Diagnosed today and I'm not sure

[DrumLoop8]

Hey all,

 

So went to the doctors today to get my 13 weeks IGG tests done at the same clinic I did my 6-7 weeks test done and got a rude awakening. This whole time I thought I was negative because the clinic never called me after I did my test at 6-7 weeks. No news is good news right?

So the doctor reveals I have an index value of 1.3 for HSV 2 at 6-7 weeks. And they didn't call me because it's such a little number that there is no point YET I'm considered positive.

I don't get these doctors. They also refused to do a 13 weeks Test Today because I was already resting positive.

3 and half years ago I tested 0.90 for hsv2 and above 8 for hsv1 (had cold sores since I was a little kid). I was at equivocal and the doctor today told me the 1.3 test result I got was confirming my hsv2. So after 3 and half years my value went from 0.90 to 1.3. Is this normal? 

Should I get another IGG TEST done?

I'm really trying to avoid the western blot cuz it seems like any doctors I tell it to don't even know what it is.

 

[Tone123]

Your worries was from unprotected oral and mainly hsv1 would be of risk and with a long standing oral hsv1 you were basically immune to get it in another location. I won't take that as definitive as I'm sure you've don't your reading and know of false positive. In 3 years that number would be higher. Did you also have sex from that exposure of concern

[DrumLoop8]

6 minutes ago, Tone123 said:

Your worries was from unprotected oral and mainly hsv1 would be of risk and with a long standing oral hsv1 you were basically immune to get it in another location. I won't take that as definitive as I'm sure you've don't your reading and know of false positive. In 3 years that number would be higher. Did you also have sex from that exposure of concern

Yeah because if I did get infected 3 years ago I would think my numbers would be higher. But is it possible that they were high and went back down within those 3 years? Has this ever happened?

No I haven’t had any sex since the concerning exposure.

 

[Tone123]

1 minute ago, DrumLoop8 said:

Yeah because if I did get infected 3 years ago I would think my numbers would be higher. But is it possible that they were high and went back down within those 3 years? Has this ever happened?

No I haven’t had any sex since the concerning exposure.

 

Drs should of allowed u to retest smh. U can order your own tests online if you're in the US. That's almost sure to be a false positive. Especially if oral was your only exposure and not sex from the same person. Hsv1 would be the only risk there anyway and you're immune because of you having a long standing hsv1 infection yourself. 

[Tone123]

Yes if 3 years was your last sexual exposure then for sure it's a false positive and I'll get a confirmatory test. 

[DrumLoop8]

1 minute ago, Tone123 said:

Drs should of allowed u to retest smh. U can order your own tests online if you're in the US. That's almost sure to be a false positive. Especially if oral was your only exposure and not sex from the same person. Hsv1 would be the only risk there anyway and you're immune because of you having a long standing hsv1 infection yourself. 

I'm in Canada and I don't know if I can order tests online from here.

Ugh. I really hope you're right Tone because it's all difficult to swallow....

 

[DrumLoop8]

1 minute ago, Tone123 said:

Yes if 3 years was your last sexual exposure then for sure it's a false positive and I'll get a confirmatory test. 

I'm so fed up of testing! lol I've been to the Drs way too much these past 3 months.

Well 3 and half years ago I met someone and we both got tested before we engaged in condomless sex. That was when I got my 0.90 hsv2 test result. 

Fast forward today and we are still together but I had a stupid night and got oral from someone drunkenly. My partner and I stopped having sex in May 2019 and my oral exposure was in late June. 

It's possible I might have caught herpes before I met my partner 3 years ago if I had the 0.90 equivocal result? I did have a scare back then when I found a weird bump in 2015 but it went away quick.

[Tone123]

That bump could of been anything and after 3 years you'd have a strong positive by now. Keep your head up and see another doc. Do another test hopefully using a diff company that runs the test. I always test for hsv1 and 2 even tho I know I have hsv1 because I don't want that cross reaction happening lol. 

[DrumLoop8]

3 minutes ago, Tone123 said:

That bump could of been anything and after 3 years you'd have a strong positive by now. Keep your head up and see another doc. Do another test hopefully using a diff company that runs the test. I always test for hsv1 and 2 even tho I know I have hsv1 because I don't want that cross reaction happening lol. 

I'll try. I think I just need a break from testing. I'm so fed up. 

I can see that it's a big possibility that it could be a false positive. Should I just take it as that and move on?

I can bare doing more testing...

[DrumLoop8]

Should I bother with a western blot?

I heard you can't order it from Canada.  is this true? Has anyone had success ordering from Canada?

[Tone123]

49 minutes ago, DrumLoop8 said:

Should I bother with a western blot?

I heard you can't order it from Canada.  is this true? Has anyone had success ordering from Canada?

I'm not too sure I believe so. Go to Terri Warrens web site and type in western blot and Canada. I'm sure she dine it for someone before. 

[DrumLoop8]

38 minutes ago, Tone123 said:

I'm not too sure I believe so. Go to Terri Warrens web site and type in western blot and Canada. I'm sure she dine it for someone before. 

Should I bother with it though?

Since 1.3 IGG is about 85% false positive most of the time. Read this on Terri’s forum....

[WilsoInAus]

2 hours ago, DrumLoop8 said:

Should I bother with it though?

Since 1.3 IGG is about 85% false positive most of the time. Read this on Terri’s forum....

For you, perhaps over 85% as you have had no lesions, no recent sex and have oral HSV-1.

There's a good chance another IgG test will be now negative in any event. Think I'd try that before the WB. 

 

[DrumLoop8]

25 minutes ago, WilsoInAus said:

For you, perhaps over 85% as you have had no lesions, no recent sex and have oral HSV-1.

There's a good chance another IgG test will be now negative in any event. Think I'd try that before the WB. 

 

Thanks Wilso.

I'm just afraid I'll get the same value or back in the equivocal range (0.90-1.1) If I do another IGG. The doctor did not recommend I do another IGG for that reason too.

It's just harder to get a blot done in Canada from what I read on Terri’s forum. 

The only reason I think It's also false is because when I tested 3 and half years ago and got a 0.90, it was when I began my relationship with my partner and we both got tested together. my partner got a negative IGG and I got a 0.90. Since then we have been intimate together until may 2019. My partner has had no outbreaks and to my understanding, hasn't been infected with my 0.90 IGG.

I have only received a questionable oral sex since June 2019 and that can be the only reason I might have herpes but I have hsv1 already and the value is higher than 8.

What do you think?

[WilsoInAus]

1 hour ago, DrumLoop8 said:

Thanks Wilso.

I'm just afraid I'll get the same value or back in the equivocal range (0.90-1.1) If I do another IGG. The doctor did not recommend I do another IGG for that reason too.

It's just harder to get a blot done in Canada from what I read on Terri’s forum. 

The only reason I think It's also false is because when I tested 3 and half years ago and got a 0.90, it was when I began my relationship with my partner and we both got tested together. my partner got a negative IGG and I got a 0.90. Since then we have been intimate together until may 2019. My partner has had no outbreaks and to my understanding, hasn't been infected with my 0.90 IGG.

I have only received a questionable oral sex since June 2019 and that can be the only reason I might have herpes but I have hsv1 already and the value is higher than 8.

What do you think?

I think you actually got <0.90 at the last test which is a clear negative.

I do not think it is feasible you have HSV-2; a further IgG can't hurt, if the number is less than 1.4 then that's as good as a negative I suggest. If it is a little higher then you're no worse off for knowledge!

[Stolo868]

10 hours ago, DrumLoop8 said:

Thanks Wilso.

I'm just afraid I'll get the same value or back in the equivocal range (0.90-1.1) If I do another IGG. The doctor did not recommend I do another IGG for that reason too.

It's just harder to get a blot done in Canada from what I read on Terri’s forum. 

The only reason I think It's also false is because when I tested 3 and half years ago and got a 0.90, it was when I began my relationship with my partner and we both got tested together. my partner got a negative IGG and I got a 0.90. Since then we have been intimate together until may 2019. My partner has had no outbreaks and to my understanding, hasn't been infected with my 0.90 IGG.

I have only received a questionable oral sex since June 2019 and that can be the only reason I might have herpes but I have hsv1 already and the value is higher than 8.

What do you think?

If according Terri  HSV2 IGG misses 8% of infection and HSV1 misses 30% compare to WB which still is not 100% sensitive it is terrible test.  (She had 9 negative WB hsv2 tests compare to swab test during her career).  People around the world get WB so I think it won’t be that hard for you to order WB kit from UofW and get your blood drawn in some lab in Canada. You will get an  answer and for 450$ buy your own peace. 

[DrumLoop8]

2 hours ago, Stolo868 said:

If according Terri  HSV2 IGG misses 8% of infection and HSV1 misses 30% compare to WB which still is not 100% sensitive it is terrible test.  (She had 9 negative WB hsv2 tests compare to swab test during her career).  People around the world get WB so I think it won’t be that hard for you to order WB kit from UofW and get your blood drawn in some lab in Canada. You will get an  answer and for 450$ buy your own peace. 

Thanks Stolo. But man 450$ is so expensive!

I can't even imagine where to start to find someone to draw and spin my blood here. I spoke to 2 doctors about it and they were clueless. I honestly don't know what to do...

[Stolo868]

18 hours ago, DrumLoop8 said:

Thanks Stolo. But man 450$ is so expensive!

I can't even imagine where to start to find someone to draw and spin my blood here. I spoke to 2 doctors about it and they were clueless. I honestly don't know what to do...

It is this is the price we pay for our mistakes and peace of mind... you can ask Terry Warren she has some addresses where you can draw your blood and you can ask in private labs for let say 20-30$ they will draw and spin your blood. 

[DrumLoop8]

On 10/4/2019 at 11:40 PM, WilsoInAus said:

I think you actually got <0.90 at the last test which is a clear negative.

I do not think it is feasible you have HSV-2; a further IgG can't hurt, if the number is less than 1.4 then that's as good as a negative I suggest. If it is a little higher then you're no worse off for knowledge!

Thanks @WilsoInAus

im planning to do another IGG test.

If let’s say the test comes back with a value of the same amount I got at 6-7 weeks (1.3) or a little higher...would that be a clear positive? This would be my 14 week test. 

or what if the 14 week test goes back into the equivocal values of 0.90-1.1? I guess WB?

[Tone123]

5 minutes ago, DrumLoop8 said:

Thanks @WilsoInAus

im planning to do another IGG test.

If let’s say the test comes back with a value of the same amount I got at 6-7 weeks (1.3) or a little higher...would that be a clear positive? This would be my 14 week test. 

or what if the 14 week test goes back into the equivocal values of 0.90-1.1? I guess WB?

I'll beat him to the answer I hope u don't mind. In my opinion it'll solidify the false pos if it came back the same or lower. It'll be higher than what it was before. 

[DrumLoop8]

8 minutes ago, Tone123 said:

I'll beat him to the answer I hope u don't mind. In my opinion it'll solidify the false pos if it came back the same or lower. It'll be higher than what it was before. 

Thanks @Tone123 but why do you say It’ll be higher than it was before?

[Tone123]

10 minutes ago, DrumLoop8 said:

Thanks @Tone123 but why do you say It’ll be higher than it was before?

I'm sorry I tyoe to fast with out clarification. I meant that it should be higher if ones infected and if still is a low number or the same as it was then it just proves that it's more likely a false pos. There is proteins people have in the blood that trips the igG test and they'll always get similar results. My hsv1 numbers are in the 30s for example. I remember when I first found out a few years back it was around the 10 range. Now after this encounter ive tested for both only because i dont want no cross reaction to go on.. i noticed sometimes people will onky test for hsv2 when they know thwy already have type 1. 

[DrumLoop8]

6 minutes ago, Tone123 said:

I'm sorry I tyoe to fast with out clarification. I meant that it should be higher if ones infected and if still is a low number or the same as it was then it just proves that it's more likely a false pos. There is proteins people have in the blood that trips the igG test and they'll always get similar results. My hsv1 numbers are in the 30s for example. I remember when I first found out a few years back it was around the 10 range. Now after this encounter ive tested for both only because i dont want no cross reaction to go on.. i noticed sometimes people will onky test for hsv2 when they know thwy already have type 1. 

Oh ok I see what you mean. I’m going to schedule my next IGG test for both types tomorrow and see what it gives.

Hopefully it comes back lower. 

[DrumLoop8]

Hey guys.

so a little update.

got my 12 weeks IGG test back today while I was doing my 16 week IGG test. It took forever to get the results!

so the 12 week results were 1.6 for HSV 2. My results at 6-7 weeks was 1.3.

what do we make of these numbers? If I was a true positive, wouldn’t my numbers be a lot higher then 1.3?

A little history...I have hsv1 at 8.0. Got cold sores since I was a child. I haven’t really had any symptoms of type 2. Got sketchy Oral sex at potential exposure and it’s got my worried since late June this summer.

i hope my 16 week test results are lower....

anyone that wants to chime in and Help me out? Thanks in advance.

[WilsoInAus]

4 minutes ago, DrumLoop8 said:

Hey guys.

so a little update.

got my 12 weeks IGG test back today while I was doing my 16 week IGG test. It took forever to get the results!

so the 12 week results were 1.6 for HSV 2. My results at 6-7 weeks was 1.3.

what do we make of these numbers? If I was a true positive, wouldn’t my numbers be a lot higher then 1.3?

A little history...I have hsv1 at 8.0. Got cold sores since I was a child. I haven’t really had any symptoms of type 2. Got sketchy Oral sex at potential exposure and it’s got my worried since late June this summer.

i hope my 16 week test results are lower....

anyone that wants to chime in and Help me out? Thanks in advance.

As you have HSV-1, any result less than 3.5 will always be meaningless. Your HSV-1 has been capped at 8.0. A form of cross reaction from HSV-1 may always mean you test low positive for HSV-2.

I'd suggest you do not need any more testing.

It is not feasible to think that you were infected with HSV-2 from oral sex. Extremely few people have oral HSV-2 and it isn't known to shed to any infectious extent. Oral HSV-1 is of course way more common, but owing to your immune system it isn't feasible that you were infected genitally with HSV-1 either.

You might get lucky and test negative on IgG. The best test to have is the Westernblot and you'll know for sure.