, I take Valacyclovir because sometimes it is too intense to wait out or, for many reasons, I don't want to use pain medication.  The Valacyclovir works great and the pain is gone quickly, as in a matter of hours.

 

Link to post
Share on other sites

Links to validate the connection between HSV and neuropathy:

http://archneur.jamanetwork.com/mobile/article.aspx?articleid=795486

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet

https://jamanetwork.com/journals/jamaneurology/fullarticle/795486  which may just be a more comprehensive article than the first link.  

I have quite a bit of experience with the medical industry and have seen some horrific cases of misdiagnoses and outright deception.  My own ex-husband was misdiagnosed as having cancer when, in fact, he did not have it.  Even though we sought a second opinion from a NIH CCC, he got rushed into treatment and had two unnecessary surgeries, two weeks of chemotherapy and two radiation treatments before the second opinion came in.  Yep.  He was treated for a cancer he didn't have.  It was a nightmare.  Doctors scurried around securing third opinions (the tie-breaker) from colleagues that were "in pocket" and didn't have the credentials we were told they had.  We were badgered with phone calls and certified mail that told us he was going to die if he didn't get back into radiation treatment. I did a lot of research that disputed claims the treating oncologists were making about his non-existent cancer and I uncovered and exposed lies and misrepresentations. 

There's so much more to the story, but the takeaway here is that even the people who treat conditions day in and day out make mistakes and make decisions and assumptions based on obsolete, faulty, or incomplete data.  It's important to do your own research and be your own advocate.  Dig for answers if what the doctors are telling you just doesn't feel quite right.  I did a metric shit ton of research when my husband was sick, and helped save him from enduring a treatment protocol that would have completely destroyed his quality of life and possibly would have eventually killed him. 

Read the personal accounts of HSV2 patients here, particularly two that go by lynn and diana:

https://patient.info/forums/discuss/hsv2-peripheral-neuropathy-488870
 

Diana does an excellent job of advocating for herself.

 

Edited by CookieSC
Link to post
Share on other sites
3 hours ago, CookieSC said:

Links to validate the connection between HSV and neuropathy:

http://archneur.jamanetwork.com/mobile/article.aspx?articleid=795486

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet

https://jamanetwork.com/journals/jamaneurology/fullarticle/795486  which may just be a more comprehensive article than the first link.  

I have quite a bit of experience with the medical industry and have seen some horrific cases of misdiagnoses and outright deception.  My own ex-husband was misdiagnosed as having cancer when, in fact, he did not have it.  Even though we sought a second opinion from a NIH CCC, he got rushed into treatment and had two unnecessary surgeries, two weeks of chemotherapy and two radiation treatments before the second opinion came in.  Yep.  He was treated for a cancer he didn't have.  It was a nightmare.  Doctors scurried around securing third opinions (the tie-breaker) from colleagues that were "in pocket" and didn't have the credentials we were told they had.  We were badgered with phone calls and certified mail that told us he was going to die if he didn't get back into radiation treatment. I did a lot of research that disputed claims the treating oncologists were making about his non-existent cancer and I uncovered and exposed lies and misrepresentations. 

There's so much more to the story, but the takeaway here is that even the people who treat conditions day in and day out make mistakes and make decisions and assumptions based on obsolete, faulty, or incomplete data.  It's important to do your own research and be your own advocate.  Dig for answers if what the doctors are telling you just doesn't feel quite right.  I did a metric shit ton of research when my husband was sick, and helped save him from enduring a treatment protocol that would have completely destroyed his quality of life and possibly would have eventually killed him. 

Read the personal accounts of HSV2 patients here, particularly two that go by lynn and diana:

https://patient.info/forums/discuss/hsv2-peripheral-neuropathy-488870
 

Diana does an excellent job of advocating for herself.

 

You are so right about being an advocate for yourself.

I like that you provide sources for your claims, and that you don’t discredit personal experiences of others.

In my opinion, certain people on this forum are too quick to debunk personal experiences.

Edited by blurneworder
Link to post
Share on other sites
20 hours ago, blurneworder said:

You are so right about being an advocate for yourself.

I like that you provide sources for your claims, and that you don’t discredit personal experiences of others.

In my opinion, certain people on this forum are too quick to debunk personal experiences.

Thank you.  There are case studies, post mortem statistics, etc. that back what I have written about my own nerve pain.  When people deny people's experiences and refuse to consult research findings, they hurt others. It's inexcusable.  

  • Like 2
Link to post
Share on other sites
On 8/23/2019 at 3:06 AM, CookieSC said:

It is an intense ache/stabbing type of pain that radiates from my butt cheek/hip area down to my calf.  It's usually in one leg much stronger than the other.  It is an intermittent pain, and, as I stated, I take Valacyclovir because sometimes it is too intense to wait out or, for many reasons, I don't want to use pain medication.  The Valacyclovir works great and the pain is gone quickly, as in a matter of hours.

 

Hi CookieSC,

Thanks for coming back to me. Im going to get tested for HSV 1/2 this week or the next as its been 12 or so weeks since exposure. Since my first encounter I recognised itching in my legs when I wore fitted jeans but its now in my hands, arms, shoulders, chest shoulder blades, ankles, glutes, feet. Shins feel like they have static on the hairs and on my face. etc. Anyways, the girl I was seeing at the time said she never had any symptoms of HSV so has never been tested. However, she did say she has had kidney problems since being a child and gets UTIs regularly because of a small urethra. Ive heard these can sometimes be mistaken as UTIs but they are actually as a result of HSV. Now Im not saying this is all HSV. Problem is the Drs will not test for HSV as I have had no breakouts/sores etc. Im assuming its hsv because of the nerve related issues and its the only test that hasnt been done. Im negative for all other things. 

The reason Im a bit confused is that I have a history of a herniated disc whitch causes nerve pain down my left leg, calve, heel of my foot which I also injured a little during the time of this encounter.

Anyways, Im going to get tested now and I guess I will find out where I stand. The reason many people do not think its HSV is because I am itching/tingling all over and not just in my legs. A little on and off in my penile area but it itches more else where.

Hoping its not HSV. If its not then its a case of what the heck am I having a reaction too.. Ive had cold sores as a child so I expect to has HSV1 already.

 

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Single ➵ You may like to try the Dating App

  • Similar Content

    • Jesusislove777
      By Jesusislove777
      Hello, 
      I was diagnosed with hsv1&2 earlier this year. I was prescribed 1g of valtrex (valacyclovir) a day for suppressive therapy.  Valtrex helps greatly with my symtoms, but I recently had to leave my job for health reasons and will no longer have health insurance to get prescribed valtrex. 
      Does anyone know where I can purchase valtrex (valacyclovir) online without a prescription?
    • RSL888
      By RSL888
      I've had HSV2 for 4 years now. Recently had an unrelated minor spinal injury that caused some severe neuropathy. So instead of taking narcotics for months, my doctor just had me try my first round of Immunoglobulin IVIG treatments (4 days getting the intravenous blood infusion) labeling my symptoms as something called CIPD (google it). (IVIG treatments give you a boost to your immune system).  Also note, I can't take steroids long term also because it spikes my sugar and I have Type 2 diabetes. 
      I wonder if anyone else here has tried IVIG? I have read that some people have taken it to suppress HSV. Love to hear from others. It's too early for me to know if this works - I'll report back in several months. Just so you know my background - I had OBs in the first year about every 8 weeks, which consisted of neuropathy and maybe some small bumps. Then the second year I only got those same symptoms every 4 months or so, then i only get these now about once or twice a year, and it's mostly just some tingling and nerve pain. So we'll see how this works out. There are articles out there too. 
      @WilsoInAus
      Edited to add this link... 
      https://pubmed.ncbi.nlm.nih.gov/7759773/#:~:text=Since intravenous immunoglobulins (IVIG) proved,%2FKg every fourth week).
    • HSV2sucks
      By HSV2sucks
      I am experiencing a lot of nerve pain, numbness, shooting pain, back pain, leg pain, pain in my butt cheeks... and I found some studies on nerve pain & HSV... 
      https://jamanetwork.com/journals/jamaneurology/fullarticle/795486
    • Freefalling87
      By Freefalling87
      I contracted the virus anally 2 years ago without a primary outbreak, just the fever like symtpoms. Only had my first visible outbreak 4 months later and took valtrex for a few days. Only afyerni was done with the meds, that's when the nerve pain started. Ever since then, I never used any meds again and only have a small red dot outbreaks in my inner left and right thighs near my dick. 
      However, the nerve pain is constant on my left inner thigh in the crease and it sometimes moves to the head and shaft (nerve tingly pain). This pain has been constant for 2 years. Just wondering if I'm the only one with this problem, but are there any guys who have constant nerve pain from hsv2? 
    • Theairplanelanded
      By Theairplanelanded
      I started talking to a girl and we had sex. Two days later I find these spots on my penis and I’m starting to stress. I have jagged off without lotion so it can be that but still can you guys help me ? Does it look like herpes ..?
      https://ibb.co/5hf1F11
      https://ibb.co/56qctQ6
  • Trending Now



  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71,771
    • Total Posts
      485,469
  • 0_unsure-if-it-is-herpes.png

    Nervous about dating with herpes? Skip "the talk" and browse profiles here.

  • Posts

    • Lucy29
      @CHT I am not sure what country you are in but I am in the U.K. and they don’t do blood tests for HSV at the standard sexual health clinics maybe at private ones where you have pay they do.   What would checking my anti bodies confirm ? And she didn’t swab the area as she said there was nothing to swab and no lesions but I am sure there was. She seemed quite inexperienced.  I have had an lesion swabbed years  ago  to confirm HSV2 but no swabs  since.  I would like  to know if they are HSV or my excema as I never know which is which so I just don’t have sex when I get these feelings as I don’t know if I’m having a Outbreak.  I will have a look at the link thanks. I wouldn’t want to go on the implant again as I don’t want 3 years of birth  control in my arm. I may consider the mini pill which is the same hormone as the implant as I can easily stop this it I have a bad reaction. I have an appointment with a specialist at the sexual health clinic next week 
    • WilsoInAus
      Hey @PlainJane what a thoroughly nasty piece of work! Im afraid it is the waiting game for you, having said that, there seems very little reason for you to suspect herpes.
    • PlainJane
      @WilsoInAus Thank you so much for the reply! You did before I even asked lol. I really didn’t want to talk to her about it. The last time we had spoken she was really mean and nasty to me. Threatening to beat me up because she was drunk. I don’t want her going around telling people I asked her if she has herpes because I have it. Which she absolutely will. Or she does and then I will be her scape goat for her to tell people I’m the one who gave it to her. I guess it’ll be a waiting game to get blood work to confirm or deny the presence of HSV2 antibodies. 
    • WilsoInAus
      Hello @PlainJane I think I recall your partner's post and would suggest that what he had as revealed in the photos was almost certainly not herpes - and reaffirmed above! The first thing to note is that you cannot be infected with HSV-1 and then test at a level 43.5 a total of 9 days after the incident. That's not how your body works. It would takes several weeks and possibly months to reach that level. Undoubtedly the HSV-1 infection is old and highly likely an oral infection from your childhood. The next thing to note is that toys or any object are not a great way of transferring herpes. Typically the rubbing of the skin area that is shedding the virus against the recipient's skin is needed. Transfer any other way is somewhere between infeasible to impossible. Your pictures do not look like herpes to me in favour of folliculitis - your partner's thigh shots are almost certainly folliculitis. Also note that this female friend must have HSV-2 for this to even warrant the vaguest notion of herpes being a cause. Can you ask her? If she does have HSV-2, then you will need a 12-16 week IgG test in order to have a conclusive answer (with a strong expectation of negative).
    • PlainJane
      @WilsoInAus Could you review this? You replied previously on my boyfriends post of his butt rash. I guess all I can really do is find a facility who will swab when I have a suspecting bump, since my doctor won’t for some reason and then redo the blood test for HSV2 since it’s now been 4 weeks since possible exposure. 
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.